Where's my free "Welcome to the club tote bag"?

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Comments

  • khl8
    khl8 Member Posts: 807
    #22
    taraHK said:

    welcome
    Sorry you have cause to be here but welcome -- you are at the right place.

    I was diagnosed with Stage III rectal cancer at age 44. That was 7.5 years ago. I've had a couple of relapses but I'm still alive and kicking (and dancing and hiking and everything else). I have two teenage boys -- they are crazy too -- but in that good way -- the way that makes you feel like living forever

    Let us know when and if you want to share more information about your diagnosis and treatment, and if there are any questions you have or experiences we can share that might be helpful to you.

    Warm wishes,

    Tara

    Welcome to the family!
    Welcome to the family! Sorry that you had to find us, but we are here for you and each other! And I never got a tote bag either!!!!!! Keep that sense of humor, laughter will get you through this!
    Kathy
  • SandyL
    SandyL Member Posts: 218
    #23
    khl8 said:

    Welcome to the family!
    Welcome to the family! Sorry that you had to find us, but we are here for you and each other! And I never got a tote bag either!!!!!! Keep that sense of humor, laughter will get you through this!
    Kathy

    I'm in agreement with Steve
    the only bag you may get here is not one that you would want.
    You will get lots of info here that you will find useful.
    Sandy
  • Nana b
    Nana b Member Posts: 3,030 Member
    #24
    SandyL said:

    I'm in agreement with Steve
    the only bag you may get here is not one that you would want.
    You will get lots of info here that you will find useful.
    Sandy

    hi
    Welcome! I think I am the old foggie on this site! Sorry to meet you but glad you found us! :-)
  • pf78248
    pf78248 Member Posts: 209
    #25
    Welcome Sheri
    I hate you had to join this club but you will find so many friendships here. This is a great group! I personally can testify that I find nurses are the best people on earth! My husband David has been at this cancer journey about 2 1/2 years and there are so many nurses we've come to adore.

    You will get great advice and support here. Come back anytime! I wish you a very successful journey. There are many stage fours here that have survived a long time. I know you will find them inspiring.

    Hugs and Healing,
    Priscilla
  • HollyID
    HollyID Member Posts: 946 Member
    #26
    Hi Sheri... I see you
    Hi Sheri... I see you haven't posted except your original one. I hope you come back and talk to us!

    I'm also a nurse, stage III. I'm so sorry you had to join our club, but so happy you found us.
  • Smethport
    Smethport Member Posts: 15
    #27
    lizzydavis said:

    I did receive a parting gift
    I did receive a parting gift from my oncologist when he prescribed Xeloda. It was a bag with a video about Xeloda, a pill case & a tube of Utter Cream. Never received a Tote Bag either.

    Welcome - You are not alone!

    Lizzy

    Xeloda bag
    I just received my beautiful blue Xeloda bag from my oncologist on Thursday. That utter cream is really good and have been using it often. I am stage IIa, had right colectomy on 2/9/10, and had been researching the internet and found the MSI, microsatellite instability test, that they do on your tumor specimen. Well, it came back from a lab in Irvine CA,and was called into see my onco and was told that it was MSI-S, which is not good. Apparently you should be high, and that stable or low is the worst case. So, I started on Xeloda 1800 mg b.i.d. I actually was a little uneasy with not doing any chemo, but just 4 month CT scans and blood work, so hoping this will give me a little better fighting chance.

    I feel good after 4 doses, my feet feel a little hot, but other than that I feel good. Hope that keeps up. My best to all.
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #28
    Welcome to the board
    Just wanted to say hello and welcome !
  • daydreamer110761
    daydreamer110761 Member Posts: 487 Member
    #29
    Sonia32 said:

    Welcome to the board
    Just wanted to say hello and welcome !

    I gave my bag back....
    2 years ago I won a black bag that carried a pump in it - held on to it for about 6 months and got tired of carrying it around so I gave it back!

    Welcome to the site from one sherrie to another! Sorry to meet you here, but glad you came. Here you will find many wonderful people with plenty of helpful advice to guide you along the way.
  • atrue
    atrue Member Posts: 29
    #30
    welcome aboard
    hi welcome sorry that we have to meet this way!!! the people here are great, i cant say that enough...this is where all the angels are...i promise when you ask a question they will reply with great tips...they have helped me and they give you that little push to keep fighting...prayers and best wishes...if you do the chemo every other week with the pump you get a special little purse....hope all goes good
  • PGLGreg
    PGLGreg Member Posts: 731
    #31
    After my last radiation
    After my last radiation treatment, I was presented a very nice graduation certificate, rolled and tied with red ribbon. Even better than that diploma was the great big grin from the radiation techno when she gave it to me. Oh, but you don't have rectal cancer, I guess, so you probably won't be getting one. Sorry.

    --Greg
  • nursesheri
    nursesheri Member Posts: 50
    #32
    christinecarl said:

    Hi
    Welcome to the board, Come to think of it I never got my totebag either. I am the same age as you. Good luck with your treatments. I have been done with chemo since 6/23/09, I was dxed stage III. So far it has not come back.

    Got the bag last week. Only
    Got the bag last week. Only thing is, it came with with a darn pump in it. Is it to late to give it back? Guess I should be careful what I ask for.
  • geotina
    geotina Member Posts: 2,111 Member
    #33
    Hi Sheri:
    Just wanted to jump in and say welcome to the board. Gosh another young one with this disease, breaks my heart. My hubby is the one with cancer, diagnosed 3/09, age 60, Stage IV, transverse colon, mets to liver and lung. So far so good, great response to chemo, now on chemo light, only surgery colon resection.

    Geez, the only bag George got was the fanny pack with that damn pump in it and the tote from the oxi people with gloves and a coverlet with their name on it.

    Take care - Tina
  • jararno
    jararno Member Posts: 186
    #34
    Welcome!
    I didn't get my "Welcome Bag" either!!!:( Darn! I do get to "rent" a lovely pump with a stylish bag every two weeks!!! I call her "Grace" because she isn't very graceful!!! I too am a newby. Stage IIIC. Just love the "decorative pump tubing" that gets caught on everything!!!! I am spending a lot of time in bed which I don't mind at all! ( I am very lazy!!!! ) Currently using both the Sancuso Patch and Emend for CINV!! So much fun!!! Still got clammy and "sick" this past treatment( #7 I think ? ).

    I am a bit older ( 57 ) and have grown children....I know it is so much harder on those who have younger families depending on them.

    The biggest surprise for me is the rude questions that "well meaning????" friends and relatives ask! Or "advice" that is not asked for!!!!!! I think the biggest thing I have had issues with is friends "outing me" by adding my complete name and condition to their prayer chains! I guess I don't mind the "Pray for a friend" ones, but I have felt rather violated!

    The people on this board have helped me feel like I am not alone in this battle. I don't often post, but I guess I'm more of a stalker!!!

    Welcome to The Club Sheri!

    Take Care....Barb
  • jararno
    jararno Member Posts: 186
    #35
    geotina said:

    Hi Sheri:
    Just wanted to jump in and say welcome to the board. Gosh another young one with this disease, breaks my heart. My hubby is the one with cancer, diagnosed 3/09, age 60, Stage IV, transverse colon, mets to liver and lung. So far so good, great response to chemo, now on chemo light, only surgery colon resection.

    Geez, the only bag George got was the fanny pack with that damn pump in it and the tote from the oxi people with gloves and a coverlet with their name on it.

    Take care - Tina

    Wow! Gloves ad a Coverlet!!!
    Damn Pump, such a stylish fanny pack!!! I call mine "Grace"!!! Wow! I never got anything with my pump except a bag of "emergency" supplies of some sort.....I never looked in the bag!! I was never even told anything about the pump and got yelled at for hitting buttons to try to stop the beeping when it was empty. Oxi is such a freaky drug.....Just love the side effects!

    I did learn to clamp off the tubing and remove the battery! But I learned the hard way to never, ever, ever put the battery in your pants pocket! Suddenly it got really hot!!! I think my keys hit the contacts! Wow was that scary to have my leg start burning!!!! The battery was too hot to touch!!

    Take care

    Barb
  • classicman
    classicman Member Posts: 34
    #36
    Tote Bag??? did I miss something
    Welcome to the site, im sort of new also, had chemo and radiation and 3 operations, im dooing well, but now having some heart issues, hope we can help with advice and comments as you take your journey
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #37
    Welcome
    Welcome to the board Sheri. Sorry you have to be here but these folks are truly a blessing. Feel free to ask questions. I am always amazed that someone out there has an answer, or at least an opinion. :)

    Aloha,
    Kathleen
  • vhtqm1
    vhtqm1 Member Posts: 107
    #38
    hello out there
    hi, Sheri


    so sorry about your diagnosis and that you even have to join such a site due to your condition. whatever and whenever you have questions and or concerns just post them and i'm sure someone from this fabulous will help when they reply. hope your doing well today.

    ed
  • Lisa_R
    Lisa_R Member Posts: 59
    #39
    welcome... i am stage 4 and
    welcome... i am stage 4 and 42 this year(UGH).. dx 3 years ago and just received a NED scan... so there is lots of hope.. and i had that damn pack too... u learn to love and hate it...(my hubby said i abused the pack--- dragging it on the floor bc i"D forget it was attached).. there alot of people who post a lot here.. i am a cruiser.. i read the post but dont post myself much.. but there is a lot of good advise and support....

    lisar
  • P_I_T_A
    P_I_T_A Member Posts: 133
    #40
    Welcome
    I got one of those dang pump totes too. Also, got a tote bag with blanket, gloves, scarf, etc. courtesy of the makers of Oxi. Had to spend all this $$$$ on chemo, and all I get is this stinkin care package? Didn't even get the t-shirt. I would tell you what material the bag is made of, but can't cause my fingertips are still numb. Geeeeeeeeeee ttthhhaaaannnkkkkssss Oxi!!!

    -DJ

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