Semi-Colon Roll Call

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  • krystle singer
    krystle singer Member Posts: 108
    Greylloyd said:

    New to Forum
    Hi There

    Living in Melbourne, Australia.

    Diagnosed with Stage III (C) colon cancer with 3/18 positive lymph nodes in November 08 at age 39.
    Currently undergoing fortnightly Folfox 6 chemotherapy treatments. Have just completed 7 sessions with 5 to go.

    Can't wait for treatment to finish and can't wait to be NED.

    cheers

    Greylloyd

    Welcome, Mate!
    Hope all is going well in treatment. I would love to go to Australia someday, but there is this little thing they call finance and it is keeping me and my (I hope) cancer free body in the States.
    Hope your next post tells us you are continuing to do well.

    G'day!

    Sandi in Illinois, USA
  • Wenchie
    Wenchie Member Posts: 88
    Hanac said:

    Present and Accounted For!
    Dear Scouty,

    I have been away from the board for awhile, but wanted to check in with our famiy today after hearing about Farah. I saw your post and was so pleased to see SO many familar names and faces. Thank you for this!

    I have been dancing with Ned for 4 years! Just had my 4 year check-up last month: CEA was undetectable and CT was all clear.

    For those that don't know me, I was stage 3B with 6 out of 13 lymph nodes. I went on a clinical trial for Avastin...I did 6 months of Folfox with Avastin every other week for six months and then Avastin alone every other week for 6 months. Two years ago they thought it had spread to my lungs. They did surgery and took the nodules out and it turned out to be sarcoids not cancer. Phew!

    In the last 4 years one son has gotten married (I now have two beautiful grandchildren) and one son graduated college and is now getting his masters at the National Theater Conservatory. My husband and I celebrated our 30th wedding anniversary last July and I have found my dream job. I am helping to organize a gubernatorial campaign in California and loving every minute. I am even starting to take off some of the 60 pounds I put on during treatment. Life Is Good!

    God bless all of the semi colons. I keep you all in my prayers.

    Hana

    Florida's Gulf Coast but what's with all the Ohioans?
    I once lived in Ohio too and maybe someone should hire Erin Brockovich to do a study of all of the residual chemicals from Goodyear, General Tire, Goodrich, Firestone, Mohawk and any others that were once located up there!

    Diagnosed 10/2006
    Surgery 12/2006 Stage III, 1 positive lymph node
    Radiation 1/2007...
    Chemotherapy of Folfox 1/2007...
    NED 2008 (at least I thought I was, had a CTScan in Oct. and the Radiologist MISSED the nodules in the lungs!)
    Multiple mets to both lungs 1/2009
    Currently on Folfiri and Avastin and in a clinical trial
  • cowman
    cowman Member Posts: 61
    Kansas
    Dx'd - Rectal Cancer, Stage III, May 2009
    Currently in treatment - Chemo Pump/Radiation Daily
    Surgery scheduled for September with 6 mo Chemo to follow;
    Topeka KS
  • Fight for my love
    Fight for my love Member Posts: 1,522
    My hubby was diagnosed with
    My hubby was diagnosed with rectal cancer stage II in May,2009.Currently he is in the treatment of chemo(5-FU) and radiation for six weeks before surgery.Whether more chemo or radiation needed depends on the pathology after the surgery.
  • Hanac
    Hanac Member Posts: 55
    Wenchie said:

    Florida's Gulf Coast but what's with all the Ohioans?
    I once lived in Ohio too and maybe someone should hire Erin Brockovich to do a study of all of the residual chemicals from Goodyear, General Tire, Goodrich, Firestone, Mohawk and any others that were once located up there!

    Diagnosed 10/2006
    Surgery 12/2006 Stage III, 1 positive lymph node
    Radiation 1/2007...
    Chemotherapy of Folfox 1/2007...
    NED 2008 (at least I thought I was, had a CTScan in Oct. and the Radiologist MISSED the nodules in the lungs!)
    Multiple mets to both lungs 1/2009
    Currently on Folfiri and Avastin and in a clinical trial

    Ohio...Hmmmmmm
    Live in Northern California now, but lived in Toledo for 4 years.....
  • serrana
    serrana Member Posts: 163 Member

    My hubby was diagnosed with
    My hubby was diagnosed with rectal cancer stage II in May,2009.Currently he is in the treatment of chemo(5-FU) and radiation for six weeks before surgery.Whether more chemo or radiation needed depends on the pathology after the surgery.

    chemo rad after surgery
    When I had my rectal cancer surgery Stage 2 or 3, they never knew for sure, the presurgical chemo/radiation had wiped out the cancer cells and the pathology was 'normal'.Whoopee was I glad. They recommended post surgical chemo ( Folfox) for 6 months As it turned out unfortunately even w/ all that treatment I had a metastesis to the lung a year later ( more surgery,and more post surgical chemo). I am now NED. Serrana
  • Nana b
    Nana b Member Posts: 3,030
    serrana said:

    chemo rad after surgery
    When I had my rectal cancer surgery Stage 2 or 3, they never knew for sure, the presurgical chemo/radiation had wiped out the cancer cells and the pathology was 'normal'.Whoopee was I glad. They recommended post surgical chemo ( Folfox) for 6 months As it turned out unfortunately even w/ all that treatment I had a metastesis to the lung a year later ( more surgery,and more post surgical chemo). I am now NED. Serrana

    November 2008
    Colorectal Surgery Nov 2008, Stage III., 7 lympnodes out of 28 affected, then moved to Stage IV, 2, lesions on the iiver, but when had 60% liver resetion found one other.


    Started 5FU Chemo January 2009, had 6 treatments - shrunk lesions some
    Stopped Chemo April 2009 for liver resction
    Started Chemo June 2009 to finish last 6 treatments.

    CEA count started at 150 after colorectal surgery, and now is at 2.
  • ninetoes
    ninetoes Member Posts: 81
    Nana b said:

    November 2008
    Colorectal Surgery Nov 2008, Stage III., 7 lympnodes out of 28 affected, then moved to Stage IV, 2, lesions on the iiver, but when had 60% liver resetion found one other.


    Started 5FU Chemo January 2009, had 6 treatments - shrunk lesions some
    Stopped Chemo April 2009 for liver resction
    Started Chemo June 2009 to finish last 6 treatments.

    CEA count started at 150 after colorectal surgery, and now is at 2.

    I'm in the Chicago area
    Diag - 4/15/09
    Surgery - 4/30/09..Removed 1 ft of colon and baseball size tumor
    Stage 2 No lymph nodes
    Currently in treatment:12 cycles of Oxaliplain/5FU, will be starting round 3 this week if I can get rid of a major blood clot from port. I had to have the port removed and on blood thinners. Getting 2nd option Wednesday, not happy with onc. I may have to stay in the hospital for treatment, don't want to go through the blood clot again.

    Dave
  • karguy
    karguy Member Posts: 1,020
    present
    I was dx with colorectal cancer 2/08,and 3/08 started both chemo,and radiation,then surgery in 7/08.They removed stage 3 tumor,11 lymph nodes,and my apendix.I have a permanant colostomy bag,and 2/09 I did a catscan,and colonosocpy ,and was ned at that time.I go back and see the chemo dr. in august.My brother died in 1/08 of pancreatic cancer.I live in aurora,colorado
  • nesbitt
    nesbitt Member Posts: 1
    Sundanceh said:

    Hi, Everybody...I'm Craig and live in Arlington, Texas...soon to be home of the Dallas Cowboys! We're in between Dallas and Fort Worth. I'm new to the board this month, BUT I'm not lurking....I'm posting and sharing. 67 posts in 14 days.

    2001-2004 Period of bleeding in rectum, and multiple BMs per day, doctor ignored symptoms.
    June 2004 - Colonoscopy confirmed colorectal cancer.Woke up during procedure and saw my tumor.
    July 2004 - 1st port installed.
    July-Aug 2004 - Began chemo and external radiation.
    Oct 2004 - Bowel resection.
    Nov 2004 - Staple broke loose from the resection, causing bleeding, removed.
    Dec 2005 - Hemhorroidectomy.
    Dec 2005 - 1st port removed.
    Dec 2007 - Diagnosed with liver tumor. Metastatic colon to liver.
    Dec 2007 - RFA, Radio Frequency Ablation. Plus seed markers placed in liver for later use.
    Jan 2008 - CyberKnife Radio Surgery (3) to remove remants of liver tumor.
    Mar 2008 - 2nd port installed.
    Mar 2008 to Dec 2008 - Oxaliplatin / Xeloda / Avastin chemo regiment in progress.
    Jun 2009 - 2 spots appeared on the pleura of my right lung. Metastatic from either colon/lung.
    Jun 2009 - Switched oncologists; currently waiting on case review for next step.

    Just completed my 5-year march today actually Jun2004-Jun2009. Beginning year 6.
    Waiting on the review to be completed - possible thoractomy followed by post op chemo.

    -Craig

    Roll Call
    New Here: (I might have been here before but can't remember. I was on so many sites, reading everything I could looking for some sort of postive news. There is lots of news.

    From Fort Worth Texas

    Colonoscopy Feb. 08
    Resection March 08 Diagnosed Stage IIIC with 6 of 28 lymphnodes postive.

    12 Rounds of FolFox, last treatment Nov 08

    Last CEA count .08 in March 09

    I feel great and getting on with my life as fast as I can. I too am starting to lose some weight gained during chemo.

    Next check up in July 09

    Hey Sundance. I went to Texas Oncology on 13th Street, where did you go to and where are to going to? If you don't mind my asking. Thanks.
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    nesbitt said:

    Roll Call
    New Here: (I might have been here before but can't remember. I was on so many sites, reading everything I could looking for some sort of postive news. There is lots of news.

    From Fort Worth Texas

    Colonoscopy Feb. 08
    Resection March 08 Diagnosed Stage IIIC with 6 of 28 lymphnodes postive.

    12 Rounds of FolFox, last treatment Nov 08

    Last CEA count .08 in March 09

    I feel great and getting on with my life as fast as I can. I too am starting to lose some weight gained during chemo.

    Next check up in July 09

    Hey Sundance. I went to Texas Oncology on 13th Street, where did you go to and where are to going to? If you don't mind my asking. Thanks.

    Nesbitt
    Hi there Nesbitt

    No, I don't mind. I've done my cancer treatments at the Arlington Cancer Center in Arlington, Texas the past 5 years.

    I'm currently seeking a 2nd opinion over at UT Southwestern Medical Center in Dallas, TX. I met a new onc there and they are reviewing my entire case history and am waiting on a phone call to meet them again.

    I did have my bowel resection done at Charter Hospital in Fort Worth, TX.

    Take care
    -Craig
  • klnesbitt
    klnesbitt Member Posts: 6
    Sundanceh said:

    Nesbitt
    Hi there Nesbitt

    No, I don't mind. I've done my cancer treatments at the Arlington Cancer Center in Arlington, Texas the past 5 years.

    I'm currently seeking a 2nd opinion over at UT Southwestern Medical Center in Dallas, TX. I met a new onc there and they are reviewing my entire case history and am waiting on a phone call to meet them again.

    I did have my bowel resection done at Charter Hospital in Fort Worth, TX.

    Take care
    -Craig

    UT Group
    Thanks, I will interested in your opinion of the UT group compared to Arlington. We had a lady in our neighborhood who went to Arlington, she fought her stage 4 breast cancer for 7yrs, she had an original diagnoses of 2 to 3 yrs left. Her husband had only positive things to say about them and thought i should go to them for a consult. If my cancer comes back I may go somewhere else for a 2nd opinion. My surgery was at Baylor AllSaints in Fort Worth.
  • Zoe2
    Zoe2 Member Posts: 3
    peterhw said:

    My story
    OK here is the story

    05/2008 DX Stage IV Rectal Cancer, mets to liver and lung, inoperable
    11/2008 Finish 12 Folfox+Avastin tumors shrunk 50%, but not good enough
    01/12/09 Rectal Surgery, with permanent colostomy
    02/19/09 SIRT aborted, due to tumor growing
    03/03/09 Start Folfiri+Avastin

    What helps me most? Exercise, 1 hour walking, 2 hours chi gong everyday. Diet, all vegetarian and lot of juice (thank Emily). Positive attitude, and of course this board.

    Nothern Virginia


    Peter

    Hi Peter
    Hi Peter, it sounds like you have had a difficult time, but you are hanging in there. You are working out more than I do. I still feel a great deal of fatigue. Great job on your positive attitude.
  • mommyof2kds
    mommyof2kds Member Posts: 519
    Dx'ed stage 3 rectal cancer
    Dx'ed stage 3 rectal cancer feb 13, 09
    completed 6 wks chemo/radiation
    surgery 6/2/09
    currently second stage of chemo, cycle 1 done this week, should be completed in oct.
    Living in Iowa.
  • grandma2selena
    grandma2selena Member Posts: 199
    VickiCO said:

    Semi Colons
    Serrana,

    Semi Colons are anyone who has had colon/rectal/anal surgery. We have all lost part of our colon, so that makes us semi-colons. I have not ever heard it refer to just one type of surgery.

    hope that helps! Vicki

    Surgery
    I have not had surgery and don't plan on it unless the cancer comes back.
    diagnosed 11/08 stage 1 anal cancer NED Washington State

    Debbie
  • Sigma34
    Sigma34 Member Posts: 203
    Newly Diagnosed
    and recently moved to Morristown, New Jersey from California.
  • Patteee
    Patteee Member Posts: 945
    Minneapolis
    NED for 13 months

    surgery was set for June 9, 2008 at Mayo in Rochester, MN
    my bowel obstructed on June 7, in the middle of the night, on a Saturday, 90 miles from Rochester
    after explaining to local ER doc that I have colon cancer, thought I was obstructed, in a OWIE lot of pain, surgery set in 2 days at Mayo- his response, "maybe an enema would help?" and "how about if we admit you for pain management?" I told him, "call my surgeon in Rochester, tell her you are pumping me full of morphine and transfering me to Mayo". He came back not 10 mins later, got my surgeon on the phone after 1 ring, she said to him and relayed to me, "DO NOT GIVE HER AN ENEMA, max her out on morphine and get her here ASAP" My response was DUH

    By the time I got there, 3 sheets looped to the wind, it was 5am, the radiologist had been called in to read my xray up in the cities, I was indeed obstructed and just like a well oiled machine, Mayo and her well trained staff took over and I let them!

    stage 3B
    3/12 lymph nodes
    no sign of any spreading
    had to do a colostomy due to the emergency nature of surgery and no time to clean the colon out

    First PET was 5 weeks later, right before starting chemo. Absolutely no sign of mets.

    6 months of chemo, 3 hospitalizations due to wicked side effects

    Colostomy take down Feb 2, 2009
    coloscopy at that time was clear

    Port out in March 2009

    April 2009 CET marker was so low, didn't even register.

    CT scan on June 24, 2009 was clear. 2 hernias showing up, one very large. Will visit with the surgeon at Mayo on July 14, 2009- expecting her to repair hernias on July 15th.

    Struggling with the emotional aspects of this past year. Feels as though I am going through PTSD- trying to stay focused on today and the future, but have these flashes of intense memories- mostly how very sick I was on chemo.

    Thanks for a place to write all of this down- keep thinking if I just keep writing about it maybe that will help.

    Prayers for all of us!
  • Madre
    Madre Member Posts: 123
    Patteee said:

    Minneapolis
    NED for 13 months

    surgery was set for June 9, 2008 at Mayo in Rochester, MN
    my bowel obstructed on June 7, in the middle of the night, on a Saturday, 90 miles from Rochester
    after explaining to local ER doc that I have colon cancer, thought I was obstructed, in a OWIE lot of pain, surgery set in 2 days at Mayo- his response, "maybe an enema would help?" and "how about if we admit you for pain management?" I told him, "call my surgeon in Rochester, tell her you are pumping me full of morphine and transfering me to Mayo". He came back not 10 mins later, got my surgeon on the phone after 1 ring, she said to him and relayed to me, "DO NOT GIVE HER AN ENEMA, max her out on morphine and get her here ASAP" My response was DUH

    By the time I got there, 3 sheets looped to the wind, it was 5am, the radiologist had been called in to read my xray up in the cities, I was indeed obstructed and just like a well oiled machine, Mayo and her well trained staff took over and I let them!

    stage 3B
    3/12 lymph nodes
    no sign of any spreading
    had to do a colostomy due to the emergency nature of surgery and no time to clean the colon out

    First PET was 5 weeks later, right before starting chemo. Absolutely no sign of mets.

    6 months of chemo, 3 hospitalizations due to wicked side effects

    Colostomy take down Feb 2, 2009
    coloscopy at that time was clear

    Port out in March 2009

    April 2009 CET marker was so low, didn't even register.

    CT scan on June 24, 2009 was clear. 2 hernias showing up, one very large. Will visit with the surgeon at Mayo on July 14, 2009- expecting her to repair hernias on July 15th.

    Struggling with the emotional aspects of this past year. Feels as though I am going through PTSD- trying to stay focused on today and the future, but have these flashes of intense memories- mostly how very sick I was on chemo.

    Thanks for a place to write all of this down- keep thinking if I just keep writing about it maybe that will help.

    Prayers for all of us!

    NED for now and hopefully a long time
    If you count NED from surgery then 15 months NED, if from end of chemo then 9 months NED.
    4/4/08 -DX with a tumor in colon,
    4/16/08 - surgery 15 inches removed along with appendix, 3 positive lymph nodes (3B)
    5/20 - 10/22/08 - Chemo: FOLFOX 6 months/12 rounds
    11/5/08 - Port removed
    12/08 - CT CLEAR
    5/09 - COlonoscopy CLEAR
    6/09 - CT CLEAR

    It seems like a lifetime ago. I have a new job, I am active, I am planning my nephews wedding, I am living MY life.

    Thank God for this board.
  • pamysue
    pamysue Member Posts: 105
    Dxed 4/08, stage 3 rectal,
    Dxed 4/08, stage 3 rectal, surgery 5/08, 12 rounds Folfox. Currently NED and dealing with C Diff Colitis and side effects of Oxliplatin and a pull in my incision.

    I still dread every test and have about given up hope of ever having any kind of 'normal' bowel habits. It's just been one thing after another. I was always so healthy and I am sick and tired of being sick and tired.

    I don't post here as much as I would like to. Trying to keep up with work and the house is about all I can pull off. Been off for 4 days with the C Diff so finally got to come spend some time here. I too read more than I post.
  • peg73
    peg73 Member Posts: 7
    Orange City Florida
    Treated

    Orange City Florida
    Treated prior to Cancer development due to FAP, Colon completely removed, rerouted small intestine, have j-pouch, temp illeostomy in Jan '09. Awaiting reversal...