Got my date and cocktail...

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Comments

  • SandyL
    SandyL Member Posts: 218
    #22
    Shayenne said:

    I can't...
    ... sleep with anything tied to my waist, heck, I just like sleeping in my underwear and a T-shirt, I let "Seymour" (yes I gave him a name, he is seeing me and helping me more), and I let the whole tubes out the longest, lay it next to me, so if I even turn in my sleep, the tubes are set to just roll with me. I don't sleep well with it on anyway, I look forward to the fusing and disconnecting tomorrow though! 3 down, 9 more to go!

    Hugggsss!
    ~Donna

    I should also mention
    that my husband gets a terrific jaw spasm when he takes his first bite. At first I told him I didn't think that it could possibly be related to the chemo. But, it is. So, if you get that jaw pain-it's from the chemo, indeed. And it will pass after a short time once the pump is removed. And hopefully you won't even have this jaw thing. You'll do just fine.
    Sandy
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #23
    SandyL said:

    I should also mention
    that my husband gets a terrific jaw spasm when he takes his first bite. At first I told him I didn't think that it could possibly be related to the chemo. But, it is. So, if you get that jaw pain-it's from the chemo, indeed. And it will pass after a short time once the pump is removed. And hopefully you won't even have this jaw thing. You'll do just fine.
    Sandy

    jaw thing too
    awww yes i have got that it is very painful and irratating.Godbless...johnnybegood
  • aluckylady
    aluckylady Member Posts: 16
    #24
    johnnybegood said:

    jaw thing too
    awww yes i have got that it is very painful and irratating.Godbless...johnnybegood

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #25
    aluckylady said:

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.

    was worried
    i know how you feel.i go for #2 tomarrow and the anxiety is getting to me.i have felt so good for the past 4 days and i know what is fixing to happen.i am not one who likes to take alot of pills but my husband told me the medicines are there to help you thru this. i am going to talk to my onc to see what she can do to help me thru all of this.maybe even an antidepressent.hang in there.between God and our friens on this site we CAN get thru this Godbless.....johnnybegood
  • aluckylady
    aluckylady Member Posts: 16
    #26
    johnnybegood said:

    was worried
    i know how you feel.i go for #2 tomarrow and the anxiety is getting to me.i have felt so good for the past 4 days and i know what is fixing to happen.i am not one who likes to take alot of pills but my husband told me the medicines are there to help you thru this. i am going to talk to my onc to see what she can do to help me thru all of this.maybe even an antidepressent.hang in there.between God and our friens on this site we CAN get thru this Godbless.....johnnybegood

    Johnny,
    Ask your doctor
    Johnny,
    Ask your doctor about Ativan. Its really helping me. Even though I wasnt a pill taker, rarely took tylenol, I am finding that when I take the ativan, the anxiety and depression isn't as strong.

    I didn't really go into detail much about the past few days. But, depression/anxiety played a big part. I now know, I need to take the ativan just like I do my pills for pain. Its a REAL disease too, and I have to pay attention to it.
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #27
    aluckylady said:

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.

    Wow
    Wow! You're amazing. This thing will NEVER get you down!

    *hugs*
    Gail
  • VickiCO
    VickiCO Member Posts: 917
    #28
    aluckylady said:

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.

    Ah yes, sleeping!
    I, too, had a lot of sleeping when I was on chemo/radiation. I fought it for a while, but eventually gave in. Your body needs it...

    You are a very strong lady. You will be fine! And what a wonderful family. How could we do this without them?

    God Bless YOU! And keep fighting. Vicki
  • CherylHutch
    CherylHutch Member Posts: 1,375
    #29
    aluckylady said:

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.

    Congratulations on Treatment #1
    You did it, Rhonda! So give yourself a big old pat on the back! I'm pretty sure the super energy you had where you could run around shopping, then coming home and doing housework was because of the steroid they give you on Day 1 of your treatment and then for the days you are on the pump. You can get a real buzz off of it that just keeps you going like the energizer bunny :D The one thing I loved about that steroid is it did wonders for my arthritis... it was like I didn't have any!! I could zip around, bend my knees, go up and down stairs with no problems.. it was great!! Then, when you are finished the three days of chemo, you are also finished the steroid... and it's time to CRASH! :D So I'm not sure if it's the lack of taking the steroid or the chemo itself... or the combination of both, but ya... you need your sleep. Everyone reacts a bit differently. I tended to need naps here and there, but for the most part, I kept going... and then would have to take an ativan about 3 hours before I was going to go to bed so that I could actually fall asleep at night.

    Every treatment may be slightly different. Some you will find you need the sleep... others you might not and then will wonder why you aren't tired ;)

    But hang in there! You've got #1 down and over with!! Good going!! :)

    Hugggggs,

    Cheryl
  • usakat
    usakat Member Posts: 610 Member
    #30
    aluckylady said:

    Hi All,
    I have to apologize
    Hi All,
    I have to apologize for just writing in.
    The last few days took a physical,mental and emotional toll on me.

    1st session. All went well. About 4 1/2 hours. Then I came home with the fanny pack. Rested for a bit. Woke up and seemed "normal".

    Day 2. 10am. Went in for about 3 hours. Felt great afterwards. My son has been going with me to the Cancer Center and staying and keeping me company, that and us playing on our laptops.
    We left there and I felt "energized". Having lost over 40lbs now, none and I mean none of my clothes fit. I looked in a mirror walking out of the Center and felt I looked like Dopey, lol. So, I came up with the bright idea to go shopping! We went to Old Navy and I got a couple of shirts. Left there and went to Target and grabbed a couple pairs of Jeans. Grabbed some lunch. Got home, still feeling "energized", I started to clean my bedroom. Just a little picking up here and there. By the time I layed down in bed it was 11pm!!!!!!
    Now mind you this was the first time since I had surgery I had been out of bed for more then 3 or 4 hours at a time. But, "something" wouldn't let me stop. Don't know if it was my nerves or what.

    Day 3. Went in, they removed me from my fanny pack and flushed my pump, took about 15 minutes.
    I came home and rested for about an hour.

    All this time in the back of my mind was where and when these "side effects" would hit.
    ....Woke up with a slight headache, wrote that off to being tired.
    ....Went in the refridgerator to grab some juice...the cold tingly fingers hit, only lasted a few minutes....
    Not a bad day, just slept off and on.

    DAY 4..........(Saturday)I really can't tell you much about day 4. I SLEPT. I have never in my life felt so tired. Every inch of my body just wanted to lay there and not move. Aside from my family monitoring me and making me take my meds I really don't remember much else. I do pray I don't have many more of those days, but, I am afraid they are to come.
    The moments I do remember being awake I remember my heart racing, feeling nauseous from time to time and somewhat shaky.

    Day 5..Sunday...I slept most of the day again :( I really feel bad about this weekend because my baby girl came home from college to be with me and I barely remember seeing her.
    I barely remember anything but praying for this all to be a dream and them handing me meds.

    Guess I am not as tough as I always thought I was. Thought I was super-wife/mom. Here to fix everything for everyone. Always the one to take care of my family. Now I thank God I have them to take care of me.

    A couple of you have mentioned my "name"...I selected that many years ago when we 1st got a computer in the house. I wanted the name IamBlessed...but that name was taken on aol. So I came up with Aluckylady. Because I feel I have indeed been a lucky lady. Now, I question that.

    Thank you all for the warm thoughts and well wishes. I will continue to pray for each and every one of us. I am very thankful to have found this group. You all are such brave people and truly inspirations.

    ...GOD BLESS YOU ALL.

    And blessings to you!
    Hello Lucky Lady!

    Glad to see you are navigating your first round of chemo quite well. As for sleep...your body needs it so answer the call and don't feel badly. You still are Super-Wife/Mom...you are just getting a tune up and recharging your batteries. Besides isn't it the love that makes you super anyway? I'm betting yes...and I'm a lucky lady too, in spite of cancer...because I have the love of a great husband and a wonderful family. Sounds like you do too.

    I'll be keeping you in my thoughts and prayers for comfort, healing and restored health...

    All my best,
    Katie

    What Cancer Cannot Do

    Cancer is so limited...

    It cannot cripple love
    It cannot shatter hope
    It cannot corrode faith
    It cannot destroy peace
    It cannot kill friendship
    It cannot suppress memories
    It cannot silence courage
    It cannot invade the soul
    It cannot steal eternal life
    It cannot conquer the spirit.

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