Feeling Cold

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Comments

  • ratface
    ratface Member Posts: 1,337 Member
    Kent Cass said:

    Above Ground
    Well put, Sportsman. 3 years- excellent (I'm 16-months).

    Of note: this past summer was just about the most tolerant I've ever had, due to the chills in the summer heat. I have not experienced the chills I had back then, and it seems the chills became less noteworthy when I started gaining my weight back. Again- for all of head and neck, a Wikepedia reading of the Thyroid can be helpful.

    kcass

    I have them also
    I get the chills really bad also. Common consensus is that it's the thyroid. I'm nine months out. I don't think the thyroid works one day and then it dosen't. Mine checked out OK. I will have it checked again perhaps in six months if the chills do not diminish. Those of you with cold hands and feet are almost certainly suffering from neuropathy caused by the chemo whereas the thyroid is related to the radiation.

    Use blankets, snuggies, large dogs, spouses, or significant others to minimize the effect.
  • thegirlfriend
    thegirlfriend Member Posts: 142
    ratface said:

    I have them also
    I get the chills really bad also. Common consensus is that it's the thyroid. I'm nine months out. I don't think the thyroid works one day and then it dosen't. Mine checked out OK. I will have it checked again perhaps in six months if the chills do not diminish. Those of you with cold hands and feet are almost certainly suffering from neuropathy caused by the chemo whereas the thyroid is related to the radiation.

    Use blankets, snuggies, large dogs, spouses, or significant others to minimize the effect.

    cold
    my boyfriend always feels cold and has a space heater or two in the house almost always on.
    he lost 60 pounds though so Im thinking it may be not enough natural insulation.
    I know when i have lost weight, i tended to get colder easier.

    Kathy
  • friend of Bill
    friend of Bill Member Posts: 87
    cwcad said:

    subject to cold spells
    Being cold started as soon as the treatments began. I thought, at the time, that the treatments were the cause hence when treatments ended I would not be cold any longer. Wrong...almost three years out of treatments and I still am walking around the house with sweaters and sweatshirts on each day.

    At nite the sweats hit often and hard. It has slowed some but never the less it still happens. I am at a loss as to why but am glad that it is not as often as it once was.

    I often think I am cold because of the large weight loss I had. Having spent most of my adult life above the arctic circle, heat had never been a problem for me. Now I freeze in my new Texas home every day. I am at 195 pounds and I am not gaining weight any longer. Hands and feet are always cool and sweating.

    feeling cold
    Out 17 months and down 40+ pounds, still feel very cold in hands and feet but it varies. Forgot to bring my gloves to Music City Bowl on New Years Eve and did ok but some nights in a warm house or bed are horrible. Microwave products and heating pads didn't work for me but good ole thick white athletic socks to the knee and sometimes gloves help along with a rapper stocking hat. Won't win any fashion gold medal but generally provides relief.
  • Tephi
    Tephi Member Posts: 1
    ratface said:

    I have them also
    I get the chills really bad also. Common consensus is that it's the thyroid. I'm nine months out. I don't think the thyroid works one day and then it dosen't. Mine checked out OK. I will have it checked again perhaps in six months if the chills do not diminish. Those of you with cold hands and feet are almost certainly suffering from neuropathy caused by the chemo whereas the thyroid is related to the radiation.

    Use blankets, snuggies, large dogs, spouses, or significant others to minimize the effect.

    Oh what now! Another thing to deal with? - lol
    I am on day 6 of radiation and I am freezing! I have been through chemo, 2 surgeries and now radiation for breast cancer, cancer in my axilla nodes and internal mammary nodes. The radiation is extensive they say and they have not done such complicated radiation before -so I am told. Now I have these long cold spells where nothing I do, even draping myself round a radiator wrapped in blankets, then followed very suddenly by a burst of heat and sweats. It seems like there is nothing in between. I had had hot flashes and sweats all through the chemo, but this seems to be a bit more extream. Can't imagine what it is going to be like by treatment number 33.
  • Hondo
    Hondo Member Posts: 6,636 Member
    Tephi said:

    Oh what now! Another thing to deal with? - lol
    I am on day 6 of radiation and I am freezing! I have been through chemo, 2 surgeries and now radiation for breast cancer, cancer in my axilla nodes and internal mammary nodes. The radiation is extensive they say and they have not done such complicated radiation before -so I am told. Now I have these long cold spells where nothing I do, even draping myself round a radiator wrapped in blankets, then followed very suddenly by a burst of heat and sweats. It seems like there is nothing in between. I had had hot flashes and sweats all through the chemo, but this seems to be a bit more extream. Can't imagine what it is going to be like by treatment number 33.

    Hi Tephi

    Sorry to hear you are having the cold feeling problem so soon but it is all part of the new normal after treatment. I sleep with two or three blankets at night and my wife only has a sheet. I love weather right at 85 degrees. It will get better so just hang in there and welcome to the family here at CSN.

    All the best to you
    Hondo
  • HAWVET
    HAWVET Member Posts: 318
    Hondo said:

    Hi Tephi

    Sorry to hear you are having the cold feeling problem so soon but it is all part of the new normal after treatment. I sleep with two or three blankets at night and my wife only has a sheet. I love weather right at 85 degrees. It will get better so just hang in there and welcome to the family here at CSN.

    All the best to you
    Hondo

    The new normal
    Good words Hondo. It has been years after my cancer. Before cancer, I usually slept without a blanket and my wife was always cold. Now, we are the complete opposite. I need pajamas and blankets to keep warm. During the day, the wife likes the ceiling fan on and it is too cold for me.
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    HAWVET said:

    The new normal
    Good words Hondo. It has been years after my cancer. Before cancer, I usually slept without a blanket and my wife was always cold. Now, we are the complete opposite. I need pajamas and blankets to keep warm. During the day, the wife likes the ceiling fan on and it is too cold for me.

    gets some better
    I am now 15 years post diagnosed and still cold much more than before treatments. The two summers after my treatments I wore sweatshirts unless it was above 85-90. It is no were near that now but winters are hard.
    There is no doubt in my mind being cold is from all three, radiation, chemo and surgery.

    It does get better slowly over the first couple years post treatment.

    John
  • DrMary
    DrMary Member Posts: 531 Member
    fisrpotpe said:

    gets some better
    I am now 15 years post diagnosed and still cold much more than before treatments. The two summers after my treatments I wore sweatshirts unless it was above 85-90. It is no were near that now but winters are hard.
    There is no doubt in my mind being cold is from all three, radiation, chemo and surgery.

    It does get better slowly over the first couple years post treatment.

    John

    Bed Warmer
    No suggestions about what causes the chills, but I do recommend a heated mattress pad; ours had dual controls so I can keep my side of the bed cooler and Doug can still be warm enough. Much more comfy than piling on blankets. I get "cold flashes" now and then (I'm at that age) and so I can always sneak over to his side and warm up.
  • Rld
    Rld Member Posts: 1
    feeling clod
    Hi everyone,
    I am a caregiver to my significant other of 10 yrs. She has gone through four years of chemo and radiation.This is because she has metastatic breast cancer.I hope I said that right..Now she is very cold and tired...can anyone relate or help me deal with this for her..thanks and I hope you all are doing well
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    Rld said:

    feeling clod
    Hi everyone,
    I am a caregiver to my significant other of 10 yrs. She has gone through four years of chemo and radiation.This is because she has metastatic breast cancer.I hope I said that right..Now she is very cold and tired...can anyone relate or help me deal with this for her..thanks and I hope you all are doing well

    Hey Rld
    welcome to the forum. We try to wrestle with all kinds of situations here. The point of this thread is that lots of us are cold, and sometimes there's an obvious reason, but sometimes not. The causes are the same, whether our background is throat cancer, breast cancer, or just about anything in between.

    In cases where us guys have had radiation to the neck, low thyroid problems are very common, up to 60% of us eventually have thyroid failure. I did, before my radiation was even finished. That's something to think about in anyone, and I wonder if her doctors have thought to do that kind of lab in awhile. She is at risk, you know, just because of the extended health problems she's had.

    While I'm just free-wheeling with you, other metabolic problems would be pretty ordinary for her to sneak up with. Has she had a complete workup targeted to just the issues you mentioned, fatigue and feeling cold? If not, she really should. Are her blood sugars normal, is the rest of her lab ok, including blood counts especially?

    Sometimes things just get by the system, when your focus has been on cancer, and its treatement for so long. Don't know if any of this helps.

    Hope you have an easy solution.

    Pat
  • Mikemetz
    Mikemetz Member Posts: 465 Member

    Hey Rld
    welcome to the forum. We try to wrestle with all kinds of situations here. The point of this thread is that lots of us are cold, and sometimes there's an obvious reason, but sometimes not. The causes are the same, whether our background is throat cancer, breast cancer, or just about anything in between.

    In cases where us guys have had radiation to the neck, low thyroid problems are very common, up to 60% of us eventually have thyroid failure. I did, before my radiation was even finished. That's something to think about in anyone, and I wonder if her doctors have thought to do that kind of lab in awhile. She is at risk, you know, just because of the extended health problems she's had.

    While I'm just free-wheeling with you, other metabolic problems would be pretty ordinary for her to sneak up with. Has she had a complete workup targeted to just the issues you mentioned, fatigue and feeling cold? If not, she really should. Are her blood sugars normal, is the rest of her lab ok, including blood counts especially?

    Sometimes things just get by the system, when your focus has been on cancer, and its treatement for so long. Don't know if any of this helps.

    Hope you have an easy solution.

    Pat

    Cold b/c hypothyroid
    I finished my rads treatments in late spring, so it was just starting to warm up in Atlanta--and I was freezing cold all the time. A test showed that my thyroid was severely damaged from the treatments and was permanently low-functioning. I tried some herbal supplements, but it took a few adjustments of synthroid dosages to get it back into the normal range. I still get cold sometimes when I think I shouldn't, but for the most part, the meds have worked to keep me comfortably warm.
  • IAmStrong
    IAmStrong Member Posts: 58
    Mikemetz said:

    Cold b/c hypothyroid
    I finished my rads treatments in late spring, so it was just starting to warm up in Atlanta--and I was freezing cold all the time. A test showed that my thyroid was severely damaged from the treatments and was permanently low-functioning. I tried some herbal supplements, but it took a few adjustments of synthroid dosages to get it back into the normal range. I still get cold sometimes when I think I shouldn't, but for the most part, the meds have worked to keep me comfortably warm.

    Singing My Song
    I'm so glad to see this topic and know I am Not goofy! Everyone around me knows I have "issues" with being cold. Frankly I believe they view me as a psych case. I am in bed with my Cuddle Duds on. I wear Layers to work...my co-workers laugh at me. I wear three layers on my legs, 3 pairs of socks, 3 shirts:) I have fur lined ankle black slip on sport shoes, I wear those if I am particularly cold. Then I'll get quite warm. Mostly cold though. Today, I am wearing gloves, my full hooded wool coat, Cuddle Duds 3 shirts.....Pathetic ehh? Anemia? I don't know. I only know, I am COLD even when it is 50 like today~! A heat wave here. I even wear hoodies and gloves in the house at times.

    That was an interesting remark re the carotid being close to the surface thus contributing to being cold.

    I Especially like the remark of someone moving you to the North Pole and not telling you....THAT is what happened!!! Finally the truth!
  • kimg1
    kimg1 Member Posts: 2
    IAmStrong said:

    Singing My Song
    I'm so glad to see this topic and know I am Not goofy! Everyone around me knows I have "issues" with being cold. Frankly I believe they view me as a psych case. I am in bed with my Cuddle Duds on. I wear Layers to work...my co-workers laugh at me. I wear three layers on my legs, 3 pairs of socks, 3 shirts:) I have fur lined ankle black slip on sport shoes, I wear those if I am particularly cold. Then I'll get quite warm. Mostly cold though. Today, I am wearing gloves, my full hooded wool coat, Cuddle Duds 3 shirts.....Pathetic ehh? Anemia? I don't know. I only know, I am COLD even when it is 50 like today~! A heat wave here. I even wear hoodies and gloves in the house at times.

    That was an interesting remark re the carotid being close to the surface thus contributing to being cold.

    I Especially like the remark of someone moving you to the North Pole and not telling you....THAT is what happened!!! Finally the truth!

    Freezing
    Thanks for your posts. I'm glad to know that this is "normal."

    It is seven months after surgery and I'm five months out of radiation treatment for breast cancer (no chemo). About halfway through radiation I started getting ridiculously cold; it felt as if ice were running through my veins and organs - especially my core. A few weeks post treatment the cold subsided, but it came back after I went on Tamoxifen. Now with the wether being in the 70s and 80s, I bring sweaters and warm socks everywhere. Sometimes my body temp drops to 97 - not that low, but it sure feels cold.

    Is anyone else taking Tamoxifen and having cold flashes? If so, did you have radiation treatment, too?

    How many people need to experience cold flashes before it is officially listed as a symptom of treatment?
  • phrannie51
    phrannie51 Member Posts: 4,716
    kimg1 said:

    Freezing
    Thanks for your posts. I'm glad to know that this is "normal."

    It is seven months after surgery and I'm five months out of radiation treatment for breast cancer (no chemo). About halfway through radiation I started getting ridiculously cold; it felt as if ice were running through my veins and organs - especially my core. A few weeks post treatment the cold subsided, but it came back after I went on Tamoxifen. Now with the wether being in the 70s and 80s, I bring sweaters and warm socks everywhere. Sometimes my body temp drops to 97 - not that low, but it sure feels cold.

    Is anyone else taking Tamoxifen and having cold flashes? If so, did you have radiation treatment, too?

    How many people need to experience cold flashes before it is officially listed as a symptom of treatment?

    I"m glad someone bumped this one up..........
    I'm cold ALL the time. Ok, so for a while it WAS cold here, it is Montana in the springtime, afterall...but I was wearing my deep winter clothes (down coat to my ankles, and snow boots) when it was rainy and 40........yesterday it was 76, no wind, and I had on two long sleeved shirts on, long pants and wool socks, while hubby paraded around in short sleeves and shorts....

    I'm still turning on my mattress pad, too......

    I figure it either chemo or rads....hard to tell....I've always been skinny, but never this cold...

    p
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Not Normal
    Not really normal, it's just not uncommon...usually related I believe to possible thyroid damage from the rads.

    I'm sure others will chime in, if the posts above don't address your concerns.

    Best,
    John
  • BrianKrashpad
    BrianKrashpad Member Posts: 188
    Skiffin16 said:

    Not Normal
    Not really normal, it's just not uncommon...usually related I believe to possible thyroid damage from the rads.

    I'm sure others will chime in, if the posts above don't address your concerns.

    Best,
    John

    in addition
    to possible thyroid symptoms, in a lot of cases we're more than bit thinner than we used to be after treatment-- I've got about 50 pounds less insulation than I once did.

    Although I'll take that trade-off.

    ;)
  • Jackfromjersey
    Jackfromjersey Member Posts: 1
    edited January 2021 #38
    Always COLD post Chemo

    For those of you out there on chemo or have taken chemo and you don't seem to be able to get comfortably warm.  I know this to be common.  My son is a cancer survivor, took several rounds of chemo, stem cell transplant, and is cancer free for about 5 years now.  He graduated college, is working, living life.  You wouldn't even know he once had cancer.  BUT, he complains of being cold when it's not cold in the house or outside.  We discussed it with his oncology team and bone marrow transplant team.  Here's the conclusion I came up with after years of health checks - it's just something we're going to have to put up with from now on.  I don't expect it to change.  It hasn't in 5 years and I don't see it changing in the next 5.  His body seems to have permanent trouble regulating temperature due to all of the infusions.  If you are experiencing a similar situation, it's probably permanent.  Move to a warmer climate if possible. 

  • Mikemetz
    Mikemetz Member Posts: 465 Member
    You can run, but you can't hide

    The cold is from peripheral neuropathy.  The chemo kills the tiny nerves that send signals to the brain for more warm blood to your hands and feet.  Some of the nerves regenerate, some don't.  I live in Atlanta and wore winter gloves in airconditioned rooms during the summer after my treatments.  I still wear gloves outdoors when the temps get below 55, 12 years  later.  So, if you move to a warmer climate that blasts A/C, like Florida, you'll still probably be cold.  My wife gave me some small handwarmers for Christmas, and I have them with me all the time now.

  • MST
    MST Member Posts: 21 Member

    I'm just the opposite. I go through periods where I have the sweats really bad no matter how cold it is in the house. Outside in the winter I am ok but summer is rough. I have no remedy for it though walking around seems to help.