Stage IV Hope

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Comments

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #22
    Wonderful
    Thanks so much for sharing your good news.

    You are so right about the information, sharing and caring that comes from all the folks on this board. I am sure those things have made a significant difference in many lives.

    Best wishes for many more NED days, months and years to come.

    Marie
  • karafranny
    karafranny Member Posts: 14
    #23
    Der....................
    Hi Jen,

    Im stage 4 too. I dont know what you mean by CRS & HIPEC or even NED?? Could someone explain that too me. Sorry I geuss I have chemo brain!!!!
    Was diagnosed a year ago. This is still a little new to me. Im restarting my chemo tx this tuesday cpt-11. was on folfox until Dec then CT scan revealed it wasnt working anymore. Have 3 lung lesions that have grown in size. Also have 1 in my liver but thats remained the same.I feel great cause I havent has chemo in 5wks. Im going to try bentyl for side effects hope it works was in alot of pain from 2 cycles.
  • sheri22
    sheri22 Member Posts: 273
    #24
    You do give hope
    That was a great post which I am happy for you that you are NED, could you tell me what HIPEC AND CRS IS , I just found out Thurs my CT scan looks like it grew so I am looking at all options to tell my DR about,

    Thanks and congrats on NED

    Sheri22
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #25
    karafranny said:

    Der....................
    Hi Jen,

    Im stage 4 too. I dont know what you mean by CRS & HIPEC or even NED?? Could someone explain that too me. Sorry I geuss I have chemo brain!!!!
    Was diagnosed a year ago. This is still a little new to me. Im restarting my chemo tx this tuesday cpt-11. was on folfox until Dec then CT scan revealed it wasnt working anymore. Have 3 lung lesions that have grown in size. Also have 1 in my liver but thats remained the same.I feel great cause I havent has chemo in 5wks. Im going to try bentyl for side effects hope it works was in alot of pain from 2 cycles.

    Kara
    NED means "no evidence of disease" and is also known as "remission."

    CRS is cytoreductive surgery. The surgery to remove as much of the cancer in the abdomen as possible, reducing the "bulk" of the cancer is called "debulking" or "cytoreduction" surgery

    From http://www.lajollasurgical.com/html/oncology-hipec.html

    HIPEC is "Hyperthermic Intraperitoneal Chemotherapy which is a procedure performed during the operation while the patient is still in the operating room. We circulate heated chemotherapy directly into the abdominal cavity, where it can penetrate and kill diseased tissue directly.

    During the HIPEC treatment, a surgeon first removes as much visible cancer as possible in a procedure known as cyto-reduction. Then, the surgeon circulates heated chemotherapy throughout the abdomen to kill the remaining cancer cells that are too small to be manually removed. The heated chemotherapy is circulated for 90 to 120 minutes by a specialized FDA approved machine. When this step is complete, the chemotherapy is removed, the abdomen is flushed, and the circulating tubes are removed."


    I hope that you tolerate the chemo well. I hope you do well with it.

    All the best,
    Amy
  • RickMurtagh
    RickMurtagh Member Posts: 587 Member
    #26
    PTL for NED!
    Live long and
    PTL for NED!

    Live long and prosper!
  • jillpls
    jillpls Member Posts: 238
    #27
    chicoturner said:

    HOPE
    Hi Jen, thanks for your encouraging words. I have an onc here in our small town and appreciate him for many reasons, one being he has told me he has done all he can do and that he knows what doc at UCSF he wants to see me now. As my son said, I'm moving on up to the big leagues! It is scary, yet I am excited to see what is ahead! I have never been NED but have been in a long holding pattern. Time to move on! You are an inspiration. Thank you. Jean

    UCSF is where I go
    Yes, they are encouraging and very helpful but you still have to part of the team. The are human and mistakes can be made so stay on top of your treatment. They are a wonderful group of caring dr and nurses. I'm glad you get to join the big league. God bless Jill

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