Joint and bone pain

24

Comments

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    me too!
    I'm so glad to see this topic. I just went to my gp on
    Friday b/c my right arm, baby and ring fingers are num and hurt. My knees, back and hips hurt so bad it is scary. I can sit for 10 min and when I try to get up it takes a while b/c my hips hurt sooooooooooooooo bad, and when I walk you can actually hear the bone pop with each step. I never had chemo but I am 14 wks out of my last rad treatment. I did not have all this pain b4 my treatments but the oncol office says it isn't from radiation. I just find that hard to believe. When I sit for any time, my back hurts real bad also. My kids tell me I walk like an 80 year old woman. This discussion just convinces me that the radiation had something to do with it.
    I am sorry that we are all going thru this after we have already been thru the hell of cancer and it's treaments. I pray that we will all get thru this and maybe one day we'll be very lucky and wake up w/o all the pain.
    God Bless You,
    Debbie
  • Dragonfly5
    Dragonfly5 Member Posts: 2
    Joint & Bone Pain
    I am sorry to hear your feeling this way. I wish I could tell you it will go away or it will get better but I have been in remission from Childhood Hodgkins Disease for 21 years and unfortunantly I still have horrible pains in my legs & feet and this has been going on since treatment. I had MOPP, ABVD and Radiation. The pain has followed me into adulthood and would go in sperts as to the serverity of the pain. As of 2 years ago the pain has become so intense that I can not walk and miss plenty of work. The weather plays into my pain as well. I have a healthy 5 year old that I was told would never happen bc of my treatments. Lots of doctors do not have a clue about affect or late affects of chemotherapy or what to look for. Unfortunantly you will have to do a lot of research to show your doctor this happens or go to a doctor that actually has a concept about this important issue of late affects. Most doctors that are going to school now are starting to learn what to look for in cancer survivors. The older docs now have no clue and don't know where to even begin. Cancer.org would be a good place to get info. I did a lot of research and printing info to bring to my new doctors. Its hard enough to go through cancer and then you still end up fighting to survive the late affects. I sometimes wonder what I would have chosen to do if they would have come to me and said hay this is what it is going to be like in 20 years. Bc I think I honestly on my really bad days when the pain is soooo intense I just would not have done any of it. My current GP doc said this to me "It is sad that sometimes the medicine that was used to make us better comes back and hurts us in the end and at least you had the 20 years to be here". Take that how you want to but sometimes that helps just to get through those horrible moments when your world has stopped bc of the pain. Good Luck!
  • marti1965
    marti1965 Member Posts: 2

    muscle and bone pain
    yes, also have been going threw the pain, now for almost 5 years, and also from the chemo it has left me with a perminate brain fog. my employer has expcted me to be normal when i came back to work and i havn't been, physically and mentally i have been it seems permantly effected and i can't get any kind of proof. and i am the breadwinner of the family, i could lose my job. my employer is always giving bad reviews now, and i am always making mistakes,i used to love my job, now i hate it because of the stress my boss imposses on me everyday, i never do anything right, even if i wasn/t the -person that made the error, he still acusses me and thats what he sticks to. i hurt all the time, i had breast cancer but scence chemo i have been left with aching bones and muscles, it is so painful to be on my feet for 9 hours a day, i work and walk in pain everyday, and not appriciated at my job,i just want to cry, its a horrable way to live. that is not a quality life. I have to been to therapist...and other profesionsls to get help but no one can help,they all blame it on somthing else, iknow what it is. i thought when the treatments were over i could get on with my life, not with my life, my old life is gone my body is gone, i have someone elses and i get so tired of the pain, and thinking i am going to have to fight everyday till i retire, fight making myself get up early work allday and be in pain constantly, and facing an employer that downgrades me everyday watching me constantly to catch me in any mastakes so he can document me, get rid of me, gee why would anyone have a depresion from that? drepression would be from the devestating news of having cancer not the side effectes of chemo, right? thats what i'v been told by my family doctor, arthrist specialist, and my onacologists realy isn't conserned, if its not cacerous he just dismisses the whole thing
    ]

    Jackie 1020
    I was going through the posts on joint pain and came across yours and felt so sad to here about the problems that ur going through. As if havin g cancer isn;t bad enough...u also have to deal with harsh uncaring people. My heart goes out to you and I'm sending a little prayer to you so that things get easier for you and people start treating you better. Everything u described I've felt as well...the chronic bone pain, depression, not being able to do the things I used too...I've just finished radiaton and had chemo last year for breast cancer so I can relate...it may not mean much but there is someone here who understands. Keep your chin up....god bless
  • beckyracn
    beckyracn Member Posts: 322

    Joint & Bone Pain
    I am sorry to hear your feeling this way. I wish I could tell you it will go away or it will get better but I have been in remission from Childhood Hodgkins Disease for 21 years and unfortunantly I still have horrible pains in my legs & feet and this has been going on since treatment. I had MOPP, ABVD and Radiation. The pain has followed me into adulthood and would go in sperts as to the serverity of the pain. As of 2 years ago the pain has become so intense that I can not walk and miss plenty of work. The weather plays into my pain as well. I have a healthy 5 year old that I was told would never happen bc of my treatments. Lots of doctors do not have a clue about affect or late affects of chemotherapy or what to look for. Unfortunantly you will have to do a lot of research to show your doctor this happens or go to a doctor that actually has a concept about this important issue of late affects. Most doctors that are going to school now are starting to learn what to look for in cancer survivors. The older docs now have no clue and don't know where to even begin. Cancer.org would be a good place to get info. I did a lot of research and printing info to bring to my new doctors. Its hard enough to go through cancer and then you still end up fighting to survive the late affects. I sometimes wonder what I would have chosen to do if they would have come to me and said hay this is what it is going to be like in 20 years. Bc I think I honestly on my really bad days when the pain is soooo intense I just would not have done any of it. My current GP doc said this to me "It is sad that sometimes the medicine that was used to make us better comes back and hurts us in the end and at least you had the 20 years to be here". Take that how you want to but sometimes that helps just to get through those horrible moments when your world has stopped bc of the pain. Good Luck!

    I had been diagnosed with
    I had been diagnosed with Fibromyalgia 20 years ago and noticed about two months out of chemo/rads that this pain had diminished and was replaced with deep bone pain. My oncologist stated that chemo often cures Fibro. No one had an answer about the deep bone pain. Said it had nothing to do with the treatments. So, I requested copies of all my scans. Post treatment scans show osteoarthritis in bilateral hips and "decreased activity in lumbar vertebra likely related radiation therapy." At least I know I'm not crazy! Outside of the radiologist that read the reports, none of my other docs will still admit that these conditions are a result of my treatments.
  • sue K
    sue K Member Posts: 18
    beckyracn said:

    I had been diagnosed with
    I had been diagnosed with Fibromyalgia 20 years ago and noticed about two months out of chemo/rads that this pain had diminished and was replaced with deep bone pain. My oncologist stated that chemo often cures Fibro. No one had an answer about the deep bone pain. Said it had nothing to do with the treatments. So, I requested copies of all my scans. Post treatment scans show osteoarthritis in bilateral hips and "decreased activity in lumbar vertebra likely related radiation therapy." At least I know I'm not crazy! Outside of the radiologist that read the reports, none of my other docs will still admit that these conditions are a result of my treatments.

    joint and bone pain
    How wonderful it was for me to find this website yesterday! Am soooo pleased to know that I am not the only one in the world to have joint and bone pain after treatments. I was diagnosed with uterine carcinosarcoma last May. I had a radical hysterectomy, followed by chemo and radiotherapy. Treatments finished in October 2009. I am still experiencing severe pain in my back and legs, and it seems to be confusing the docs and oncologist. Exercise makes the pain much worse. This pain, and the inevitable fatigue from the treatments makes me quite depressed at times, and anxious in case the cancer has returned.
    I am having scans this afternoon, and meet with my oncologist on Monday for results. I shall be pleased to be able to tell him that I am not so unusual with the pains I am experiencing, although maybe I am the only one in Scotland!
    It's so good to 'meet' you all.
    sue K
  • Robomaz
    Robomaz Member Posts: 3

    muscle and bone pain
    yes, also have been going threw the pain, now for almost 5 years, and also from the chemo it has left me with a perminate brain fog. my employer has expcted me to be normal when i came back to work and i havn't been, physically and mentally i have been it seems permantly effected and i can't get any kind of proof. and i am the breadwinner of the family, i could lose my job. my employer is always giving bad reviews now, and i am always making mistakes,i used to love my job, now i hate it because of the stress my boss imposses on me everyday, i never do anything right, even if i wasn/t the -person that made the error, he still acusses me and thats what he sticks to. i hurt all the time, i had breast cancer but scence chemo i have been left with aching bones and muscles, it is so painful to be on my feet for 9 hours a day, i work and walk in pain everyday, and not appriciated at my job,i just want to cry, its a horrable way to live. that is not a quality life. I have to been to therapist...and other profesionsls to get help but no one can help,they all blame it on somthing else, iknow what it is. i thought when the treatments were over i could get on with my life, not with my life, my old life is gone my body is gone, i have someone elses and i get so tired of the pain, and thinking i am going to have to fight everyday till i retire, fight making myself get up early work allday and be in pain constantly, and facing an employer that downgrades me everyday watching me constantly to catch me in any mastakes so he can document me, get rid of me, gee why would anyone have a depresion from that? drepression would be from the devestating news of having cancer not the side effectes of chemo, right? thats what i'v been told by my family doctor, arthrist specialist, and my onacologists realy isn't conserned, if its not cacerous he just dismisses the whole thing
    ]

    Muscle and Bone Pain
    I was diagnosed with NHL in Aug 09. I had 6 cycles of R-CHOP. I noticed swelling in my fingers and ankles. I also have trouble sleeping at night. I have tried taking Alleve which seems to help a little. I have since restarted my supplements which consist of taking Shaklee Vivex, COQ10, calcium, Vitamin D3, B Complex, Sam-e, 5HTP, and Alpha Lipolic Acid. I put 2 tablespoons of blended asparagus (canned) in hot water and drink it in the morning and evening. I try to exercise as much as possible, although I have been inconsistent because I ache so much in the morning and I'm too tired to go. My oncologist had me tested for Lymes, RA and Lupus which all came out negative. I've always been such a healthy person, so getting NHL was such a shock to me.

    Does anyone have any other suggestions which may help? I will have to have 2 years of Rituxan every 6 months (once a week for a month for each treatment) as a follow up because I have indolent NHL. I must admit, It's getting quite depressing.
  • jazzy1
    jazzy1 Member Posts: 1,379
    sue K said:

    joint and bone pain
    How wonderful it was for me to find this website yesterday! Am soooo pleased to know that I am not the only one in the world to have joint and bone pain after treatments. I was diagnosed with uterine carcinosarcoma last May. I had a radical hysterectomy, followed by chemo and radiotherapy. Treatments finished in October 2009. I am still experiencing severe pain in my back and legs, and it seems to be confusing the docs and oncologist. Exercise makes the pain much worse. This pain, and the inevitable fatigue from the treatments makes me quite depressed at times, and anxious in case the cancer has returned.
    I am having scans this afternoon, and meet with my oncologist on Monday for results. I shall be pleased to be able to tell him that I am not so unusual with the pains I am experiencing, although maybe I am the only one in Scotland!
    It's so good to 'meet' you all.
    sue K

    Sue K
    How did the tests come out for you? Curious as I've got uterine cancer and had the radiation to pelvic with much pain in buttock/pelvic area. Wondering what you found as your situation is similar to mine.

    Thanks,
    Jan
  • sue K
    sue K Member Posts: 18
    jazzy1 said:

    Sue K
    How did the tests come out for you? Curious as I've got uterine cancer and had the radiation to pelvic with much pain in buttock/pelvic area. Wondering what you found as your situation is similar to mine.

    Thanks,
    Jan

    joint and bone pain
    Hi Jan
    The scans were ok- no sign of the dreaded cancer, thank goodness. However it is hard to be as pleased as I should when in constant pain! My oncologist is not admitting that it is the treatments- paclitaxel and carboplatin- and says that 'none of his other ladies' has the same problem as me. So I shall just see him in 3 months to check for cancer symptoms. So, it is up to my own doctor to try and help. He is not at all sure what is wrong with me, although I have assured him that there are ladies on this forum who seem to have the same problems! Anyway he has just started me on gabapentin and, for the first time in a long time I am beginning to feel a bit better. Consequently, my mood has improved, as I was getting rather depressed with constant nagging and roving pains.
    I hate to be on medication all the time but it cannot be helped just now, and I am glad of the relief.
    By the way, Jan, I get pain in the buttocks too, and what a pain that is! Are you on medication? What does your doctor/ oncologist say about it? It seems to me that oncologists are good at treating you when you have cancer but are happy to leave you suffering the after effects of the treatments.
    Good luck to you Jan and thanks for responding to my post.
    Sue
  • jazzy1
    jazzy1 Member Posts: 1,379
    sue K said:

    joint and bone pain
    Hi Jan
    The scans were ok- no sign of the dreaded cancer, thank goodness. However it is hard to be as pleased as I should when in constant pain! My oncologist is not admitting that it is the treatments- paclitaxel and carboplatin- and says that 'none of his other ladies' has the same problem as me. So I shall just see him in 3 months to check for cancer symptoms. So, it is up to my own doctor to try and help. He is not at all sure what is wrong with me, although I have assured him that there are ladies on this forum who seem to have the same problems! Anyway he has just started me on gabapentin and, for the first time in a long time I am beginning to feel a bit better. Consequently, my mood has improved, as I was getting rather depressed with constant nagging and roving pains.
    I hate to be on medication all the time but it cannot be helped just now, and I am glad of the relief.
    By the way, Jan, I get pain in the buttocks too, and what a pain that is! Are you on medication? What does your doctor/ oncologist say about it? It seems to me that oncologists are good at treating you when you have cancer but are happy to leave you suffering the after effects of the treatments.
    Good luck to you Jan and thanks for responding to my post.
    Sue

    Sue
    I'm finding from other groups I'm involved with, complain about their oncol docs, too. Many of them have no idea what side affects are from any treatments and claim they aren't causing our issues. How sad! I'm confused as to what doc to go to.

    When I saw doc March for follow up, mentioned the buttock pain and he told me not cancer and if continues we'll chat next time and do tests or something. Before I have my June appt I called his office to ask about getting MRI, which is better at detecting these type of areas. RN spoke with him and he sugested at this point in time, go to my PCP...oh well! Good as you mentioned to know it's not cancer, but how abouit after affects????

    The pain comes and goes, as today much better--- go figure. Going to chiropractor tomorrow as that is of help too. I'm in a therapy group here and go once per week. Our clinitian leader has same issues with lower back pain, as on radiation many times. She gave up on chiropractor and went to a physical therapist who is in tune with cancer and side affects from treatments. She has been working with her on strengthening her inner core (tummie area, etc) and she's doing oh so much better. I'm thinking about signing up with her. No I am on no meds, just some IB Prophine.

    Ideas on another doc to go to for our condition?

    Happy Memorial Day..
    Jan
  • hilde451
    hilde451 Member Posts: 229 Member
    joint and bone pain
    I am so glad to find this post. I am sorry you have this. But I am in complete misery with muscle and joint pains. It wakes me up during the night.
    I had 8 treatments of R-Chop for follicular nhl stage 4. My last treatment was Oct. 21,09
    Then December 23 I did Zevalin.
    I go to see my Oncologist on Wednesday and I am wondering should I tell him this?
    I really hurt. Can not take aspirin since I am also on blood thinners. Hope you feel better soon.
    Hilde
  • sue K
    sue K Member Posts: 18
    hilde451 said:

    joint and bone pain
    I am so glad to find this post. I am sorry you have this. But I am in complete misery with muscle and joint pains. It wakes me up during the night.
    I had 8 treatments of R-Chop for follicular nhl stage 4. My last treatment was Oct. 21,09
    Then December 23 I did Zevalin.
    I go to see my Oncologist on Wednesday and I am wondering should I tell him this?
    I really hurt. Can not take aspirin since I am also on blood thinners. Hope you feel better soon.
    Hilde

    joint and bone pain
    Hi Hilde
    Its been a few months since I last contributed to the discussion, but my aches and pains in joints and muscles continue. I think you should tell your oncologist, even though like mine, he may not do very much about it. I have found, like others, that doctors do not like to admit that cancer treatments can cause so much pain, long after treatment has finished. I had chemo - carboplatin and taxol last summer, followed by radiotherapy, finishing the treatments in October. Some others write that they are suffering these effects years after treatments, so I don't expect it to ease any time soon.
    I take regular pain medication, and take as much exercise as I am able.
    I am waiting for an appointment for an MRI scan to check things out as the pain in my back has increased, but am not expecting any sinister results.
    Take care, hope you begin to feel better soon.
    Sue
  • pluckey
    pluckey Member Posts: 484 Member
    whesha said:

    I so much understand your problem. I am suffering a lot of joint and muscle pain. Hands, elbows,hips and knees mostly but not only. My doctor says it is not from chemo (5FU/leukovorin) but it has to be. It started right after chemo and it is a year later and I still hurt. It is getting me down, I can tell you. Has anyone else had this following the 5FU and leuko? I know it is more usual after other chemicals?

    I finished 18 months of
    I finished 18 months of chemo in June and I had 5FU/leucavorin/campostar/erbitux. I am now finding that my fingers just ache every morning and my hips, legs and knees are in agony after sitting or driving even short periods of time...I started walking 30-40 mins this week to seeif it will alleviated the achiness, so far no, but maybe I jsut should also take an Alleve everyday?
  • shoppergal
    shoppergal Member Posts: 118
    sue K said:

    joint and bone pain
    Hi Hilde
    Its been a few months since I last contributed to the discussion, but my aches and pains in joints and muscles continue. I think you should tell your oncologist, even though like mine, he may not do very much about it. I have found, like others, that doctors do not like to admit that cancer treatments can cause so much pain, long after treatment has finished. I had chemo - carboplatin and taxol last summer, followed by radiotherapy, finishing the treatments in October. Some others write that they are suffering these effects years after treatments, so I don't expect it to ease any time soon.
    I take regular pain medication, and take as much exercise as I am able.
    I am waiting for an appointment for an MRI scan to check things out as the pain in my back has increased, but am not expecting any sinister results.
    Take care, hope you begin to feel better soon.
    Sue

    Joint and bone pain
    After I finished my treatments I had such severe pain that I couldn't walk, sit or stand comfortably. Lucky for me, I have a wonderful onc and she did alot of bloodwork, and then sent me to a rheumatologist. I was eventually diagnosed with rheumatoid arthritis throughout my body. I have been on Plaquinel and have had good results. Now my cancer is back and I will be starting chemo again so I don't know how my joints will feel! All i can di is hope for the best.
  • hpsquad
    hpsquad Member Posts: 7
    hilde451 said:

    joint and bone pain
    I am so glad to find this post. I am sorry you have this. But I am in complete misery with muscle and joint pains. It wakes me up during the night.
    I had 8 treatments of R-Chop for follicular nhl stage 4. My last treatment was Oct. 21,09
    Then December 23 I did Zevalin.
    I go to see my Oncologist on Wednesday and I am wondering should I tell him this?
    I really hurt. Can not take aspirin since I am also on blood thinners. Hope you feel better soon.
    Hilde

    joint and bone pain
    How comforting to find this topic. Finished folfox with Avastin 7/3/10. Within 3 weeks started having awful pain in bone and joints. Doctor took blood, sent me to pain specialist, neuropothy specialist, rheumatiod, and next will be bone specialist. With most of the tests coming back negative, I feel like I shouldn't be complaining. Thanks to all of you, I see I'm not alone. I was recently put on indomethacin but having bad side effects. It seems that I am more sensitive than ever to drugs. Prayers and blessings to all, Bette
  • nazma66
    nazma66 Member Posts: 5
    erawit said:

    joint pain
    I finished Taxal+ chemo and radiation last Sept. (2008) and the pain seems to be getting worse??? The pain is all enclusive, hands, elbows and upper arms, neck, hips, knees and feet (toes move back and forth between tingly and numb). My Dr.'s blame it on my diabeties, nerve damage from surgery, and osteoarthritis, anything but the chemo and radiation? I am slowly remembering things, I had majour memory loss after a lobectomy in the summer of 2007, which my Dr.'s can't seem to explain either???.
    It's just all so frustrating ............ I too am exhausted from the pain but refuse to live on pain meds which seem to be the Dr.'s answer to everything ..... I am medically battered and have been thru to much to live the rest of my hard earned life in a med induced semi-coma.

    My pain started right after tamoxifen
    hello all,

    I like this topic of joint pain. Right after I have started my tamofen (2 weeks), started feeling stiffness most in the morning in one hand which resembles Rheumatoid Arthritis. By the way i am a physician from Bangladesh. Did lots of study and research about breast cancer including side effects and its past,present, future. My Oncologist is a good one but sometimes ignoring. i asked her about pain ,she just ignored that may be computer use, or RA or nothing. She did not mention about tamoxifen. I read articles in pubmed and found some very recent ones. Mailed them to my doc and mentioned not to ignore anything of any patient.

    i don't have other joint pain yet. I do light exercise regularly (4-5 days/week). I think it helps a lot.

    Yes, it is frustrating but we all need to be strong and search remedy. Sometimes even a better physician ignore staff which is not right. Chemo has several system side effects. they need to pay attention but not to judge or ignore.
  • patticakes1
    patticakes1 Member Posts: 3
    blueroses said:

    Joint and muscle pain
    Hello, I am sorry to hear that you are having issues with joint and muscle pain - I have that as well and am a 20 year cancer survivor of NHL. I don't know what kind of cancer you had or what type of treatments but you aren't alone if in fact these issues are in fact due to treatment. However, as you probably realize the aches and pains could also be due to a great number of other medical issues so the best thing you can do is start testing with specialists. If you can get to a specialist who deals in after effects of treatments that would be the best but even before that your own family doctor might be able to help you rule out fibromyalgia or chronic fatigue just to name a few - did the treatments you had bring this on with your aches and pains - hard to know. What I can tell you is that yes many cancer patients experience these aches and pains in a major way and many feel it is due to cancer treatment side effects. In fact I have noticed in the last few years doctors have started to acknowledge these issues and other side effects from cancer treatments in days gone by. I have heart damage from a certain chemo drug and not long ago I heard my cardiologist acknowledge that. As well I have had contact with neurology specialists who have said they have seen cognitive and memory issues as a result of treatment too. Of course everyone is different in their treatments and affects, depends on what kind of treatment you had etc. You should be able to find many instances of that on this board.

    There is a number in the states for information from cancer specialists through the American Cancer Society National Cancer Information Centre. It is 1-800-227-2345. Also there is a late effects clinic - The Lance Armstrong Clinic at Dana Farber where you might be able to get more information as well. I think your best bet though is to find the name of a good late effects specialist in the U.S. in my opinion. All the best. Blessings, Blueroses

    Number and Info
    Dear blueroses,
    Thanks for the info. I am having shoulder pain that started in Jan. I have two more herceptin treatments left. I had this combined with taxol for four. On Tues I will be seeing an orthopedic man. They tell me the MRI showed arthritis or bursitis. Trouble is I have taken Ibupropen and naproxin two anti-inflammatories and nothing has helped. If it continues I'll check on a late effects specialist. Have you heard if any of the alternatives such as acupuncture have helped?
  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member
    Flexeril
    Did anyone on this thread go to a Rheumatologist for your achy joints? I did and now I have a prescription for Flexeril 10mg before bedtime.

    this is only day 3 and I can already tell a HUGE difference. Flexeril can make you drowsy, thus that is why she suggested before bedtime. I wake up in less pain. My ankles use to be locked tight every single morning and it's worse when the weather is cold.

    I've used the search tool on this site for Flexeril and only found ONE other person who mentions taking flexeril. I'm just wondering why this isn't suggested more as it's a muscle relaxer.

    CountryGal is now in less pain and the days are tolerable. It's only been 3 days, but I am optimistic that this is going to save my summer!!
  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member

    Flexeril
    Did anyone on this thread go to a Rheumatologist for your achy joints? I did and now I have a prescription for Flexeril 10mg before bedtime.

    this is only day 3 and I can already tell a HUGE difference. Flexeril can make you drowsy, thus that is why she suggested before bedtime. I wake up in less pain. My ankles use to be locked tight every single morning and it's worse when the weather is cold.

    I've used the search tool on this site for Flexeril and only found ONE other person who mentions taking flexeril. I'm just wondering why this isn't suggested more as it's a muscle relaxer.

    CountryGal is now in less pain and the days are tolerable. It's only been 3 days, but I am optimistic that this is going to save my summer!!

    see my other post " FLEXERIL
    see my other post " FLEXERIL for 'locked' joints to relax muscle & tendons"
  • daniel K
    daniel K Member Posts: 2
    debates said:

    I finishes chemo fours years ago. My knee pain began during my chem treatment. My oncologist gave me suggestions to help this. If your doctor wants you to find sources before he will treat you, you need to find another doctor. Your doctor has access to databases that you cannot access. It is his job to research your problems or refer you to a doctor who will.

    JOINT Pain
    Im 33 years old, I'm an AML leukemia type 2 survivor,I went threw 2 months of full chemo, and 4 consolidation treatments, then i went into remission, after about 1 year later i started getting moderate to severe joint and muscle pains, usually in my ankles feet and kneed and hands, now 2 years later severe joint pain so badly its hard to walk, im a mechanic and my job is demanding, im going to see a arthritis specialist this month, ive gone to at least 3 other doc's so far they all ssupect gout, but all the bood tests show negative, i ssupect otherwise like some severe auto imune disorder, i go from one day in horrible pain to the next perfectly fine! i shouldnt feel like im 66 yrs old at the age of 33 i can jog anymmore it hurts to much, and any heavy work just wears me out. I dotn know what to do.
  • daniel K
    daniel K Member Posts: 2
    debates said:

    I finishes chemo fours years ago. My knee pain began during my chem treatment. My oncologist gave me suggestions to help this. If your doctor wants you to find sources before he will treat you, you need to find another doctor. Your doctor has access to databases that you cannot access. It is his job to research your problems or refer you to a doctor who will.

    JOINT Pain
    Im 33 years old, I'm an AML leukemia type 2 survivor,I went threw 2 months of full chemo, and 4 consolidation treatments, then i went into remission, after about 1 year later i started getting moderate to severe joint and muscle pains, usually in my ankles feet and kneed and hands, now 2 years later severe joint pain so badly its hard to walk, im a mechanic and my job is demanding, im going to see a arthritis specialist this month, ive gone to at least 3 other doc's so far they all ssupect gout, but all the bood tests show negative, i ssupect otherwise like some severe auto imune disorder, i go from one day in horrible pain to the next perfectly fine! i shouldnt feel like im 66 yrs old at the age of 33 i can jog anymmore it hurts to much, and any heavy work just wears me out. I dotn know what to do.