Rollcall

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Comments

  • devildawg
    devildawg Member Posts: 16
    devildawg, nasopharyngeal,
    devildawg, nasopharyngeal, 2004, michigan
  • jodyman
    jodyman Member Posts: 1
    Rollcall
    jodyman
    Squamous cell carcinoma at base of tongue
    2008
    Texas

    Just started radiation and chemo. Erbitux once a week, radiation daily 7 - 8 weeks (twice a day last 2 weeks if I get there), Carboplatin once every 3 weeks.

    Previously had lung cancer in 2005. Chemo and radiation completed 12/2005. Lungs good now but doctors not very optimistic about prognosis for this one.
  • train-nut
    train-nut Member Posts: 101
    jodyman said:

    Rollcall
    jodyman
    Squamous cell carcinoma at base of tongue
    2008
    Texas

    Just started radiation and chemo. Erbitux once a week, radiation daily 7 - 8 weeks (twice a day last 2 weeks if I get there), Carboplatin once every 3 weeks.

    Previously had lung cancer in 2005. Chemo and radiation completed 12/2005. Lungs good now but doctors not very optimistic about prognosis for this one.

    jodyman's prognosis
    My primary care doc, an internist, had base of tongue SCC with nodal invovement on both sides of his neck. No surgery, chemo and radiation...same treatment plan you have. He is two years post-treatment and cancer free. Be OPTIMISTIC! Were I you I'd be more concerned about the Sooners thumping the Longhorns real good this year. Rich in Tulsa.
  • bany
    bany Member Posts: 38
    train-nut said:

    jodyman's prognosis
    My primary care doc, an internist, had base of tongue SCC with nodal invovement on both sides of his neck. No surgery, chemo and radiation...same treatment plan you have. He is two years post-treatment and cancer free. Be OPTIMISTIC! Were I you I'd be more concerned about the Sooners thumping the Longhorns real good this year. Rich in Tulsa.

    adding my dad to rollcall
    adding my dad to rollcall ok?

    TR2
    SCC of the maxillary sinus
    radical surgery june 2008-no radiation/chemo

    near Ottawa, Canada
  • HAWVET
    HAWVET Member Posts: 318
    Roll Call
    Bany, will add your dad. We will have a roll call in January and I will list the names. (Every six months thereafater). Hopefully, we will all be present and respond. With our type of illness, we never know who would have left us.
  • bany
    bany Member Posts: 38
    HAWVET said:

    Roll Call
    Bany, will add your dad. We will have a roll call in January and I will list the names. (Every six months thereafater). Hopefully, we will all be present and respond. With our type of illness, we never know who would have left us.

    thank you hawvet, i hope so
    thank you hawvet, i hope so too.
  • jagged
    jagged Member Posts: 55
    Rollcall
    Add me please.
    JAGGED
    Carcinoma of unknown primary (CUPS) treated by head, neck, lung oncologists.
    1) Breast cancer: 9/05
    2) CUPS tumor wrapped around esophagus: 5/07
    3) CUPS landed in lungs: 4/08
    Home state: Washington
  • sassyque
    sassyque Member Posts: 44
    jagged said:

    Rollcall
    Add me please.
    JAGGED
    Carcinoma of unknown primary (CUPS) treated by head, neck, lung oncologists.
    1) Breast cancer: 9/05
    2) CUPS tumor wrapped around esophagus: 5/07
    3) CUPS landed in lungs: 4/08
    Home state: Washington

    Jodyman's Prognosis
    Hi Jodyman.I too was digagnosed with cancer at the base of the tongue.The tumor had taken over almost my entire tongue.I did not let them operate because they would have removed my tongue.They gave me no hope at all.That was 5 years ago and I am fine with no reaccurance.I had chemo and radiation and I can have sympathywith anyone that has to go thru this but you must keep the faith.The big man is in charge but we have to believe.Prayer is the best medicine there is and without it I would not be here.Stay strong,you are in my prayers.God bless you....Sassy
  • cwctchr
    cwctchr Member Posts: 2
    HAWVET said:

    Thank you for all who have
    Thank you for all who have responded. For those of you still in need of treatment, I wish you well and will keep you in my prayers.

    There is a total of 17 of us who have responded. I will keep a roster and will have another roll call in January 2009. My hope is that we will all be present 100 percent and we do not lose a soul due to this disease.

    Here is the list:

    NAME STATE
    Bughunter Tennessee
    Christmas California
    Garyr New Mexico
    Geezer Florida
    Hawvet Hawaii
    Jkinobay Arizona
    Ljoy Texas/Minnesota
    Lolojldunn Montana
    Lorileona Wisconsin
    Marywiz15 Colorado
    Slickwilly Michigan
    Sash Florida
    Sassyque Pennsylvania
    TereB Texas
    Train-nut Oklahoma
    Victor 53 Rhode Island
    Wboaz Oregon

    If your name is not listed, it can still be added.

    Mahalo and Aloha

    Tonsilar Cancer
    Name: cwctcher
    tonsilar cancer in 1997
    Virginia
  • cwctchr
    cwctchr Member Posts: 2
    victor53 said:

    Victor Brown
    Tonsil into base of tongue 4cm with a huge lemonsized lymphnode 9cm

    I did 6 weeks of once a week chemo Erbitux Carboplatin Taxol then two week rest
    Now i am in my second week of Radiation for 7 weeks with Cisplatin chemo daily on weeks 1.4.and 7 plus i get double radiation on fridays.
    Then a 4 week rest then surgery is the plan.
    I live in Costa Rica but am now in Rhode Island getting treated at same hospital i was born in 53 years ago. My email is vb53@cox.net i love to talk on phone with anybody who has experience at this email me your phone number and a time to call Thank you

    Tonsilar Cancer
    Victor,
    How are you doing? I am an 11 year survivor of tonsilar cancer. I had 36 radiation treatments and two rounds of cisplatin as well as surgery. Its been three months since your posting, but if you would still like to talk, I would love to hear from you.
  • tom55
    tom55 Member Posts: 10
    Rollcall
    Count me in.
    tom55 Medullary thyroid, August06, Michigan
  • paula002
    paula002 Member Posts: 45
    Rollcall

    Paula002, Nasopharyngeal, 2007, Montreal.
    Greetings to everyone.....
  • hunpot
    hunpot Member Posts: 90 Member
    roll call
    my mom had Squamous cell carcinoma top voicebox Passed on August 18th, 2008 after a brief battle that she fought hard and did everything possible. illness was diagnosed in Feb 07. I come on here to see if people have been affected the same way and if i can give any advice because i was her caregiver and have been through it as well. I wish evryone on her the most success. Massachusetts
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