Terrified

nadca
nadca Member Posts: 14
edited March 2014 in Breast Cancer #1
I recently found out I have breast cancer. I am only 36 and never every expected this. I am waiting to hear on a surgery date. I am getting reconstructive at the same time. I dont know if I have to go through chemo or not yet? I don't even know if there is an option?? My gp gave me ativan which I didn't think was working. I was taking it incorrectly. During all the confusion thought I was to take it at night. I am crying alot. i feel so bad for my husband. He doesn't know how to help me. My doctor wanted to change my anxiety meds to paxil. I have read too many negative things on this. Is it wrong for me to ask for a higer dosage of ativan. Right now i am taking .5mg.
This is all very hard. My husband and I just went off the pill 3 or 4 months ago to have a baby. I am so lost and scared.
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Comments

  • Calleen
    Calleen Member Posts: 411
    You have
    Come to the right place. Of course you are scared. BC is a very scary thing. You are not alone in your fight!!! What type of reconstruction are you thinking of?? I want to recomend a book call "Dr. Susan Loves Breast Book" Its the bible for Women with Breast Cancer. There is a book for Men to help thier wives and I'm sure one of the Women on here know the name of it... I just had a bi-lateral with immediate reconstruction on July 29th and I'm fine!!! I had IDC.. I still don't know if I have to have chemo yet either... I still am waiting to see a oncologist...

    This is a very Special Sisterhood with soooo many amazing Women!! We will be here for you every step of the way!!!

    Hugz...Calleen
  • nadca
    nadca Member Posts: 14
    Calleen said:

    You have
    Come to the right place. Of course you are scared. BC is a very scary thing. You are not alone in your fight!!! What type of reconstruction are you thinking of?? I want to recomend a book call "Dr. Susan Loves Breast Book" Its the bible for Women with Breast Cancer. There is a book for Men to help thier wives and I'm sure one of the Women on here know the name of it... I just had a bi-lateral with immediate reconstruction on July 29th and I'm fine!!! I had IDC.. I still don't know if I have to have chemo yet either... I still am waiting to see a oncologist...

    This is a very Special Sisterhood with soooo many amazing Women!! We will be here for you every step of the way!!!

    Hugz...Calleen

    IDC as well. I am having an
    IDC as well. I am having an implant. I want as little damage to my body as possible, flap was not for me. I hope to be able to wear a bikini when this is all done.
    Is it possible not to take chemo?

    thanks for the support. It is greatly appreciated.
  • Noel
    Noel Member Posts: 3,095 Member
    Nadca, quite honestly, you
    Nadca, quite honestly, you won't know what your treatment plan is, meaning chemo, radiation treatments or more surgery, until after your surgery is done and the pathology report comes in. They use the pathology report to determine your treatment plan.

    And, I don't think is the time that you want to have a baby. I know it is none of my business, but, you don't want the extra estrogen in your body. And, you don't want to be on birth control pills either. Have you discussed this with your oncologist?

    ♠♥ Noel ♥♠
  • Marcia527
    Marcia527 Member Posts: 2,729
    We are all lost and scared
    We are all lost and scared at first but then we find maps laid out by others who have gone before and info that helps us not be so afraid. We tend to be afraid of the unknown. So sorry you have to go through this so young! It seems more and more younger people are getting cancer. It doesn't seem right for any of us. There are others here who are your age also. I never took anxiety meds so can't help you there. Just hang in there. Make a list of questions to ask the doctor next time you go and take someone with you to help remember what he says.
  • Calleen
    Calleen Member Posts: 411
    Marcia527 said:

    We are all lost and scared
    We are all lost and scared at first but then we find maps laid out by others who have gone before and info that helps us not be so afraid. We tend to be afraid of the unknown. So sorry you have to go through this so young! It seems more and more younger people are getting cancer. It doesn't seem right for any of us. There are others here who are your age also. I never took anxiety meds so can't help you there. Just hang in there. Make a list of questions to ask the doctor next time you go and take someone with you to help remember what he says.

    I
    went through some testing before my surgery. I was diagnosed on May 8th but as above just had surgery. I had 2 of my lymph nodes removed before surgey to see if it had spread. I was clear... I also had a MRI, and Genetic testing... so that by the time my surgery came I was well informed... I am older than you so i had belly fat to spare... since i also chose to have a full masectomy i didn't have to have any radiation. my tumor was less that 1.5 cm so i am considered stage 1.. I too would like to know if anyone on here didn't have to have chemo??

    I also discovered that insurance companies are required by law to offer reconstruction of the unaffected breast if the Woman wants it.. that's why I did both.. I didn't want to ever think about it coming back...

    What kinds of testing have you had? when was your dx?
  • CR1954
    CR1954 Member Posts: 1,390 Member
    Hello...
    Hello and welcome to the board. I'm very sorry for your dx, and the fact that you wanted to start a family. Cancer just sucks...

    Of course you are scared! I don't know anyone who wouldn't be. So many things happening so fast, and they are all life-changing.

    Please don't be afraid to discuss your anxiety meds with your doc. If you are not comfortable taking Paxil, tell him/her so.
    I take Xanax myself for anxiety, and it has been a life saver for me on this journey. I know that others here take different meds that work for them. Just don't be afraid to talk to your health care provider.

    Big hugs...

    CR
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    I am sorry that you are
    I am sorry that you are scared. I was too, we all were. I got thru it somehow without any antidepressants. I think my strong husband is what got me thru it. I knew he would protect me and help me all the way, and, he did. If you need some or some stronger ones, call your oncologist and he will go over what he can give you.

    And, sorry that you won't be able to have the baby now. But, there are other means to have a family.

    Hugs, Diane ♥
  • Akiss4me
    Akiss4me Member Posts: 2,188
    Calleen said:

    You have
    Come to the right place. Of course you are scared. BC is a very scary thing. You are not alone in your fight!!! What type of reconstruction are you thinking of?? I want to recomend a book call "Dr. Susan Loves Breast Book" Its the bible for Women with Breast Cancer. There is a book for Men to help thier wives and I'm sure one of the Women on here know the name of it... I just had a bi-lateral with immediate reconstruction on July 29th and I'm fine!!! I had IDC.. I still don't know if I have to have chemo yet either... I still am waiting to see a oncologist...

    This is a very Special Sisterhood with soooo many amazing Women!! We will be here for you every step of the way!!!

    Hugz...Calleen

    Welcome Nadca
    Glad you found us, though sorry it was because of BC. The book that would be very helpful for your husband is called "Breast Cancer Husband". We found it on Amazon cheap. They also have it at the public library. Calleen's recomendation is an excellent book for you.
    Please come here as often and for any reason. We will do our best to help walk you through your journey. Pammy
  • rjjj
    rjjj Member Posts: 1,822 Member
    nadca
    welcome to the board. I am glad you found us here. It is so normal to feel this way. I never took paxil but did take ativan, they told me I could take 2. I also too zanax.

    You are very young to have this dianosis, and my heart goes out to you. Keep posting and let us know how you are. We will be here for you, if you ned to cry, vent, ask a qstion or just laugh...you have come to the right place for support. Our sisters in Pink here are amazing, and wonderful survivors, and you wil be too.
    God Bless, Jackie
  • mimivac
    mimivac Member Posts: 2,143
    Hi
    I am so sorry you are dealing with this. I was diagosed at 34, and it really throws you for a loop. Take a deep breath. There is a site for women under 40 with breast cancer called youngsurvival.org. You can post there as well for advice, comfort, and much, much more. Being confused and scared is so normal right now. The important thing to know is that things get better from here. PM me if you want more details on the young survival site.

    Mimi
  • Tux
    Tux Member Posts: 544
    Welcome to the club! This
    Welcome to the club! This is a club that no one wants to belong to, but, unfortunately,
    we do! I was diagnosed in July & it was a total shock to me as well. Please know that we are thinking of you & wish you the best in your treatment. Let us know what happens!
  • mlmjt1
    mlmjt1 Member Posts: 537
    HI Nadca
    Welcome to the board.. you will find no better place to get you thru this than here. Believe me everyone here knows what you are going thru.

    I was diagnosed in April and had bilateral mastectomy in may with complications then started chemo in July. I was crying almost all the time and was very anxious. Paxil is an antidepressant which has a little antianxiety properties in it as well and it has helped me. I am also taking xanax 0.5mg 1/2 tablet up to 3 times per day as needed which is faster acting. It usually helps anxiety in about 30 minutes. Antidepressants usually take up to 4 to 6 weeks to be fully effective.

    I am so sorry you have to be dealing with this at such a young age. I do know that there is an ob/gyn in town who had breast cancer and chemo and did start her family after her treatments were done. Talk to your oncologist about this but probably now is not the best time to try to conceive.

    Hang in there and post often

    Somebody here usually has advice to give

    Hugs
    Linda T
  • aurora2009
    aurora2009 Member Posts: 544 Member
    Hi Nadca
    I just wanted to welcome you to the boards, there is a lot of good information here and best of all support. I am 45 and was DX'd in June, and I still feel that I am young compared to what I though at the time. But there are many here who are younger than I and in the same situation as you. I'm sure they will post soon. I'm so sorry that your plans to have a baby have to be put off for now. Do you know if you are ER/PR+ of not, I think that might make a difference, but you really need to talk to the Oncologiost to be sure.

    Keep us posted, and please feel free to come back anytime you need to talk.

    Aurora
  • Kylez
    Kylez Member Posts: 3,761 Member
    Welcome Nadca. Let me say
    Welcome Nadca. Let me say how sorry I am. I hope you find support and strength on here from the other bc survivors. I know I did.

    ♥Kylez♥
  • jnl
    jnl Member Posts: 3,869 Member
    Kylez said:

    Welcome Nadca. Let me say
    Welcome Nadca. Let me say how sorry I am. I hope you find support and strength on here from the other bc survivors. I know I did.

    ♥Kylez♥

    Hi Nadca and welcome to our
    Hi Nadca and welcome to our site. I am so sorry and wish you the best of luck.

    Leeza
  • Kylez
    Kylez Member Posts: 3,761 Member

    Hi Nadca
    I just wanted to welcome you to the boards, there is a lot of good information here and best of all support. I am 45 and was DX'd in June, and I still feel that I am young compared to what I though at the time. But there are many here who are younger than I and in the same situation as you. I'm sure they will post soon. I'm so sorry that your plans to have a baby have to be put off for now. Do you know if you are ER/PR+ of not, I think that might make a difference, but you really need to talk to the Oncologiost to be sure.

    Keep us posted, and please feel free to come back anytime you need to talk.

    Aurora

    Nadca, I am young too, and,
    Nadca, I am young too, and, it is hard, I know. But, just know that we are here to support you. There is also the young survivors group too.

    ♥ Kylez ♥
  • MAJW
    MAJW Member Posts: 2,510 Member
    Hang on..........
    It's perfectly normal to be terrified.....we all were! You think you won't get throught this, but you will! This is a wonderful place to come to for support! Full of strong, brave women!

    Do you have your pathology report back? That will tell you a lot....I assume you're having a mastectomy......is a lumpectomy not an option? My surgeon and oncologist both said that the survival rate, they have found, is no better with a mastectomy than a lumpectomy IF IF IF a lumpectomy is an option. AGAIN, IF A LUMPECTOMY is an option, sometimes it isn't, depending on the size of the tumor, or if there are multiple tumors. At your young age, I would ask about a lumpectomy! Did your surgeon give you any options? IF not, ask him why........write down anything and everything you can think of, question wise and ask away....AND ALWAYS take someone with you......I found that at times, my brain just shut down, when bad news was delivered by the doctors and my husband thankfully heard it all and was able to tell me later. I had a lumpectomy in May.....I had a 2.2cm tumor, invasive ductual carcinoma. I went from a stage I to a stage II on the table, only due to the size of the tumor. I am having my last of 4 chemo treatments next Monday, then I will have a 3-6 week break before radiation. Chemo hasn't been that bad for me........the lumpectomy wasn't bad at all......very little pain, just more discomfort....I had 3 sentinel nodes removed, they were all clean and I had clean, clear margins where the tumor was removed. That little incision was more troublesome than the incision for the lumpectomy.
    I just tried Ativan and I don't like it......I've only taken it at night and I feel "hungover" in the morning and headachy.......

    If you have to have chemo, ask your oncologist about preserving your fertility, he/she will be well informed on that subject.....
    I wish you the best and sending up prayers for you......
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    MAJW said:

    Hang on..........
    It's perfectly normal to be terrified.....we all were! You think you won't get throught this, but you will! This is a wonderful place to come to for support! Full of strong, brave women!

    Do you have your pathology report back? That will tell you a lot....I assume you're having a mastectomy......is a lumpectomy not an option? My surgeon and oncologist both said that the survival rate, they have found, is no better with a mastectomy than a lumpectomy IF IF IF a lumpectomy is an option. AGAIN, IF A LUMPECTOMY is an option, sometimes it isn't, depending on the size of the tumor, or if there are multiple tumors. At your young age, I would ask about a lumpectomy! Did your surgeon give you any options? IF not, ask him why........write down anything and everything you can think of, question wise and ask away....AND ALWAYS take someone with you......I found that at times, my brain just shut down, when bad news was delivered by the doctors and my husband thankfully heard it all and was able to tell me later. I had a lumpectomy in May.....I had a 2.2cm tumor, invasive ductual carcinoma. I went from a stage I to a stage II on the table, only due to the size of the tumor. I am having my last of 4 chemo treatments next Monday, then I will have a 3-6 week break before radiation. Chemo hasn't been that bad for me........the lumpectomy wasn't bad at all......very little pain, just more discomfort....I had 3 sentinel nodes removed, they were all clean and I had clean, clear margins where the tumor was removed. That little incision was more troublesome than the incision for the lumpectomy.
    I just tried Ativan and I don't like it......I've only taken it at night and I feel "hungover" in the morning and headachy.......

    If you have to have chemo, ask your oncologist about preserving your fertility, he/she will be well informed on that subject.....
    I wish you the best and sending up prayers for you......

    Sending prayers!

    Sending prayers!
  • sweetgeorgia
    sweetgeorgia Member Posts: 10
    Calleen said:

    I
    went through some testing before my surgery. I was diagnosed on May 8th but as above just had surgery. I had 2 of my lymph nodes removed before surgey to see if it had spread. I was clear... I also had a MRI, and Genetic testing... so that by the time my surgery came I was well informed... I am older than you so i had belly fat to spare... since i also chose to have a full masectomy i didn't have to have any radiation. my tumor was less that 1.5 cm so i am considered stage 1.. I too would like to know if anyone on here didn't have to have chemo??

    I also discovered that insurance companies are required by law to offer reconstruction of the unaffected breast if the Woman wants it.. that's why I did both.. I didn't want to ever think about it coming back...

    What kinds of testing have you had? when was your dx?

    DCIS also
    I was diagnosed on 7/17 with dcis and I don't have to do chemo (at least it is not in the plan at this time). I am chosing a lumpectomy and radiation. Because my dcis is extensive and there is another area of suspician that tested negative, they will do a sentinal node test, for precautionary reasons. I pray that comes back negative and I don't have to worry about chemo. I can't believe this [dcis] is all so common!
  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    Nadca
    I am sorry this is happening to you, Nadca, especially just when you and your husband were trying to start a family. More will be known after your surgery. Whether you need chemo, or radiation, and whether hormones are involved in your type of cancer will be discovered then. Now is the worst time, the waiting. Every one of us felt scared and lost during that time, I think.

    Ativan, Zanaz, those are commonly prescribed during this time. If the instructions are not clear, do call your pharmacist. As far as Paxil goes, I was on it awhile back only because my insurance didn't cover zoloft. I took only the amount prescribed for anxiety. I don't recommend it.

    First, if you miss the dose even by a few hours, you can get dizzy. I did,anyway. Also, I craved carbs. I ate at least one chocolate bar every day. Finally asked the dr. to switch me to Zoloft, which I had taken before when my insurance paid for it.

    You have come to the right place for support and understanding. And, by the way, don't give up on the possibility of having a family. It is early days yet, and your doctors will be able to tell you more soon after the surgery.