sclc extensive - dilema - has anyone been there?

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  • DeWitt
    DeWitt Member Posts: 2
    sclc2010 said:

    Clinical Trials for SCLC
    I am 61 years old with SCLC, extensive, diagnosed 4/20/10. However, I am fortunate enough that when it was found it was still contained within the chest area. I did qualify for one of the clinical trials showing on the NCI web site for chemo-naive patients.

    During a recent hospital stay for Percarditis, they did a routine chest scan for blood clots and we learned that my primary tumor had shrunk by 50% with only two rounds of the clinical trial drugs. Next week will complete my round 3 and I am scheduled for a follow-up scan 7/30 which will measure and or document 0 tumors where they once were.

    Everything I have read reiterates that if you have SCLC, clinical trials are the best option. I will start standard of care chemo on 8/1 with the Etoposide and Carboplatin.

    Good luck and will keep you in my prayers.

    Clinical trials and support groups
    I totally concur with the effort to get into clinical trials, particularly if you're diagnosed with SCLC. I also suggest getting into a lung cancer support group. As you may know, there's a prevailing stigma with lung cancer, and finding a good support group may be diificult. But keep trying.
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
    sclc2010 said:

    Clinical Trials for SCLC
    I am 61 years old with SCLC, extensive, diagnosed 4/20/10. However, I am fortunate enough that when it was found it was still contained within the chest area. I did qualify for one of the clinical trials showing on the NCI web site for chemo-naive patients.

    During a recent hospital stay for Percarditis, they did a routine chest scan for blood clots and we learned that my primary tumor had shrunk by 50% with only two rounds of the clinical trial drugs. Next week will complete my round 3 and I am scheduled for a follow-up scan 7/30 which will measure and or document 0 tumors where they once were.

    Everything I have read reiterates that if you have SCLC, clinical trials are the best option. I will start standard of care chemo on 8/1 with the Etoposide and Carboplatin.

    Good luck and will keep you in my prayers.

    could you provide the exact
    could you provide the exact link to trial and other details on where its being offered and qualifications? thanks

    i know its on National Cancer Institute site it shows
    Results for 38 sclc trials on http://www.cancer.gov/search/results.aspx
  • stayingcalm
    stayingcalm Member Posts: 650 Member

    could you provide the exact
    could you provide the exact link to trial and other details on where its being offered and qualifications? thanks

    i know its on National Cancer Institute site it shows
    Results for 38 sclc trials on http://www.cancer.gov/search/results.aspx

    If it is SCLC
    Trials for sclc, extensive, New York
  • sclc2010
    sclc2010 Member Posts: 3

    could you provide the exact
    could you provide the exact link to trial and other details on where its being offered and qualifications? thanks

    i know its on National Cancer Institute site it shows
    Results for 38 sclc trials on http://www.cancer.gov/search/results.aspx

    Clinical Trial I am participating in
    Here is the link on NCI for the clinical trial I am participating in. Hope that helps in your search of the clinical trials. Currently the participating facilities are in GA and AL.

    http://www.cancer.gov/search/ViewClinicalTrials.aspx?cdrid=638352&version=HealthProfessional&protocolsearchid=8004694