Wait to hear it from the horses mouth...

PhillieG
PhillieG Member Posts: 4,866 Member
edited March 2014 in Colorectal Cancer #1
So, never take the word of a pain managment doctor over that of your oncologist. I won't do a "he said, she said" thing but I thought things were stable. He did say there was some growth on the one but his idea of what's a problem and her (onc) idea is different. She's the boss lady. So I am starting TODAY with the double chemo again every other week (CPT11 and Erbitux) and I will set up an appointment with the surgeon to do the RFA on it (Radio Frequency Ablation) which last time was only an overnight stay where they stick it with a needle into it and fry it. The double adds the CPT11 to the mix and that causes bad cramping, real bad after a while. I will likely have the RFA in the next few weeks then do the double chemo until further notice.
At least I had a good 10 months with only the one chemo. It could be better news but it certainly could be a lot worse.
-p
No creampuffs yet!
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Comments

  • KathiM
    KathiM Member Posts: 8,028 Member
    #2
    I'm sending warm hugs...
    You are a true warrior, Phil....I'm sorry you have to go thru so much...

    Hugs, Kathi
  • luv3jay
    luv3jay Member Posts: 533 Member
    #3
    *Sigh*
    Phil, I'm sorry to hear this news...slight setback. But you're right, it could be worse! I'm glad you and your doctors have a plan of attack and I'm pulling for you. You inspire so many. I've had the past month off with no chemo and it feels sooo good, so I'm sure you've had a great 10 months. Now back to the grind for both of us. Positive thoughts coming at you!

    -Sheri
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    #4
    Had hoped for better news but.........
    Glad she has a plan. I'm still praying for you, my friend! I want to dance at your 90th birthday party.

    Diane
  • nudgie
    nudgie Member Posts: 1,478 Member
    #5
    Sorry the news
    could not be better, but you as you stated it could have been worse. I am sending good vibes, mojo and prayers your way.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #6
    another sigh
    Hi Phil,

    Sorry to hear it- I'm thinking about you today getting that CPT-11. Emend was finally the only thing that kept the nausea away. Get something for that & lomotil for the cramping/diahrrea if that becomes a problem for you.
    As someone already said, you're quite the warrior- you can do this because you must-
    stay strong!!

    Lisa
  • robinvan
    robinvan Member Posts: 1,012
    #7
    Ah! %#&*!
    Phil, I am so sorry to hear this!

    RFA... Yup... fry the little sucker out of there! I hope thay can do it without open surgery again.

    Your Onc sounds like she is right on it. Starting today!

    Thinking of you... Rob; in Vancouver
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #8
    robinvan said:

    Ah! %#&*!
    Phil, I am so sorry to hear this!

    RFA... Yup... fry the little sucker out of there! I hope thay can do it without open surgery again.

    Your Onc sounds like she is right on it. Starting today!

    Thinking of you... Rob; in Vancouver

    Phil
    Yes.... a slight setback....... nothing you can't handle. Keep the faith as always.... we win IT don't...

    Jennie
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #9
    idlehunters said:

    Phil
    Yes.... a slight setback....... nothing you can't handle. Keep the faith as always.... we win IT don't...

    Jennie

    Phil
    Just a hump in the road But i am sure things will improve they have too ,

    take care you are in my thoughts

    michelle
  • lesvanb
    lesvanb Member Posts: 905
    #10
    and another sigh..
    Hang in there Phil. Lots of love coming your way.

    all the best, Leslie
  • sfmarie
    sfmarie Member Posts: 602
    #11
    Shoot
    I was hoping for creampuffs! Sorry to hear about the recurrence. I am sending lots of prayers your way. Marie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #12
    angelsbaby said:

    Phil
    Just a hump in the road But i am sure things will improve they have too ,

    take care you are in my thoughts

    michelle

    Treatment
    So sorry about the news. Hoping that this new treatment will take care of that. Good luck in this new step.

    Kim
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #13
    Dear Phil,you are in my
    Dear Phil,you are in my prayers for sure.Best luck to you with the CPT11 and Erbitux.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #14
    Go Get 'Em, Phil
    Phil

    What a development! I know you've talked about having to get back in the battle again...you sorta saw it coming, but it is always a shock to hear it again.

    You and I both had about a 10-month break, and you know I am pulling for you 100% to do what needs to be done.

    You're a tough guy so I know you will win this round of the battle...you've done this one before...hang in there, Ol' Timer.

    -Craig
  • Julie 44
    Julie 44 Member Posts: 476 Member
    #15
    Sundanceh said:

    Go Get 'Em, Phil
    Phil

    What a development! I know you've talked about having to get back in the battle again...you sorta saw it coming, but it is always a shock to hear it again.

    You and I both had about a 10-month break, and you know I am pulling for you 100% to do what needs to be done.

    You're a tough guy so I know you will win this round of the battle...you've done this one before...hang in there, Ol' Timer.

    -Craig

    Hey Phil
    Well here you go again..But you are a very strong person and you can and will deal with this just like all the other bullsh** you've dealt with...Boy life just always seems to throw a wrench in whenever it can...
    You know that you are in our thoughts and prayers always.....JULIE
  • cyndi2324
    cyndi2324 Member Posts: 72
    #16
    I'm sorry Phil, I hope your
    I'm sorry Phil, I hope your CPT 11 isn't too rough. It was easier for me than Folfox 4 but I know this stuff is different for everyone. You are a strong fighter. I see that you have been on site since 2005. I hope I can be as strong I have only been fighting since 2007. You give me courage. Wishing you the best.
    Thanks
    Cyndi2324
  • Hatshepsut
    Hatshepsut Member Posts: 336 Member
    #17
    Sundanceh said:

    Go Get 'Em, Phil
    Phil

    What a development! I know you've talked about having to get back in the battle again...you sorta saw it coming, but it is always a shock to hear it again.

    You and I both had about a 10-month break, and you know I am pulling for you 100% to do what needs to be done.

    You're a tough guy so I know you will win this round of the battle...you've done this one before...hang in there, Ol' Timer.

    -Craig

    Mr. Ed

    Phil:

    I absolutely hate the fact that you are having a setback.

    I also know that you are strong, intelligent, informed, grounded (and perhaps a bit edgy) and that you have trusted your health to doctors at what is arguably the most prestigious cancer center in the country. You clearly have the intelligence to make critical decisions about your health. That your oncologist would act with such confident decisiveness to put you into stepped-up treatment today is pretty impressive. I know that I appreciate doctors who act with such confidence. My husband's oncologist acts that way and I take great comfort in his knowledge, instincts and courage.

    As Lance would say, "unity is strength, knowledge is power and attitude is everything."


    Hatshepsut
  • Paula G.
    Paula G. Member Posts: 596
    #18
    Damn it!
    Sorry for this news Phil. You will kick this in the *** like you have before. You are a worrier and we are all here for you as you have been for us. Good thoughts coming your way. Paula
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #19
    Paula G. said:

    Damn it!
    Sorry for this news Phil. You will kick this in the *** like you have before. You are a worrier and we are all here for you as you have been for us. Good thoughts coming your way. Paula

    Gonna tell you like I would hope you'd do for me....
    Just go kick its ****..........You need anything at all that I can do simply say it....Now get busy with the **** kickin'........Buzzard
  • 2bhealed
    2bhealed Member Posts: 2,064 Member
    #20
    Cancer sucks
    What can ya say.

    Well maybe.....&*^%$)!!@+ $#!t!!
  • KFen725
    KFen725 Member Posts: 108 Member
    #21
    Argh!
    Argh, never any fun to hear that sort of stuff, especially when you were led to believe otherwise. I hope the double chemo & possible RFA go well for you!

    Kelly

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