Starving all the time since liver resection!

SueRelays
SueRelays Member Posts: 485
edited March 2014 in Colorectal Cancer #1
Ok this is probably a weird one.....haven't had a chance to ask my surgeon yet, but who better to answer then those who have been through it. I had 1/2 of my liver and gall bladder removed 5 weeks ago due to an anal cancer that spread there. Since then, I am STARVING....like I haven't eaten in days several times a day. My stomach will grumble and go all topsy turvy like it hasn't had any food in days every few hours. I wake up in the middle of the night completely famished! I'm going to gain 200 pounds if I keep eating every 2 hours. Any explanation???

THANK YOU!!!
«1

Comments

  • PamPam2
    PamPam2 Member Posts: 370 Member
    #2
    meds?
    Are you by any chance getting any type of steriods with your meds? They will make you hungry like that.
    Pam
  • SueRelays
    SueRelays Member Posts: 485
    #3
    PamPam2 said:

    meds?
    Are you by any chance getting any type of steriods with your meds? They will make you hungry like that.
    Pam

    No I was taking
    No I was taking Hydromorphone, but very small doses....and I haven't been taking it much at all lately and still experiencing the hunger pangs :(
  • maglets
    maglets Member Posts: 2,576 Member
    #4
    SueRelays said:

    No I was taking
    No I was taking Hydromorphone, but very small doses....and I haven't been taking it much at all lately and still experiencing the hunger pangs :(

    Sue
    Sue are making sure you get lots of protein every day? when they chop out that much of you it takes lots of healing....so you do need a lot of protein to re-build tissue and start the healing. I drank shakes and proteiny things after my re-sections....also are you drinking lots? sometimes after surgery I find I get thirst and hunger confused....in fact I really think I can't tell when I am thirsty after various chemoes....

    ps. I have gained a fair bit of weight and I think you will find other people here have gained weight too which seems surprising cuz you'd think we would be thinner :):)

    mags
  • Jaylo969
    Jaylo969 Member Posts: 824 Member
    #5
    maglets said:

    Sue
    Sue are making sure you get lots of protein every day? when they chop out that much of you it takes lots of healing....so you do need a lot of protein to re-build tissue and start the healing. I drank shakes and proteiny things after my re-sections....also are you drinking lots? sometimes after surgery I find I get thirst and hunger confused....in fact I really think I can't tell when I am thirsty after various chemoes....

    ps. I have gained a fair bit of weight and I think you will find other people here have gained weight too which seems surprising cuz you'd think we would be thinner :):)

    mags

    I too am gaining
    Darn it! No in between meals snacking ...just 3 squares a day....and I am gaining.

    -Pat
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #6
    Just Asking
    Are you eating liver?
  • maglets
    maglets Member Posts: 2,576 Member
    #7
    PhillieG said:

    Just Asking
    Are you eating liver?

    PHILLY
    I am trying Philly but I am just not sure that's funny....

    well to tell truth since re-sections I have NOT eaten said above L word

    mags
  • banma
    banma Member Posts: 9
    #8
    Same thing happened to me
    after liver resection. I ate lots of small meals all the time, including omelets at 2 a.m., and gained little or nothing. Just my experience, but I figured everything was trying to heal. Besides, I lost about 10 lbs during the surgery so I was trying to get it back. I don't think I ever made it back to pre-surgery weight.
  • msccolon
    msccolon Member Posts: 1,917 Member
    #9
    hunger when healing
    When I was healing I had to eat every couple of hours or so to meet my body's needs. My tummy had that awful feed me or you will collapse feeling if I didn't eat every 2 hours. I even had to leave a few bottles of ensure by my bed so I didn't have to get up and go into the kitchen when the hunger woke me up. Once the healing slowed down, so did the hunger. I never gained weight during this time, i was basically keeping from losing weight and giving my body what it needed. Sounds to me like you are needing to do the same.
    mary
  • Nana b
    Nana b Member Posts: 3,030 Member
    #10
    msccolon said:

    hunger when healing
    When I was healing I had to eat every couple of hours or so to meet my body's needs. My tummy had that awful feed me or you will collapse feeling if I didn't eat every 2 hours. I even had to leave a few bottles of ensure by my bed so I didn't have to get up and go into the kitchen when the hunger woke me up. Once the healing slowed down, so did the hunger. I never gained weight during this time, i was basically keeping from losing weight and giving my body what it needed. Sounds to me like you are needing to do the same.
    mary

    Yes, me too....
    Your body is retaining a lot of fluid right now wish will make you feel bloated. You need to drink plenty of water. I also had to eat small meals but remember that your partial liver has to help break this stuff down so try and be gentle to it. Don't eat a lot of food that takes a long time to digest.
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #11
    Nana b said:

    Yes, me too....
    Your body is retaining a lot of fluid right now wish will make you feel bloated. You need to drink plenty of water. I also had to eat small meals but remember that your partial liver has to help break this stuff down so try and be gentle to it. Don't eat a lot of food that takes a long time to digest.

    ask your Onc if there is anything in your concoctions....
    that may contain "megace"....This will make you ravenously hungry. It may somehow be associated with the meds your on to help sustain weight. We have an elder in our church that has bone cancer and megace keeps him eating and maintaining body weight so he doesn't get weak and weary. He is much better right now as well.....
  • SueRelays
    SueRelays Member Posts: 485
    #12
    Buzzard said:

    ask your Onc if there is anything in your concoctions....
    that may contain "megace"....This will make you ravenously hungry. It may somehow be associated with the meds your on to help sustain weight. We have an elder in our church that has bone cancer and megace keeps him eating and maintaining body weight so he doesn't get weak and weary. He is much better right now as well.....

    Oh my gosh...THANK YOU all
    Oh my gosh...THANK YOU all so much!!! I just got back in town. Was actually away from a computer for a few days :).....so nice to come back and see all these suggestions!!!
    Nice to hear, that it seems to be normal. I was going to ask my surgeon, but figured the only way he would know is if someone mentioned it to him....and you all know first hand.
    I thought maybe also, it was from drinking too much fruit. I've been juicing alot of fruit. It tastes so good, but think the acid is too much??? Good to know about the protein. I think that is exactly what I was lacking.....I know it's not from eating liver! Smart@#* :)
    Also I'll check out the magace......Thanks Buzz too!!!!
  • ittapp
    ittapp Member Posts: 383 Member
    #13
    I do the same thing and have
    I do the same thing and have not had a surgical removal of the liver. It's really weird, it's like I have to have something to eat or it is almost painful. It wakes me up in the middle of the nigh.Patti
  • Unknown
    Unknown
    #14
    ittapp said:

    I do the same thing and have
    I do the same thing and have not had a surgical removal of the liver. It's really weird, it's like I have to have something to eat or it is almost painful. It wakes me up in the middle of the nigh.Patti

    This comment has been removed by the Moderator
  • zenmonk
    zenmonk Member Posts: 198
    #15
    same thing
    I experienced the same thing after my liver resection. It gradually has subsided but at the time I thought that I would gain about 400lbs.
  • ann2008
    ann2008 Member Posts: 118
    #16
    hunger!!
    After finishing chemo and having neuropathy in my hands and feet, I also think it affected my stomach nerves. I did not have that feeling of fullness for a long time and I think my stomach was also numb on the inside. Does that sound crazy? I would eat because I was so hungry but never feel full until I was to the point that I was almost sick. I also was on Lyrica for the neuropathy. I gained 20 lbs fast so I had him change the Lyrica to Neurontin. I could tell it helps and finally got my eating under control. But not until I gained another 10 lbs. I have started doing water aerobics and although I am exhausted after a class, I feel alot better and it gives me something to look forward to. Sorry so long. Ann
  • jams67
    jams67 Member Posts: 925 Member
    #17
    hunger
    I stay hungry all of the time, but after 4 1/2 years, I don't think my liver resection can be blamed. I just try to keep healthy snacks available and watch portion control, hard for me. I have gained back the 20 lbs. that I lost before colon cancer so it is ok, but I don't want to gain anymore.
    Jo Ann
  • bbbelinda1
    bbbelinda1 Member Posts: 2
    edited August 2019 #18
    my experience

    I had two-thirds of my liver plus my gallbladder removed about six weeks ago. A couple days after the surgery, while still in hospital, I began experiencing the starving hunger that some of you have described. When I got out of hospital, I had to eat every two hours, including overnight, for the first 3+ weeks.

    I also experienced terrible acid in the beginning -- I would describe it like "battery acid" -- if I didn't eat on time. I believe the acid was a side effect of having my gallbladder removed because my husband experienced the same thing when he had his gallbladder removed a couple of years ago.

    My guess is that while the liver is regenerating (it apparently regenerates in about 4 to 6 weeks), it demands a lot of food. In fact I joked that almost everything I ate was immediately grabbed by my liver (located under the right side breast) before the food could make it down into my tummy because my belly remained flat for the first month or so. Before the surgery I always got a belly after I ate.

    I believe one of the best things to eat to satisfy the hunger for a regenerating liver is protein in the form of low-fat meat. I noticed I felt much better when I had meat with every meal. Chicken, turkey and fish were the easiest to digest, but my liver definitely wanted red meat. I normally don't eat red meat, but I have temporarily added it into my diet while I recover from the surgery.

    Over time I was able to get up less times in the night to eat. Around four weeks after my surgery, I was able to sleep through the night for the first time without being awoken by the starving hunger feeling and forced to get up to eat something.

    Since then, during the day, I try and eat small, low-fat meals and often. I can happily report that I have not gained an ounce from my pre-surgery weight despite all of the food I ate during the "starving phase".

    I want to thank SueRelays and everyone who posted and contributed to this discussion because it was the only thing I could find on the Internet regarding the "starving all the time" issue after my liver surgery. It gave me great comfort to know others had experienced the same starving feeling too. I am adding my own experience to this discussion in the hope it will also help others.

    This week I received some wonderful news. I learned that my tumour, considered rare, was benign. I will continue to be monitored for the rest of my life by Toronto's Princess Margaret Hospital, the top cancer hospital in Canada. Apparently these rare liver tumours can turn to cancer, which is why it was removed.

    To all those reading this post, I am sending you positive thoughts for a quick recovery and excellent health going forward.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #19
    bbbelinda1 said:

    my experience

    I had two-thirds of my liver plus my gallbladder removed about six weeks ago. A couple days after the surgery, while still in hospital, I began experiencing the starving hunger that some of you have described. When I got out of hospital, I had to eat every two hours, including overnight, for the first 3+ weeks.

    I also experienced terrible acid in the beginning -- I would describe it like "battery acid" -- if I didn't eat on time. I believe the acid was a side effect of having my gallbladder removed because my husband experienced the same thing when he had his gallbladder removed a couple of years ago.

    My guess is that while the liver is regenerating (it apparently regenerates in about 4 to 6 weeks), it demands a lot of food. In fact I joked that almost everything I ate was immediately grabbed by my liver (located under the right side breast) before the food could make it down into my tummy because my belly remained flat for the first month or so. Before the surgery I always got a belly after I ate.

    I believe one of the best things to eat to satisfy the hunger for a regenerating liver is protein in the form of low-fat meat. I noticed I felt much better when I had meat with every meal. Chicken, turkey and fish were the easiest to digest, but my liver definitely wanted red meat. I normally don't eat red meat, but I have temporarily added it into my diet while I recover from the surgery.

    Over time I was able to get up less times in the night to eat. Around four weeks after my surgery, I was able to sleep through the night for the first time without being awoken by the starving hunger feeling and forced to get up to eat something.

    Since then, during the day, I try and eat small, low-fat meals and often. I can happily report that I have not gained an ounce from my pre-surgery weight despite all of the food I ate during the "starving phase".

    I want to thank SueRelays and everyone who posted and contributed to this discussion because it was the only thing I could find on the Internet regarding the "starving all the time" issue after my liver surgery. It gave me great comfort to know others had experienced the same starving feeling too. I am adding my own experience to this discussion in the hope it will also help others.

    This week I received some wonderful news. I learned that my tumour, considered rare, was benign. I will continue to be monitored for the rest of my life by Toronto's Princess Margaret Hospital, the top cancer hospital in Canada. Apparently these rare liver tumours can turn to cancer, which is why it was removed.

    To all those reading this post, I am sending you positive thoughts for a quick recovery and excellent health going forward.

    Hello and welcome to the forum

    I am glad this old thread gave you some comfort. It is wondreful that we can turn to people who have actually expereinced what we are experiencing - even if most of them have passed beyond the grave, which is the sad case in this thread. Their knowledge and wisdom live on.   

    And also, how wonderful that your tumour is begnin.  It sounds like you are a healthy eater, and that, along with exercise is a great way to keep yourself going for years. 

    I wish you well as you recover, and may you never have to search out a Cancer forum ever again. 

    Tru

  • bbbelinda1
    bbbelinda1 Member Posts: 2
    #20
    Trubrit said:

    Hello and welcome to the forum

    I am glad this old thread gave you some comfort. It is wondreful that we can turn to people who have actually expereinced what we are experiencing - even if most of them have passed beyond the grave, which is the sad case in this thread. Their knowledge and wisdom live on.   

    And also, how wonderful that your tumour is begnin.  It sounds like you are a healthy eater, and that, along with exercise is a great way to keep yourself going for years. 

    I wish you well as you recover, and may you never have to search out a Cancer forum ever again. 

    Tru

    Thank you

    Thank you so much, Tru. I think this website is fantastic and must help a lot of people. It is a wonderful comfort for them.

    I guess what you say is true -- that some people in this thread may no longer be with us, but their words live on and help others.

    As you suspect, I live a very healthy lifestyle. I am so grateful for the excellent treatment and care I have received from our medical angels here in Toronto. Each day I think of how blessed I am.

    Tru: I hope you will be well and have a long, healthy life ahead.

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    #21
    Trubrit said:

    Hello and welcome to the forum

    I am glad this old thread gave you some comfort. It is wondreful that we can turn to people who have actually expereinced what we are experiencing - even if most of them have passed beyond the grave, which is the sad case in this thread. Their knowledge and wisdom live on.   

    And also, how wonderful that your tumour is begnin.  It sounds like you are a healthy eater, and that, along with exercise is a great way to keep yourself going for years. 

    I wish you well as you recover, and may you never have to search out a Cancer forum ever again. 

    Tru

    Tru, have you heard anything

    Tru, have you heard anything from Maglets since her last post? Just wondering..................................Dave

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