newly diagnosed with fibrosarcoma

bigdawg32
bigdawg32 Member Posts: 3
edited March 2014 in Sarcoma #1
Hi everybody, I have been diagnosed with a form of sarcoma called fibrosarcoma located in my right palm (yes,I'm right-handed). I just finished my first week of 6 weeks of radiation therapy. I have a strong faith in God, so that helps me tremendously. I was just wondering if anyone had any tips or anything else I may need to know about my treatment and aftermath. Thanks and remember there is always hope!

Comments

  • bonan63
    bonan63 Member Posts: 2
    #2
    I had a tumor in my chest in
    I had a tumor in my chest in 2002. It was attached to the plura of my right lung. After removal it was dianosed as a fibrosarcoma. In June of 2009 it reoccured. Surgery removed 8 tumors, both small and medium around my lung. They were all encapsulated. I have had no followup treatment because the oncologists say there is nothing effective for the disease.

    I was wondering why they did radiation first on you. Did they give you reasons?
  • Chez
    Chez Member Posts: 24
    #3
    Fibrosarcoma
    Hi bigdawg32
    How are you going now? after going to 3 docors about a lump on my forearm and being told not to worry about it, I eventually found a doctor who listened to me and sent me for an ultrasound etc. Cutting a long story short, after 2 surgeries, I was diagnosed with a high grade myxofibrosarcoma. I have had 33 sessions of radiation and tresatment is now complete. My CT scan prior to radiation showed no spread. The tumour was under 5 cms. I am hoping it doesn't come back nor spread. I have to have CT scans 6 monthly from now on. I will feel better after the first CT scan is done and I see that it has not returned or spread. How are you going now??I am trying to get back into normal routine by going to the gym and I need to start losing weight. I put on quite a few kilos from comfort food and I want to get back to looking fit again.

    Chez
  • suzie sunshine
    suzie sunshine Member Posts: 15
    #4
    Chez said:

    Fibrosarcoma
    Hi bigdawg32
    How are you going now? after going to 3 docors about a lump on my forearm and being told not to worry about it, I eventually found a doctor who listened to me and sent me for an ultrasound etc. Cutting a long story short, after 2 surgeries, I was diagnosed with a high grade myxofibrosarcoma. I have had 33 sessions of radiation and tresatment is now complete. My CT scan prior to radiation showed no spread. The tumour was under 5 cms. I am hoping it doesn't come back nor spread. I have to have CT scans 6 monthly from now on. I will feel better after the first CT scan is done and I see that it has not returned or spread. How are you going now??I am trying to get back into normal routine by going to the gym and I need to start losing weight. I put on quite a few kilos from comfort food and I want to get back to looking fit again.

    Chez

    myxofibrosarcoma
    Hi Chez

    I had similar results when I discovered a pea-sized lump on my leg in the Spring of 2009. The Dr told me that it was a harmless lypoma. After two operations it was finally removed in January 2010 after being diagnosed as myxofibrosarcoma. I am currently undergoing radiation treatments. Twenty-four more treatments to go. I wish you well.

    suzie sunshine
  • nanonanu
    nanonanu Member Posts: 3
    #5
    suzie sunshine said:

    myxofibrosarcoma
    Hi Chez

    I had similar results when I discovered a pea-sized lump on my leg in the Spring of 2009. The Dr told me that it was a harmless lypoma. After two operations it was finally removed in January 2010 after being diagnosed as myxofibrosarcoma. I am currently undergoing radiation treatments. Twenty-four more treatments to go. I wish you well.

    suzie sunshine

    myxofibrosarcoma
    Hi Susie and all,

    Just wondering if anyone with a myxofibrosarcoma diagnosis ever had MFH also mentioned as a diagnosis. For me, one consulting service described the lesion as myxo but the pathologist at the institution I actually had the surgery at told me he couldn't find any smooth muscle actin in the lesion and so was just going with MFH which doesn't seem to mean anything.

Discussion Boards