wrong about ct results

2»

Comments

  • sfmarie
    sfmarie Member Posts: 602
    Here's my story
    So, my sister was dx with stage IV cc in 03/09 with mets to liver, ovaries and peritoneum. She has been on chemo since April, and originally the surgeon that did her emergency surgery gave her very, very short time to live. She sought a second opinion and was being treated at a TOP cancer center. They had hopes she would have a liver resection in August. Well, pre-op showed the cancer spread. She went back on chemo and the TOP onc. said, he could do nothing more for her. That did not stop her. She sought another opinion, back on chemo and fast forward to today. Her tumors have all shrunk and if all goes well, she will have liver resection in a few weeks. Do not take no for an answer. Do not give up! Seek someone that is willing to try something else. Noone knows how much time you have left, and if they think they do, then run.
    Keep the HOPE alive. You are in my prayers.
  • Bear23
    Bear23 Member Posts: 84
    sfmarie said:

    Here's my story
    So, my sister was dx with stage IV cc in 03/09 with mets to liver, ovaries and peritoneum. She has been on chemo since April, and originally the surgeon that did her emergency surgery gave her very, very short time to live. She sought a second opinion and was being treated at a TOP cancer center. They had hopes she would have a liver resection in August. Well, pre-op showed the cancer spread. She went back on chemo and the TOP onc. said, he could do nothing more for her. That did not stop her. She sought another opinion, back on chemo and fast forward to today. Her tumors have all shrunk and if all goes well, she will have liver resection in a few weeks. Do not take no for an answer. Do not give up! Seek someone that is willing to try something else. Noone knows how much time you have left, and if they think they do, then run.
    Keep the HOPE alive. You are in my prayers.

    I am with the others
    I do agree with the others about getting a second opinion. If not, you will always be asking "what if". But you are the only one who can make those decisions. I am so sorry for this news and it seems to me that there should be some trials to look into. I will keep you in my prayers. Have a great vacation! We all need a break once in a while.

    Bear
  • lcarper2
    lcarper2 Member Posts: 635
    Bear23 said:

    I am with the others
    I do agree with the others about getting a second opinion. If not, you will always be asking "what if". But you are the only one who can make those decisions. I am so sorry for this news and it seems to me that there should be some trials to look into. I will keep you in my prayers. Have a great vacation! We all need a break once in a while.

    Bear

    healing
    God I pray for the healing of Pat. God we know you are the one. I ask that your hands guide the hands and minds of the doctors that will be treating him and show him your divine power in healing his condition this I claim in the name of your son Jesus amen...
  • kapper48
    kapper48 Member Posts: 85
    lcarper2 said:

    healing
    God I pray for the healing of Pat. God we know you are the one. I ask that your hands guide the hands and minds of the doctors that will be treating him and show him your divine power in healing his condition this I claim in the name of your son Jesus amen...

    Thank You Icarper2, I really
    Thank You Icarper2, I really appreciate you praying for me like this, it really truely means alot to me. And I want everyone to know that I will get my second opinion and even a 3rd or 4th if need be. You are all so kind and I am at a loss for words right now. Craig you inspired me with your comments and I will think of them while I am going after this cancer. I would like to meet you in person some day, I think we would have alot in common.
    Actually I would like to meet everyone on this board someday, We all have alot in common
    Pat
  • lesvanb
    lesvanb Member Posts: 905
    Oh Pat, and Carrie
    I've just read this and it just is awful about how you found all this out. I agree with folks to go look for someone else and try something else. You're not alone -ever -no matter what.

    lots of love, Leslie
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Oh
    Oh, my goodness. I can imagine how shocked and upset you must be after hearing this news. Especially after thinking things were pretty good, relatively speaking. I'm so sorry! I do agree with everyone who has said that you should check into other medical facilities and other doctors.

    Please let us know what goes on, and know that I will be praying for you and your family.

    *hugs*
    Gail
  • jillpls
    jillpls Member Posts: 238
    no one knows but God when your time is up
    I get so mad when drs think they can play God. don't walk, but run to the second opinion and third if need be. You have so much to live for so get living!!! Enjoy your vacation and know you will fight this. Hold your head high and get mad just like Craig said!!!!
    Go Fight Win!!!Jill
  • kimby
    kimby Member Posts: 797
    What?
    This isn't a joke? I just can't believe it...well, yes I can. You need a second opinion. And a third, fourth or fifth until you get the right answers.

    The first thing you need to know is if the cancer has really spread. Did your onc tell you how she came to this conclusion? Medically documentable evidence instead of hunches? Geesh

    Start your search now for that second opinion while we have you all fired up. That gives you something to keep your mind occupied until your most fabulous family vacation. A cancer vacation. Make a rule to laugh every.single.day and NO talking about cancer.

    Geotina is right about u of Michigan thinking outside the box. I've had radiation to the liver and the celiac lymph nodes. There are very few places that even attempt this. I wasn't a candidate for sir spheres, cyber knife or anything else. I was out of treatment options so my radiation onc and my gastro onc made something up. These two men saved my life. I'm not being dramatic - it's true. 2009 I was totally on 'Bill & Ted's Excellent Adventure.' When it moved on to 'Bogus Journey' I opted out. LOL

    Good luck with those new opinions and finding a new 'home'. Enjoy every minute of that vacation. You deserve it!

    Hugs and Prayers,

    Kimby
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    kapper48 said:

    Thank You Icarper2, I really
    Thank You Icarper2, I really appreciate you praying for me like this, it really truely means alot to me. And I want everyone to know that I will get my second opinion and even a 3rd or 4th if need be. You are all so kind and I am at a loss for words right now. Craig you inspired me with your comments and I will think of them while I am going after this cancer. I would like to meet you in person some day, I think we would have alot in common.
    Actually I would like to meet everyone on this board someday, We all have alot in common
    Pat

    Consider It DONE :)
    Hey Pat

    I'm glad that I was able to help you :)

    Your words touched me this morning. I thought about you last night and how you were feeling. I re-read how your "stick of dynamite" was now lit. I was like "Yeah, go get 'em, Pat, full steam ahead and damn the torpedoes, we're ALL IN for this one. You had me inspired!

    I would love to meet you as well. There's something about you that is so genuine and sincere. I thought to myself if Pat is like this "On the Board", he must be really a likeable guy in person! We probably would have alot in common. We could show each other our "battle scars", LOL :)

    I'm normally EZ going and such, but yesterday, I put my war paint back on and I was ready to come where you are and kick the $HIT out of your Cancer myself. You ever need a "hand" in the battle, I'll stand beside you and fight right along with you. Us Texas boys can be mean and stubborn when the battle cry goes out.

    I'm not a 1/2 way guy - "In for a penny, in for a pound."

    Thanks for letting me be your friend, Pat. ALL OF US are surrounding you with love and support. We're not gonna' lose you, no way, no how!

    As us Texans did at the Alamo, you and I have "Drawn" the line in the sand and Cancer has crossed that line - and now "it's on" and IT won't know what hit it by the time we are done with it, I can promise you that.

    Man, I'm ready to battle with you right now!!!

    Big Tex
    -Craig
  • thready
    thready Member Posts: 474
    Sundanceh said:

    Consider It DONE :)
    Hey Pat

    I'm glad that I was able to help you :)

    Your words touched me this morning. I thought about you last night and how you were feeling. I re-read how your "stick of dynamite" was now lit. I was like "Yeah, go get 'em, Pat, full steam ahead and damn the torpedoes, we're ALL IN for this one. You had me inspired!

    I would love to meet you as well. There's something about you that is so genuine and sincere. I thought to myself if Pat is like this "On the Board", he must be really a likeable guy in person! We probably would have alot in common. We could show each other our "battle scars", LOL :)

    I'm normally EZ going and such, but yesterday, I put my war paint back on and I was ready to come where you are and kick the $HIT out of your Cancer myself. You ever need a "hand" in the battle, I'll stand beside you and fight right along with you. Us Texas boys can be mean and stubborn when the battle cry goes out.

    I'm not a 1/2 way guy - "In for a penny, in for a pound."

    Thanks for letting me be your friend, Pat. ALL OF US are surrounding you with love and support. We're not gonna' lose you, no way, no how!

    As us Texans did at the Alamo, you and I have "Drawn" the line in the sand and Cancer has crossed that line - and now "it's on" and IT won't know what hit it by the time we are done with it, I can promise you that.

    Man, I'm ready to battle with you right now!!!

    Big Tex
    -Craig

    Line in the Sand
    Pat I have read so many comments on this board about people who have been told to give up, but they did not and found others who would give them threatments and they have not only survived but they have conquered. This is where you are now and where you need to go now is for the victory!

    I wish we could all show up physically at your onc's office and we could all tell the Dr what we know to be true! I think the entire office will turn and run! If your dr wants to quit they should at least help you find someone who won't!

    I know one thing that has been a big help is when I am in question about things or I get down I think about all the miricles that have happened since September 3rd-my diagnosis date. I know I will see more miricles, and I know you will too!

    Please Pat do not quit. Holding you and your family in my prayers
    Jan
  • lcarper2
    lcarper2 Member Posts: 635
    kapper48 said:

    Thank You Icarper2, I really
    Thank You Icarper2, I really appreciate you praying for me like this, it really truely means alot to me. And I want everyone to know that I will get my second opinion and even a 3rd or 4th if need be. You are all so kind and I am at a loss for words right now. Craig you inspired me with your comments and I will think of them while I am going after this cancer. I would like to meet you in person some day, I think we would have alot in common.
    Actually I would like to meet everyone on this board someday, We all have alot in common
    Pat

    Pat
    Thanks for your reply I am a believer in the power of prayer I had my tumor inside me for 3 yrs before I found a doctor that could hear me. I know when they told my husband they had never seen one so close to bursting that hadn't I knew God had wraped his hand around it and I knew I had already beaten satan at the game. Think positive and get another opinion.

    hugs Louann
  • luv3jay
    luv3jay Member Posts: 533
    Oh MY!! Definitely start by
    Oh MY!! Definitely start by getting a second opinion! We will be thinking of you every step of the way.

    -Sheri
  • lisa42
    lisa42 Member Posts: 3,625
    I second "moving on"
    Pat,

    I agree with what a few others have said, that it's probably time for you to move onto a new oncologist. Although it wasn't the easiest thing to do, I changed oncologists a year and a half after my diagnosis. I have been with my new oncologist now since this past June. I loved the personality and approach of my first oncologist- it really did make a difference in how I felt about things because he was always so very positive. Because of that, it was even harder to make a change. But, I realized that his knowledge was limited and that I'd be getting better care with someone who was more up on the latest treatments, clinical trials, etc. My former onc made a couple of mistakes with me too that contributed, I believe, to my first recurrence.
    It's time to move on, Pat. Also- I'd love to hear your reply to my PM that I sent you.

    Take care,
    Lisa
  • lisa42
    lisa42 Member Posts: 3,625
    lisa42 said:

    I second "moving on"
    Pat,

    I agree with what a few others have said, that it's probably time for you to move onto a new oncologist. Although it wasn't the easiest thing to do, I changed oncologists a year and a half after my diagnosis. I have been with my new oncologist now since this past June. I loved the personality and approach of my first oncologist- it really did make a difference in how I felt about things because he was always so very positive. Because of that, it was even harder to make a change. But, I realized that his knowledge was limited and that I'd be getting better care with someone who was more up on the latest treatments, clinical trials, etc. My former onc made a couple of mistakes with me too that contributed, I believe, to my first recurrence.
    It's time to move on, Pat. Also- I'd love to hear your reply to my PM that I sent you.

    Take care,
    Lisa

    great talking to you!
    To everyone else reading this- I just got off the phone with Pat- he has new hope, as he has contacted Dr. Cantrell and will be seeing him soon. It was great talking to Pat!

    Hi again Pat-

    It was really great talking to you & I'm sooo glad you're excited about Dr. Cantrell and that you'll be seeing him. I'm sure you'll share your info about that with the board soon. As you also said on the phone, it will be very nice for you to go on that trip with your family to Florida and get away from the cold and of all talk about cancer. I believe you'll turn out all right. Keep in touch!

    Lisa
  • Fb489
    Fb489 Member Posts: 69
    Don't give up
    Find a new ONC, try another chemo regimen
    and read the book BEATING CANCER WITH NUTRITION.
  • angelsbaby
    angelsbaby Member Posts: 1,165
    Fb489 said:

    Don't give up
    Find a new ONC, try another chemo regimen
    and read the book BEATING CANCER WITH NUTRITION.

    Pat
    what a shock thats how angel and I felt when we got the news like that. Drs don't always know, I am sorry about the bad news but keep trying don't give up .

    michelle
  • dwcollette
    dwcollette Member Posts: 1
    unknown said:

    This comment has been removed by the Moderator

    Second Opinion
    I agree....

    Second Opinion...that's what I did and it might have saved my life.

    MDAnderson.org

    Contact them today!!!!!!!
  • JDuke
    JDuke Member Posts: 438

    Pat
    what a shock thats how angel and I felt when we got the news like that. Drs don't always know, I am sorry about the bad news but keep trying don't give up .

    michelle

    The power
    of this board is awesome, I know you will find the answers you seek here. They will lead you in the right direction. Hang in there..
    Blessings,
    Joanne