Bad news
Comments
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PhoebeHollyID said:My prayers and thoughts are
My prayers and thoughts are with you both.
I am so sorry I don't have the words right now just spend every minute with him and love him.
michelle0 -
Sorry
So very sorry to hear this news. Just hope he can get the strength to get another opinion before you have to just not do anything. Maybe just call other doctors right now instead of taking him there if he is too weak. Try and see if he will go along with you just calling.
Kim0 -
thoughts are with you
Phoebe- I am at a loss. This is such a terrible blow and my heart aches for you.
Perhaps you could send his scans out to other Docs and see if you could get a response. Perhaps a flicker of hope from another place would give Michael enough strength to fight on.
I can't tell you how sorry I am. You are living my what I fear from this disease and I wish I could do something to help you through all this.
Thinking of you-
Kim0 -
So Sorry
phoebe
I'm so sorry. I'll kept you in my prayers. Never give up hope.
Tina0 -
Other Opinionslostit2003 said:So Sorry
phoebe
I'm so sorry. I'll kept you in my prayers. Never give up hope.
Tina
I really want to send his scans to MD Anderson because I know they specialize in liver mets. Does anyone have any recomendations of doctors in the Milwaukee/Chicago area?
I asked the doctors about the "caking" in the stomach that the other doctor had mentioned and they said they didn't see anything in the stomach. It's these discrepancies that make me skeptical of the prognosis.
The doctors say that the tumors in his liver are so large and his liver is so compromised that the HAI pump wouldn't be an option. His liver just can't handle the chemo. I will keep searching and grasp at any straws I can....
All prayers are greatly appreciated!0 -
Phoebephoebe1017 said:Other Opinions
I really want to send his scans to MD Anderson because I know they specialize in liver mets. Does anyone have any recomendations of doctors in the Milwaukee/Chicago area?
I asked the doctors about the "caking" in the stomach that the other doctor had mentioned and they said they didn't see anything in the stomach. It's these discrepancies that make me skeptical of the prognosis.
The doctors say that the tumors in his liver are so large and his liver is so compromised that the HAI pump wouldn't be an option. His liver just can't handle the chemo. I will keep searching and grasp at any straws I can....
All prayers are greatly appreciated!
so sorry to hear this. my thoughts and prayers are with you and your husband tonight.
Audrey0 -
Hang in there,phoebe1017 said:Other Opinions
I really want to send his scans to MD Anderson because I know they specialize in liver mets. Does anyone have any recomendations of doctors in the Milwaukee/Chicago area?
I asked the doctors about the "caking" in the stomach that the other doctor had mentioned and they said they didn't see anything in the stomach. It's these discrepancies that make me skeptical of the prognosis.
The doctors say that the tumors in his liver are so large and his liver is so compromised that the HAI pump wouldn't be an option. His liver just can't handle the chemo. I will keep searching and grasp at any straws I can....
All prayers are greatly appreciated!
Hang in there, Phoebe.
Thinking of you.0 -
Hospitalsphoebe1017 said:Other Opinions
I really want to send his scans to MD Anderson because I know they specialize in liver mets. Does anyone have any recomendations of doctors in the Milwaukee/Chicago area?
I asked the doctors about the "caking" in the stomach that the other doctor had mentioned and they said they didn't see anything in the stomach. It's these discrepancies that make me skeptical of the prognosis.
The doctors say that the tumors in his liver are so large and his liver is so compromised that the HAI pump wouldn't be an option. His liver just can't handle the chemo. I will keep searching and grasp at any straws I can....
All prayers are greatly appreciated!
It is about a 4 hour drive from Chicago but have you thought about the University of Michigan in Ann Arbor, Michigan. Straight shot down I94 from Chicago. We live about a half hour from there and they are in the top 10 in the country for cancer. That is one place we are thinking of for a second opinion. I don't know much about them but I would think Northwestern in Chicago would also be a good choice. Both are major centers. MD Anderson is #1 but I don't know how quickly you can get in there. I have also heard good things about Vanderbilt in Tennessee. Thinking of you daily - Tina0 -
Hey Kathyunknown said:This comment has been removed by the Moderator
I could never be angry with him for giving up the fight. I see how hard it's been on him and it breaks my heart to see such a strong healthy man deteriorate so quickly.
I have read many of your stories to him and they do inspire him...but his liver is not at all inspired. If there was anything I could do to just keep him strong and improve his liver function. His bilirubin was at 18 the last time I asked....I didn't ask today...I was afraid of the answer.
I don't know what it's like to go through chemo or surgery or all the other horrible "treatments" he has had to endure. But I do know that it is excruciating to sit back and watch a loved one go through this.
All your stories inspire me everyday and I will never stop searching for something new to help him.0 -
Husbandphoebe1017 said:Hey Kathy
I could never be angry with him for giving up the fight. I see how hard it's been on him and it breaks my heart to see such a strong healthy man deteriorate so quickly.
I have read many of your stories to him and they do inspire him...but his liver is not at all inspired. If there was anything I could do to just keep him strong and improve his liver function. His bilirubin was at 18 the last time I asked....I didn't ask today...I was afraid of the answer.
I don't know what it's like to go through chemo or surgery or all the other horrible "treatments" he has had to endure. But I do know that it is excruciating to sit back and watch a loved one go through this.
All your stories inspire me everyday and I will never stop searching for something new to help him.
Your husband is thought and prayed for this minute. I feel so bad for your situation. Please know that you and husband are in my thoughts. I don't know what to say to make it better. I can understand both of your situations. May God Bless you and husband.
Kim0 -
Please
Please get a second opinion.I know how hard it is to go thru all that ,and to be in pain all the time.I was more than ready to just quit and give up,I wanted nothing more than to just roll over,and die,just be done with it.But I had a brother die from cancer,and some friends,and I decided that I was going to fight to the very end no matter what,so I had to force myself.I don't remember who,but I remember that someone on this site saying that when it spread to their liver,the dr. just took sections,1 at a time untill they got it all.I'll be praying for you.0 -
Bad News
The easy thing to say is "keep looking for opinions" but at some point enough is enough. May you cherish the time remaining with Michael, may it be longer and happier than anybody can now imagine, and may you both find peace in the love you obviously share. The picture proves that you are a cute couple, you really are, but your love for each other is also well beyond that -- it is forever.0 -
This comment has been removed by the Moderatorphoebe1017 said:Hey Kathy
I could never be angry with him for giving up the fight. I see how hard it's been on him and it breaks my heart to see such a strong healthy man deteriorate so quickly.
I have read many of your stories to him and they do inspire him...but his liver is not at all inspired. If there was anything I could do to just keep him strong and improve his liver function. His bilirubin was at 18 the last time I asked....I didn't ask today...I was afraid of the answer.
I don't know what it's like to go through chemo or surgery or all the other horrible "treatments" he has had to endure. But I do know that it is excruciating to sit back and watch a loved one go through this.
All your stories inspire me everyday and I will never stop searching for something new to help him.0 -
Look into the Block Center for Integrative Cancer Care
I found this while surfing in one of the other forums:
http://www.blockmd.com/
They use integrative therapy, and not just chemo so I assume it's at least several times more effective. Don't give up hope. If you go the front page there are multiple stories of people who were told the same thing by the doctor as your husband - today they're either doing much better or are in remission.0 -
I am so sorry about your
I am so sorry about your news. I just wondered if you knew about the caregivers discussion board here. I didn't find it until late in my husband's cancer battle. There are a number of people going through the same things you are on that board. Just go a little lower in the listings. It doesn't get as much traffic as this one, but it was really helpful for me. Fay0
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