Hi - I am new and would like to see how others are doing that were diagonised with cancer

2»

Comments

  • naturenaw
    naturenaw Member Posts: 26
    patriot1 said:

    So glad to hear from all of you
    My soft palate cancer was diagnosed last Sept (day before Labor Day), since then as you all know have been sleepless nights and many visits to the radiation departments (35) and to Chemo (4), only 4 because I my body I guess didn't take to the Chemo. I did not have to have surgery all has been with radiation and chemo, which ended on December 8th. I spend most of my December and january in bed and trying to recoop - but February I was in the hospital the whole month (glad it was a short month) with some kind of "bug". March was a very long month of everyone telling me to eat, eat, eat - just what I wanted to do but with extreme dry mouth every bite has to follow with a sip of water.

    I am not complaning, as I know I got off easy compared to many others, I would just like to hear some folks talk about how it has been for them, when do things start to get better. My PET Scan is due at the end of April, and I guess thats when they let you know you are "cancer free" for the time anyway. - I am thinking of this all the time, and I believe is is driving me to depression. But just hearing from you folks makes me feel better. Anyone come up with any ideas about dry mouth, and neck pain?

    Thank you all for getting back to me and please let me know more about your experiences, I am hoping you have suggestions, and comments.

    Thanks a bunch.
    Mary
    lossofdown@aol.com

    I'm new too and 4 year survivor
    I'm new to this forum too and I am a 4 year tonsil cancer (stage 4) survivor. For the dry mouth, the biotene products work well, also chewing orbit sweet mint gum (the sweet mint isn't as "biting" or stinging as regular mint). Walmart here carried the biotene stuff. Also, drinking water with everything also helped. I keep a water bottle by the bedside for the AM when my kids wake me up and want me to talk right away and yet my lips are sealed shut and crytallized dried up from no saliva and no water all night. I just moisten up and am ready to go! I drink lots of water with every meal. For neck pain, mine did go away. I will have stiffness lots now but would not call it pain at all. I will hope this lessens for you over time.

    Keep on praying and I do think every day becomes such an incredible gift you receive! I remember this quote (from a kid's movie I took my kids to, Kung Fu Panda) : yesterday is history, tomorrow is a mystery, but today is a gift. That is why it is called the "present."
    I keep telling myself to enjoy the "present" each day and Thank God each day he has given me.

    About all this stuff driving you to depression, I have felt that way myself and that is why I just looked online and found this place. Just reading a post from someone else to you just now made me realize there are other people out there that are going through the exact things I am too!

    I hoep your PET scan came out OK.
  • sonichirag13
    sonichirag13 Member Posts: 5
    Hondo said:

    Mouth Ulcers
    It’s hard to say how long the mouth ulcers will last people heal differently due to many reasons. I had them all through the first treatment and then about 4 months after the radiation treatment stopped. The second time I did radiation and chemo they lasted longer, I am 3 years from the last treatment and they still sometimes come back but not for long and not as bad. I don’t know how it is in India and if you can get the medicine we get here but there is a mouth wash that helps with the ulcers check with your doctors. I use stoppers 4 mouth spray at night and I am able to sleep all night long with out having to get up every hour to drink water. I get this on line at www.woodridgelab.com or at any CVS pharmacy

    mouth ulcers
    hello hondo,

    when my father finished radiation he was able to swallow without any difficulty but after 10 days of radiation it was more painful and he needs more amount of lignocaine to sooth before drinking.
    and did u feel weakness for long time? my father is still weak. he is doing his daily activities on his own but he is not going outside home. does this also take time?
    we are givig him total nutrition so he has only loast abt 15 pounds and were you able to work after diagnosis?
  • Tricia02
    Tricia02 Member Posts: 129
    Hondo said:

    G’day Rose
    I am glad to hear you are getting better and yes the worse is over, your body will continue to get stronger and your health will get better. As far as the weight you are young so your body should adjust well and start to gain again.

    My NPC came back on me for a 3rd time now the last time about 3 years ago; I treated it the first two times with radiation and chemo but the 3rd time we just used natural herbs and high alkaline foods. The affects of the 2nd time treatment has left me barely able to open my jaw because the doctors did not know much about NPC and what all they needed to do to help me keep the jaw motion going. I have the normal side affects like headaches, pain in the neck, numbness in tongue, deafness in my right ear, and lost of memory, but all in all I am glad that God has extended my life because my Son is getting married May 24 and I will be able to be there for him.

    One thing you can do to help your body so that the NPC does not come back is to stay away from process sugar products, sugar is one of cancer main food source, eat a lot of fruits, the natural sugar in fresh fruits helps the body to fend off radical cancer cells. Eat a lot of Veggie and mix the colors, green, yellow, reds, all are very good for your body. Don’t eat your fruits and veggies at the same time, they don’t mix well eat one or the other at each meal.

    Most of all Pray asking God each day to give you strength and guidance and have as many people praying for you, I will also add you to my list. God bless you always.

    i disagree
    that's a load of bunkum about sugar - herewith info from McMillan Cancer in UK

    "What evidence is there to suggest that cancer patients would benefit from reducing their sugar intake and use other sources for calories (e.g. fat)?"

    I, for one, found their answer very informative. Thanks Macmillan. Here it is:

    "The study of the effects of diet on cancer is a growing area of research. But at present there is still only a small amount of studies that are carried out with the same strict research guidelines, which other areas of cancer research tend to follow.

    Unfortunately this often leads to differing views amongst professionals in this field.

    Research into diet tends to look at two separate areas - cancer prevention and treatment once someone has a cancer diagnosis. There is evidence that diet can affect our risk of developing cancer. However, once a cancer is diagnosed there is no clear evidence that diet can influence how a cancer grows

    Sugar is needed by every cell in our body not only cancer cells. Our bodies need glucose, or simple sugar, for energy.

    Although cancer cells need sugar there is nothing particular about sugar that “feeds” cancer cells any more than sugar feeds all cells in our body. By cutting out sugar you are potentially depriving healthy cells from getting the sugar they need.

    Sugar comes from various sources including simple sugars, fat and protein. So even if you cut every bit of sugar out of your diet, your body will make sugar from other sources, such as protein and fat. Usually it’s a good idea to limit the amount of simple sugar you eat as this is not good for general health.

    Most people can get all their sugar from other sources like fat and protein. However, some people with cancer may not be able to do this. So for them simple sugars may be a good way of getting the energy their body needs."

    I believe this to be a well considered and rounded response, and found it useful to read each paragraph a few times to make sure a) I wasn't missing anything, and b) I wasn't reading anything into this that isn't actually there.

    Clearly, if someone has details of scientific, repeatable, evidence-based, double-blind, peer-reviewed trials on this subject then this would be a good place to let us know - whatever the results show. Otherwise, I think this is about as good a reference point on the subject as we're likely to get right now.
  • sonichirag13
    sonichirag13 Member Posts: 5

    LIfe goes on
    In 95 at 38 yo I was told I had Nasopharangeal Cancer PLUS 4 tumours in my neck - how does a Scotsman get Nasophar? Must have been the fried rice!!!!. I had 38 radios and 4 chemos - methotrexate. Move on to today and yes Im still kicking - HARD.

    Yes it was tough - dripping neck, no hair at the back of my head, mouth ulcers, dry mouth (still got it), poor sense of smell, poor taste buds - Im a Catering Manager, no facial hair under the neck and little on the face - I used to have a beard,severe constipation with the morphine I got cos of my mouth that needed enemas to move it but I AM ALIVE and not complaining. Never give up hope or your faith in your God whoever that may be. And I still havent met another Scot who has had it.

    Good luck to all in your fight and just remember all the hard times are for you to get better and be like me 14 years on encouraging others.

    Ron

    About Normal Reports after treatment
    Hello,

    I am from India and my father also has this cancer.He has finished 35 radio's and 6 carboplatin.Yesterday we did a CT scan and still something is remaining so doctor has suggested biopsy.
    Can anyone tell me that how much time it takes for the report to come normal? Did anybody have any other chemotherapy after finishing concurrent radio and chemo?
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member

    About Normal Reports after treatment
    Hello,

    I am from India and my father also has this cancer.He has finished 35 radio's and 6 carboplatin.Yesterday we did a CT scan and still something is remaining so doctor has suggested biopsy.
    Can anyone tell me that how much time it takes for the report to come normal? Did anybody have any other chemotherapy after finishing concurrent radio and chemo?

    Normal?
    Sonichirag, normal is in the eye of the beholder. In the case of cancer, any predictions are suspect at best. We have no expiration dates, but we also have no stamps of approval.

    So the answer to your ultimate question is No. No one can tell you how long it will take to receive a 'normal' report.

    I can tell you that I DID have additional chemotherapy (and surgery) after my initial bout with surgery, 33 radiation treatments, and chemo, (although in a different area), and that I handled it well. I can tell you that I am now NED (No Evidence of Disease). So there is no reason to give up hope.

    And there is no reason not to do the treatment as long as your father's health is up for it, along with his mind, his heart, his spirit.

    This disease CAN be beaten, and is beaten often. There are many people on this site who can attest to that!

    I am only one of them.

    Best wishes to your father and all of his family and friends, especially yourself.

    Take care,

    Joe
  • Hondo
    Hondo Member Posts: 6,636 Member
    Tricia02 said:

    i disagree
    that's a load of bunkum about sugar - herewith info from McMillan Cancer in UK

    "What evidence is there to suggest that cancer patients would benefit from reducing their sugar intake and use other sources for calories (e.g. fat)?"

    I, for one, found their answer very informative. Thanks Macmillan. Here it is:

    "The study of the effects of diet on cancer is a growing area of research. But at present there is still only a small amount of studies that are carried out with the same strict research guidelines, which other areas of cancer research tend to follow.

    Unfortunately this often leads to differing views amongst professionals in this field.

    Research into diet tends to look at two separate areas - cancer prevention and treatment once someone has a cancer diagnosis. There is evidence that diet can affect our risk of developing cancer. However, once a cancer is diagnosed there is no clear evidence that diet can influence how a cancer grows

    Sugar is needed by every cell in our body not only cancer cells. Our bodies need glucose, or simple sugar, for energy.

    Although cancer cells need sugar there is nothing particular about sugar that “feeds” cancer cells any more than sugar feeds all cells in our body. By cutting out sugar you are potentially depriving healthy cells from getting the sugar they need.

    Sugar comes from various sources including simple sugars, fat and protein. So even if you cut every bit of sugar out of your diet, your body will make sugar from other sources, such as protein and fat. Usually it’s a good idea to limit the amount of simple sugar you eat as this is not good for general health.

    Most people can get all their sugar from other sources like fat and protein. However, some people with cancer may not be able to do this. So for them simple sugars may be a good way of getting the energy their body needs."

    I believe this to be a well considered and rounded response, and found it useful to read each paragraph a few times to make sure a) I wasn't missing anything, and b) I wasn't reading anything into this that isn't actually there.

    Clearly, if someone has details of scientific, repeatable, evidence-based, double-blind, peer-reviewed trials on this subject then this would be a good place to let us know - whatever the results show. Otherwise, I think this is about as good a reference point on the subject as we're likely to get right now.

    Tricia02
    There are two types of sugar, one we get from the natural foods we eat, this is the good stuff that our cells need in order to build new cells and stay strong. Also our bodies make sugar from food with a lot starch again this is again the good sugar.

    The problem comes in the man made form of Sugar that is called process Sugar. I was doing a PET scan a few years ago and the doctor had to inject me first with a low level radiation solution. I said to him that is a lot of radiation you are injecting into me, he laugh and said this is not all radiation. This is a micro size bit of radiation mix with sugar water, I ask him why, he told me because the sugar carries the radiation with it and the Cancer cells are attracted to the sugar. I could only wonder as to why the cancer was attracted to the sugar

    Johns Hopkins did an article on sugar and Cancer I am going to try and send it to you. When my cancer came back for a 3rd time there was nothing that my doctors could do for me except more Chemo that was in May of 2006. I opt for no more treatment, all I did was to Pray and change what I put into my body.

    My last PET scan was two months ago and it showed that nothing has changed, the cancer or what the doctors believe to be cancer is still there but it is not growing or giving me problems anymore. The problems I have are all side affects of the cancer treatment I took in 2003 and 2004.
  • This comment has been removed by the Moderator