Semi-Colon Roll Call

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  • mk1117
    mk1117 Member Posts: 46

    Terry from Kentucky
    Diagnosed May 8, 2009 by routine colonoscopy
    Stage IIIb sigmoid colon with added bonus of right kidney renal cell carcinoma
    Surgery June 15 with resected colon 2/15 lymph nodes with microscopic cells no mets and
    removal of right kidney with 0/9 nodes no mets
    Both were primary tumors (have a lovely scar from stem to stern resembling a local highway complete with pot holes)

    Started Chemo with the lovely Oxilplatin(sp?) and 5fu pump for 46 hours. Have completed 5 rounds and have 7 to go. Having issues with neuropathy mostly in hands and feet, even with getting mag sulfate and calcium.

    I live in Louisville, Kentucky...home of the Kentucky Derby.

    Hello fellow Kentuckian
    Hello Terry. I think I forgot to mention where I lived in my "semi-colon roll call" post, but I live in Winchester, KY. I have several friends and family members in Louisville. Love to go there and splurge on lunch at the Cheesecake Factory.

    I was diagnosed with Stage IIIC colon cancer in 10/04. Surgery, 13/19 lymph nodes, but surprisingly no spread to other organs.

    You are on the same chemo plan as I was. There is light at the end of the tunnel. The neuropathy eventually improved and is really not much of an issue now for me. Hopefully it will be the same for you.

    Wishing you the best as you continue your chemo treatments.

    Kathy
  • This comment has been removed by the Moderator
  • eric38
    eric38 Member Posts: 583
    ninetoes said:

    Roll Call
    Hi everyone,

    Dxed in April of 09 stage II, surgery removed 1 ft of colon,In treatment...Chemo- oxy and 5FU, 12 treatments will start my 8th this Thursday. I live in the Chicago suburbs.

    Stage 4
    Diagnosed April 2009 stage 4 with 4 liver mets and cancerous nodes in pelvis and abdomen. My location is Lewisville, Tx. A suburb of Dallas. I am responding well to treatment and have only 2 more to go. The last scan showed most of the cancer already in remission and I am expecting ned when I am through.
    Eric
  • Fb489
    Fb489 Member Posts: 69
    2bhealed said:

    Here!
    Dx'ed 8/01 Stage III sigmoid colon cancer with 2/19 positive lymph nodes zero mets.

    Chose to forgo chemo for alternative, Traditional Chinese Medicine, CHEMIA (juice of the plant) protocol.

    Have remained NED for 7.8 years!

    Two Harbors, MN up in the hinterlands of Lake Superior in the Northwoods with the moose, bear, wolves and mountain lions. Currently. Will be moving to Racine, WI in the near future.

    peace, emily the juice chick

    traditional chinese medicine
    where can I get the chemia protocal to buy.
    Please explain what you did, it is amazing you cured yourself without chemo
  • PhillieG
    PhillieG Member Posts: 4,866
    Sonia
    This was started back in April that has a lot of members stories.
    -phil
  • patsy1954
    patsy1954 Member Posts: 85
    Saco Maine
    This is a great site! I've only been a member since September.

    My Journey:
    Had a colonoscopy in 2005 at age 50, not even a single polop. Joke with friends about being a perfect A--- H---, vs friends who had polops who were not perfect.
    Fast forward to April 2009. Feeling extremely tired, no longer able to walk my 4 miles a day. Daughter gets upset and says you better call the doctor, saw him the next day. 4 days later get the call, "I need to see you and your husband right away". Cried a bit and off to the docs, tells me: You have a mass in your transverse colon, mass in your liver (half of my liver is cancerous) and multiple nodes that are affected, some near my aorta that can not be removed. Admitted next day for a colonoscopy, surgery the day after, on the Saturday before Easter. So in 6 days I went from what I thought was being healthy to Stage 4 Cancer and had surgery to remove colon tumor and multiple lymph nodes. They say I have had cancer for at least 3 yrs. What a trip!!

    4/09 Surgery to remove tumor
    5/09 Started on Folfox
    6/09 Hospitalized for small perforation of bowel
    10/09 Going to be 55 on October 29th, 10 days after last Folfox

    11/09 ?????????????? What will CT scan show!
  • Patti1
    Patti1 Member Posts: 109
    Hello All

    Hubby diagnosed 1/5/2006 Stage IV, Met to Liver and 2 Lymph Nodes

    Last Scan still all clear, next Scan 11/5/2009

    See you all at the NED Happy Dance in November

    Patti & Dennis
    Florida
  • mykidsmommy
    mykidsmommy Member Posts: 76
    Better Late Than Never
    Hi you guys! It's Mommy here - checking in. I have been lurking , not ashamed to admit it. I seem to tlurk when I have a PET scan due - don't need to be a shrink to figure THAT one out - As I was reading this great big ol' long thread - I was reminded if the first time I "found" this site - after my first round of chemo - post surgury when all this was new and scary to me. I spent hours reading the posts - getting hope by each line and story - I was a sponge soaking up the information, and understanding I was not alone. It was a moment in time I will never forget. So, yes I was on-line a lot during those days - and have gone back to my wonderful life - with cancer taking more of a back seat, and this works for me. But I do checkin here and read and try to help others with ideas or support like some gave to me - I owe so much to this site. I met an amazing friend here, Heather, and she was my angel during my dark hours, when Lord knows she had so many of her own, she help me navigate mine.
    So I am in San Diego.
    Diagnosed Stage 3 in Feb 07
    12 rounds of chemo -
    One year later December 08- solitary lung mass - RFA treatment zapped it out -
    PET scans every 3 months - all have been clean so far - another one this week -
    I am excited and wanting to celebrate my first official year NED - so we'll see - It is in God's hands and He hasn't let me down yet!
    Keep the faith my colon cancer friends -
    Hugs from Mommy -
  • butterfly23
    butterfly23 Member Posts: 256
    Hi
    Dx 2008 stage 4. just recently diag. with mets to spine and lung. currently in treatment. xeloda oxyaplatin and avastin
    Hugs
    Karyn
  • liefjasmine
    liefjasmine Member Posts: 5
    roll call
    Hi! It's Lynne from New Orleans. I was diagnosed in June of this year - no family background. Went to doc because of severe tiredness. Went in hospital with severe anemia. Did testing. Had resection and total hysterectomy on June 10. Turned 49 years old when I left the hospital on June 15. Great birthday present!! (Ha Ha). Tumor was attached to uterus - that's why I had to have a hysterectomy. Stage III with 2 out of 19 lymph nodes positive. No mets. 4 inches of colon removed. Currently on round 5 of 8 with xeloda pills and oxaliplatin infusion. Should have last treatment 2 days before Christmas - barring unforeseens. Positively HATE oxaliplatin. Onc. wanted me to do clinical trial with urbitux - found out I have KRAS mutation - so I wasn't eligible. Loved finding this board. Have since had 2 distant "friends" dx'd with stage IV and stage II colon cancer. Stage II'er has to have rectum removed and rebuilt - but may not need chemo. Later - Lynne
  • jams67
    jams67 Member Posts: 925
    Jimbob- said:

    Jimbob Here
    April 2005 saw blood in the stool. Ten days later had surgery and ended up without a rectum and now have a permanent Colostomy.

    I am the Poster boy for early detection. I had no bowel perforation or no lymph nodes affeted, stage one. No chemo or Radiation was required. I am easily coping with the Bag, Not a problem.

    I was Born in west Virginai, Raised in Ohio, Now living in Pensacola, Florida. I am a Retired US Marine Aviator. 67 Years old.

    I do not post much here but am frequently in the Chat Room. come on in and say hello to me.

    Jimbob

    What a coincidence!
    My sister is dating a guy named Jimbob. I didn't know there was another one. LOL
  • Joy1216
    Joy1216 Member Posts: 290
    jams67 said:

    What a coincidence!
    My sister is dating a guy named Jimbob. I didn't know there was another one. LOL

    Not the only one
    I have a cousin named Jim Bob. You'd think with that name he was born in the South. Wrong! He's from a small town outside of Kansas City.
    Joy
  • sfmarie
    sfmarie Member Posts: 602
    My Story
    Sister dx 03/09 stage IV with mets to liver, ovaries and peritoneum. She is 39 with 3 small children. She had no alarming symptoms, but did complain of night sweats, insomnia. She had emergency surgery when her tumor perforated her colon. She is currently on Avastin with 5FU. It has been quite the battle and a very huge eye-opening experience. Cancer sucks and we need to do a better job educating physicians and making this a better process for patients. We are amazed at the kindness of strangers, friends and family. This board has been an amazing strength to me and it has made me appreciate everything I have. To all of you semi-colons out there, I pray for you each night. Not too many Californian's on this board, so here is a shout out to the "bankrupt" state. Palo Alto, CA.
  • serrana
    serrana Member Posts: 163 Member

    Better Late Than Never
    Hi you guys! It's Mommy here - checking in. I have been lurking , not ashamed to admit it. I seem to tlurk when I have a PET scan due - don't need to be a shrink to figure THAT one out - As I was reading this great big ol' long thread - I was reminded if the first time I "found" this site - after my first round of chemo - post surgury when all this was new and scary to me. I spent hours reading the posts - getting hope by each line and story - I was a sponge soaking up the information, and understanding I was not alone. It was a moment in time I will never forget. So, yes I was on-line a lot during those days - and have gone back to my wonderful life - with cancer taking more of a back seat, and this works for me. But I do checkin here and read and try to help others with ideas or support like some gave to me - I owe so much to this site. I met an amazing friend here, Heather, and she was my angel during my dark hours, when Lord knows she had so many of her own, she help me navigate mine.
    So I am in San Diego.
    Diagnosed Stage 3 in Feb 07
    12 rounds of chemo -
    One year later December 08- solitary lung mass - RFA treatment zapped it out -
    PET scans every 3 months - all have been clean so far - another one this week -
    I am excited and wanting to celebrate my first official year NED - so we'll see - It is in God's hands and He hasn't let me down yet!
    Keep the faith my colon cancer friends -
    Hugs from Mommy -

    to mykidsmommy
    Hi
    I am also from San Diego...north county.There are several of us stage 3 and 4 gals here. What cancer center and doctor do you have? I have the exact history and timeline as you, just had a lung met removed and my onc is making noises about 'maintenance" chemo. Yuk. My post op scans are clear. Any word about not doing maintenance chemo???????
    Serrana
  • scouty
    scouty Member Posts: 1,965
    Bump
    For others to see and add to.............

    I really enjoy seeing all the familiar names on this thread!!!

    Lisa P.
  • lostit2003
    lostit2003 Member Posts: 53
    scouty said:

    Bump
    For others to see and add to.............

    I really enjoy seeing all the familiar names on this thread!!!

    Lisa P.

    Great post
    This has made me feel so much better.
    Hubby was dx 12-14-09 stage IV colon cancer with liver mets
    He starts folfox 1-25-10.


    So good to hear everyones stories

    Tina
  • christinecarl
    christinecarl Member Posts: 543
    me
    Dec 08 diagnosed with stage 3 B

    colon resection surgery, 6 mos of chemo

    currently NED

    my mom and her mom died from colon cancer I never thought it could be beat, you all have taught me different, may God bless you all
  • P_I_T_A
    P_I_T_A Member Posts: 133
    My turn
    Thought I had done this already, but must have been a dufferent thread. Because, I don't remember it being this long. Anyway...

    40yo. routine physical, primary suggest colonoscopy due to family history.

    Aug 09' - He finds 2 polyps(1 cancer.) Got the news same day as my 1yr. weddding anniversary(easy to remember now, huh?)

    Sept 09' - Had resection surgery, post pathology 1 of 13 nodes positive. Stage IIIa, Chemo time (oh joy!)

    Oct 09' - Pre-Tx CAT scan shows NED, still have to do chemo, $#*%!

    Today - Just finished Tx #6 FOLFOX, at the halfway point!

    Married to a beautiful wife and wonderful care giver. Live in Sugar Hill, GA(Metro Atlanta) near Mall of GA and Lake Lanier.

    -DJ
  • dianetavegia
    dianetavegia Member Posts: 1,942
    Bumping for new members
    Bumped!

    Diane
    Stage III, dx Jan. 2009, NED since Jan. 7th 2009 so 1 year
  • lcarper2
    lcarper2 Member Posts: 635

    Bumping for new members
    Bumped!

    Diane
    Stage III, dx Jan. 2009, NED since Jan. 7th 2009 so 1 year

    Roll CAll
    Hi from Tulsa Oklahoma 62 yr old female suffered for 3 yrs with pain had a colonostpy (sp) july 2009 removed 3 precancerous polops ,still had very bad pain they did a c-scan and 2 hrs later in hospital surgery to remove a soft ball size tumor on my colon and the entire colon was removed along with 34 nodes 19 cancerous been on Xeloda 3000 my 2x aday for 4 months 4 more to go. Last c-scan showed NED. Stage3 with no other organs involved no bag of any kind. pooper shooter works fine.