Anybody had these? Eloxatin/ Oxaliplatin- Fluorouracil (5FU) Leucovorin - Avastin (Bevacizumab)-
Comments
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My son is on the same regiman
My son is on the same regiman and just recieved his thrid treatment today, so far he has not expereinced too many side effects yet. He has had some nausea the day after he is hooked up but other then that not doen too bad. I will agree with someone that said her husband has a lot of fatigue as that is one thing Scott has had also but there again it is basically only on the second day. His oncologists is very pleased to see he is not expereincing too many of the side effects though he did caution some could still happen as he goes along, this is his third of twelve. Just let your body tell you what it needs and listen to it but if you feel up to getting out and dong things and staying active it is really the best thing for you.
Any questions you have feel gree to ask here on the board I am telling you they have been a big help to me with learning what to expect. I am very glad I joined.0 -
Got my chemo pack off today.
Got my chemo pack off today. Not nearly as traumatic as getting it put on. So far only side effects are slight nausea, pain in my jaw, and this awful cold tingling in my fingers etc. My husband got me some surgical gloves and they help quite a bit. At least allow for a little warning that it is cold and may be a problem. Thanks for all the suggestions!0 -
Pain in the jawporkchopqueen said:Got my chemo pack off today.
Got my chemo pack off today. Not nearly as traumatic as getting it put on. So far only side effects are slight nausea, pain in my jaw, and this awful cold tingling in my fingers etc. My husband got me some surgical gloves and they help quite a bit. At least allow for a little warning that it is cold and may be a problem. Thanks for all the suggestions!
A rare side effect, but I had it too. It was quite severe for me.
Good luck with all of this. It's a hard regimen.0 -
Guess what queenie!abrub said:Pain in the jaw
A rare side effect, but I had it too. It was quite severe for me.
Good luck with all of this. It's a hard regimen.
I was just put on FOLFOX yesterday, since my new onc said my little tumors grew 1mm, and he wanted to nip it in the bud...so here I am on my first folfox regimen, pack will come off tomorrow (that's always the best part) and we'll see how I do after I'm unhooked...It hasn't been too, thanks to reading about Folfox here, I knew what most to expect, and am preparted with my gloves and socks. I mistakenly walked barefoot on my wooden floors though, not expecting to feel some kind of burning sensation, so wear socks always LOL...I am drinking and eating everything watm, the crystal light lemonade powder drinks taste good even warm! noe, my eyes burn alittle, don't know what to do for that but keep them closed, and then I won't see what I'm typing LOL..
Now he also gave me another option, something I haven't heard since I was diagnosed 14 months ago! he wants to break me from the chemo and do radio sphere, since it's contained in just my liver, and I was in shock! he wanted to do it ASAP, but I wanted to come here and ask about it first, make sure it be ok for me, so he only has me doing 4 chemo, since he said it's rare people actually make it to 12, and he doesn't want to leave me with alot of neuropathy, I don't really feel the tingling yet. My ribs hurt though, a slight pain when I yawn, or breathe in deep.
But I'm doing this with you, and never say never, I heard words yesterday that made even me feel better. I never thought I would ever have other options except for maintenance chemo for life..I'm still in shock, so you know there's always hope!!never lose that!
Hugsss!
~Donna0 -
jaw painporkchopqueen said:Got my chemo pack off today.
Got my chemo pack off today. Not nearly as traumatic as getting it put on. So far only side effects are slight nausea, pain in my jaw, and this awful cold tingling in my fingers etc. My husband got me some surgical gloves and they help quite a bit. At least allow for a little warning that it is cold and may be a problem. Thanks for all the suggestions!
I too had jaw pain, when I told the Onc nurse about it she said she had never heard of that side effect. It was so severe the pain almost could drop me to my knees. Thankfully about half way through my chemo that side effect stopped.0 -
Thanks for the encouragementmark440 said:Hi P-CHOP!
I hope things are going better for you today..I had a bad couple of days on the 2nd and 3rd days... I hope you will be o.k. it is weird sleeping with that fannypak..Im sure youll get up from a chair and forget to grab it..when they take it out it only takes a few minutes...the first full day without the pump I slept all day!! day 5 I started to feel good..( besides the constipation). yesterday I worked in the yard and today I feel great!! just try not to think of 11 more treatments.. just think you will be 1/6th of the way there!! Hang in there my friend!! Mark
Thanks for the encouragement Mark, I feel a little bummed today. Just no energy at all. Yep, glad to get the fanny pack off but wasn't too bad, and even better that it didn't hurt to take the needle out of the port! YES!! Hoping I will feel mucho better tomorrow. Too beautiful outside to spend it on the couch. And thanks again for checking on me.0 -
Good luck Donna, looks likeShayenne said:Guess what queenie!
I was just put on FOLFOX yesterday, since my new onc said my little tumors grew 1mm, and he wanted to nip it in the bud...so here I am on my first folfox regimen, pack will come off tomorrow (that's always the best part) and we'll see how I do after I'm unhooked...It hasn't been too, thanks to reading about Folfox here, I knew what most to expect, and am preparted with my gloves and socks. I mistakenly walked barefoot on my wooden floors though, not expecting to feel some kind of burning sensation, so wear socks always LOL...I am drinking and eating everything watm, the crystal light lemonade powder drinks taste good even warm! noe, my eyes burn alittle, don't know what to do for that but keep them closed, and then I won't see what I'm typing LOL..
Now he also gave me another option, something I haven't heard since I was diagnosed 14 months ago! he wants to break me from the chemo and do radio sphere, since it's contained in just my liver, and I was in shock! he wanted to do it ASAP, but I wanted to come here and ask about it first, make sure it be ok for me, so he only has me doing 4 chemo, since he said it's rare people actually make it to 12, and he doesn't want to leave me with alot of neuropathy, I don't really feel the tingling yet. My ribs hurt though, a slight pain when I yawn, or breathe in deep.
But I'm doing this with you, and never say never, I heard words yesterday that made even me feel better. I never thought I would ever have other options except for maintenance chemo for life..I'm still in shock, so you know there's always hope!!never lose that!
Hugsss!
~Donna
Good luck Donna, looks like you have more options and that is a wonderful thing. Keep us updated on your progress.
PCQ0 -
Pain in the jawchristinecarl said:jaw pain
I too had jaw pain, when I told the Onc nurse about it she said she had never heard of that side effect. It was so severe the pain almost could drop me to my knees. Thankfully about half way through my chemo that side effect stopped.
I felt as though someone was smashing bricks into my jaws whenever I started to eat. pain lasted 30-40 seconds, following the first bite only.
Now I occasionally have an "awareness" of the jaw pain, but no more real pain. I was warned about that as a very rare side effect. My chemo overdose first round didn't help things, either.
Glad it's subsided for you.0 -
Does the fatigue and
Does the fatigue and tiredness come and go? On Friday, (4th day after starting my chemo cocktail) I was really tired, then on Saturday, felt almost normal. Is it constant for most people of fluctuates?0 -
Does the fatigue and
Does the fatigue and tiredness come and go? On Friday, (4th day after starting my chemo cocktail) I was really tired, then on Saturday, felt almost normal. Is it constant for most people of fluctuates?0 -
Jaw Painabrub said:Pain in the jaw
I felt as though someone was smashing bricks into my jaws whenever I started to eat. pain lasted 30-40 seconds, following the first bite only.
Now I occasionally have an "awareness" of the jaw pain, but no more real pain. I was warned about that as a very rare side effect. My chemo overdose first round didn't help things, either.
Glad it's subsided for you.
I've had the jaw pain too, sometimes worse than others. One thing that helped me a little was to take a small sip of room temp or warm orange juice before eating and letting the juice run slowly through my mouth. I'd feel the jaw pain for that 30 seconds or so, but it didn't seem as strong this way as it did starting off with a bite of food.0 -
Finishing my first week
Finishing my first week since starting my chemo cocktail. Think I have done well so far. I do understand some of these build up with time, but for now, I will not complain. I have had jaw pain on the first bite of eating food, if I haven't eaten in a few hours. Gets your attention!! Also, the fatigue has been hard to deal with, but was most difficult on Friday after starting regime on Monday. Had light headaches for two days. Nausea was only a concern one day. The cold intolerance has been strong and continues, but the weather here has warmed and I have managed pretty well, though when I get cold, it takes a warm, warm, blanket and a sweet husband to get me warmed back up! Can't imagine how difficult it would be to suffer with this drug in a much colder region of the US. Here in the south, we are moving into spring and making life much easier all around. Still having pain from my port site. Don't know if that is a usual thing. Just have to be careful how I turn and twist. Thanks for all the concerns and comments to help me through this journey.0 -
How you doing Mark?mark440 said:Hi P-CHOP!
I hope things are going better for you today..I had a bad couple of days on the 2nd and 3rd days... I hope you will be o.k. it is weird sleeping with that fannypak..Im sure youll get up from a chair and forget to grab it..when they take it out it only takes a few minutes...the first full day without the pump I slept all day!! day 5 I started to feel good..( besides the constipation). yesterday I worked in the yard and today I feel great!! just try not to think of 11 more treatments.. just think you will be 1/6th of the way there!! Hang in there my friend!! Mark
Hope you are doing okay, just checking in.0 -
Hey PCQ!!porkchopqueen said:Finishing my first week
Finishing my first week since starting my chemo cocktail. Think I have done well so far. I do understand some of these build up with time, but for now, I will not complain. I have had jaw pain on the first bite of eating food, if I haven't eaten in a few hours. Gets your attention!! Also, the fatigue has been hard to deal with, but was most difficult on Friday after starting regime on Monday. Had light headaches for two days. Nausea was only a concern one day. The cold intolerance has been strong and continues, but the weather here has warmed and I have managed pretty well, though when I get cold, it takes a warm, warm, blanket and a sweet husband to get me warmed back up! Can't imagine how difficult it would be to suffer with this drug in a much colder region of the US. Here in the south, we are moving into spring and making life much easier all around. Still having pain from my port site. Don't know if that is a usual thing. Just have to be careful how I turn and twist. Thanks for all the concerns and comments to help me through this journey.
I just started Folfox myself, after being on Folfiri for 14 months, and I just got unhooked from my pump on Friday, and still feel the fatigue. I felt it with the Folfiri as well. It takes a few days to bounce back to having more energy, sometimes, 3-4 days after disconnect...I hate feeling so tired.
I didn't get the jaw effect, well...yet, I'm supposed to do just 3 or 4 treatments, but as soon as I cant take it anymore, I will stop, I told him I don't want that neuropathy, and the cold thing didn't get so bad yet either, I was able to drink and eat cold as soon as I was disconnected. But the effects accumulate, and get worse as they go along. I do have a prickly feel to my fingers, but that's it so far. I hope the fatigue ends for you soon, and you feel better!
Hugsss!
~Donna0 -
Burning EyesShayenne said:Guess what queenie!
I was just put on FOLFOX yesterday, since my new onc said my little tumors grew 1mm, and he wanted to nip it in the bud...so here I am on my first folfox regimen, pack will come off tomorrow (that's always the best part) and we'll see how I do after I'm unhooked...It hasn't been too, thanks to reading about Folfox here, I knew what most to expect, and am preparted with my gloves and socks. I mistakenly walked barefoot on my wooden floors though, not expecting to feel some kind of burning sensation, so wear socks always LOL...I am drinking and eating everything watm, the crystal light lemonade powder drinks taste good even warm! noe, my eyes burn alittle, don't know what to do for that but keep them closed, and then I won't see what I'm typing LOL..
Now he also gave me another option, something I haven't heard since I was diagnosed 14 months ago! he wants to break me from the chemo and do radio sphere, since it's contained in just my liver, and I was in shock! he wanted to do it ASAP, but I wanted to come here and ask about it first, make sure it be ok for me, so he only has me doing 4 chemo, since he said it's rare people actually make it to 12, and he doesn't want to leave me with alot of neuropathy, I don't really feel the tingling yet. My ribs hurt though, a slight pain when I yawn, or breathe in deep.
But I'm doing this with you, and never say never, I heard words yesterday that made even me feel better. I never thought I would ever have other options except for maintenance chemo for life..I'm still in shock, so you know there's always hope!!never lose that!
Hugsss!
~Donna
Donna the chemo is also in the your tear ducts, keep clear eyes handy. Any time you get a tear in your eye it will burn like crazy!0 -
Mark, starting my secondmark440 said:Hi Queenie!!
I just had my pump taken off yesterday.. first round same as you..day 1 my stomach hurt untill 7:00 p.m. couldnt eat or drink anything cold, I had diaareha later in the evening.day 2 I felt o.k. ate a good supper got a nap or two in..day 3 I had the pump taken out at 11:30a.m. I felt BAD all day..today I slept all day.. ask for zofran... it seems to be doing the trick for me with the nausea..
At one point I told my wife I feel so bad there is no way I can do 11 more.. but you have to do it!! you got to be strong!! its great to have the support from everyone here!
We are only a few days apart on our treatments... you hang with me and we will party like rock stars when we finish!!! DEAL??
Mark, starting my second treatment. Really tired this time but I had developed a Urinary Tract Infection UTI, and think that had me down some too. So started the second treatment not really up to par. So far so good, but this cold sensitivity is BAD. Can't imagine having it in a cold climate. Thankfully, our weather has been really hot here, 90 degrees today, so only thing cold I get is out of the fridge! Drinking cold stuff really feels strange in my mouth, so I leave it out to get to room temp. Also, my sleeping has been really disrupted. Dont know if it is the pump annoying me or just the chemicals making my body unhappy. Sleep has been difficult. Get the pump off tomorrow, and I will be ever so happy about that.
Think of you Mark as we walk through this process together. We don't have any choice.
PCQ0 -
Chemo and Sleepingporkchopqueen said:Mark, starting my second
Mark, starting my second treatment. Really tired this time but I had developed a Urinary Tract Infection UTI, and think that had me down some too. So started the second treatment not really up to par. So far so good, but this cold sensitivity is BAD. Can't imagine having it in a cold climate. Thankfully, our weather has been really hot here, 90 degrees today, so only thing cold I get is out of the fridge! Drinking cold stuff really feels strange in my mouth, so I leave it out to get to room temp. Also, my sleeping has been really disrupted. Dont know if it is the pump annoying me or just the chemicals making my body unhappy. Sleep has been difficult. Get the pump off tomorrow, and I will be ever so happy about that.
Think of you Mark as we walk through this process together. We don't have any choice.
PCQ
I always knew that my nights with the pump were Ambien nights. I figured I needed all the help I could get, and trying to sleep and not get tangled up was beyond me. My drs supported this.
Yes, I had oxaliplatin during a NY winter - couldn't button my buttons. Needed my husband to warm up the car before we went anywhere, and I couldn't drive myself because I always needed the car ready for me (warmed up.)
Even holding silverware hurt, so I started using the heavy duty plastic stuff or wooden chopsticks. I couldn't hold a china plate - even at room temp they feel cold. At least the cold sensitivity subsides eventually.
Good luck. I know how hard this is.0 -
What is the differencechristinecarl said:port
Like someone else explained, the pump plugs into the port, I had a power port. Had that removed 3 months after chemo stopped. I had some jaw pain when I would chew, it went away about half way through my chemo, noticed my nose would run more too. Keep your Onc informed of all side effects you have. I still have numb finger tips and feet, last chemo was 6-23-09.
What is the difference between a power port and a regular port?0 -
permanentzenmonk said:I had these
With them came sensitivity to cold. Permanent nerve damage in my feet and hands,and ALOT of nausea. I was hospitilized about 5 times for side effects related to chemo. I didnt realize how bad I really felt at the time. Now that I am off chemo I can see how bad I really felt. Keep good communication with your doctor and nurses about side effects and dont be afraid to go in and get checked out if your instincts are telling you thats what you should do.
I went back to work and it was the worst pain ever felt in my hands and feet.Doc put me on
Lyrica. It makes my nerves in hands & feet number so it is not as painful but I am losing dexterity. Would like to talk to others about this.0
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