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reversal question

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

My onc is aginst me getting my reversal done. He said he is afraid of "blockage". I was upset in his office today so he said after chemo we'll do some scans if all looks good we'll talk about the reversal. I'm on number 10 of 12 for the second time around. I've been wanting this since I got the bag in April 2005. Anyone had blockage after the reversal?

fedester
Posts: 757
Joined: Jul 2004

hey jersey girl,
i had reversal approx 4 months after tumor removal but i didn't have a blockage. is the onc also the surgeon??
i would ask alot of questions and maybe get another opinion. so this is a temp bag??
be well
never,ever give up !!!
bruce

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Hey Sue,

Hugs to you!!!!! You know my story about doing everything bassackwards.....but I finally had my bag reversed 2 1/2 years later and have had no problems with any kind of blockage. I had a rectal tumor so I had the lowest foot possible removed/resected.

I woke up during my last colonoscopy in late October and got a real time "tour" of my resection and the scarring was minimal and there was no sign of blockage. Maybe it can increase over time, I am not sure.

I'm also not sure what his rationale is why it could cause more blockage....I would press to ask him specifically why he feels that way.

I would wait at least 6-12 months after chemo to have it done so you will heal quicker and possible have less scarring, etc. Mine was done 15 months after I stopped chemo and I can not imagine doing it any sooner.

Hope this helps.

Lisa P.

chynabear's picture
chynabear
Posts: 483
Joined: Jul 2005

Hi Sue,

I never had to have a bag, but I do have blockages from time to time if I don't watch what I eat. For example, if I am not getting enough fiber and fruit/veggies I will have a blockage. I have never been forced to be hospitalized as I have been able to fix all of mine through diet and excercise and water alone. The blockages tend to be very painful so I keep a careful eye on what I eat. I also asked my gastro about scarring and he indicated and showed me picturs of my scars and they are pretty minimal.

I agree with the others, I would ask a lot of questions beginning with why he thinks you are at risk for blockages and whether you might be albe to control these blockages through the above mentioned.

I hope this helps,

Tricia

oneagleswings
Posts: 425
Joined: Jan 2005

my husband had his ileostomy reversal 6wks after his resecton and before starting chemo..ufortunaltely he ran into problems with both ileus and a blockage caused by baruim which they stupidly used to see if he was healed after the resecton..good luck and "don't let them use barium"..otherwise I'm sure everything will be just fine.
Bev

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Hi Sue,

I had my reversal done 9 months after surgery. During that time, 6 months was dedicated to "clean up chemo" with a 3 month window of rebuilding strength for the surgery. I had absolutely no complications as all. Except for the souvenir scar, no proof that I had it in the first place! My surgeon told me to expect bowel changes for up to 3 years after the reversal. I had and maintained no problems at all from day one. The purpose of the ileostomy as you know is to let the surgery site hear better by re-routing wasted in the colon. I think there would be a greater chance of problems if the reversal is done too close to the surgery date. Not a medical opinion, just common sense.

I guess I would question what he's basing that blockage fear on? His not being familiar with the procedure or your personal history? Maybe a second opinion?

Let me know how things work out.

Hugs,

Stacy

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

sue: you've had the colostomy long enough to know that you want the reversal. Go to the head teaching dude at the hospital and ask for a 2nd opinion. If you get blockages, I woud assume that it would be due to scar tissue from a sloppy surgeon (?) and, if you do have post reversal problems/blockages, you'll be in the hospital anyway, so you can reverse the reversal if needed. KISS method...

suepooh
Posts: 1
Joined: Mar 2007

sue, This is my first time on this site or any site for that matter. I saw the name sue and started reading . I wish you much luck with your reversal. I have had my colostomy for 1 year now .I never new there were so many others out there like me.I went in once for a reversal and blockage removed. still have the bag.Hope next time is the charm for me. I have been reading some of the letters you are receiving and you seem very lucky to have so many friends to suport you. I too am with them DUMP THE BAG

Glv49
Posts: 206
Joined: May 2005

I had my reversal 18 mos. after I had my surgery.. I have had no problems whatsoever. It was a great decision.. and I am happy with it. My surgeon said it was difficult due to scar tissue that I had.. but it works fine, I have had 2 colonoscopies since then and never had any problems.. It will be 4 years since my original dx and surgery this July, I was a Stage IV. I have been NED now since May 2004. Good luck to you!

Gail in PA

66Rose
Posts: 58
Joined: Dec 2006

I have an ileostomy that I received in May 2006 during exploratory surgery.

Then my re-section was October 2006.

Well I was told, IF I did post-surgery Chemo and we all know now I did not, they wanted to wait til after Chemo to do the reversal in case there was complications. Also if you are in Chemo, you normally have to wait 4 weeks after a cycle to have surgery, then another few weeks after to re-coop. So you would be off cycle about 4-6 weeks.

In my case because of radiation I am still not healed in my rectal area and I am now developing lots of scar tissue, already had to have a kidney stint placed. I had a scope and CT last week which came back fine/clear, Yahoo! But my colorectal surgeon called me yesterday and he sees lots of scar tisse in the rectum and wants a Petscan before he will schedule the reversal. At this rate I will have my temp ile for about a year.

So I can completely feel for you, I can't wait to get a reversal! But we have to remember this is elective surgery, so they say, and we do want to be sure everything is "ok" before proceeding!

I get lots of good feed back from the uoaa website, do you ever go there? Since they are all ostomates you can get great information!

God Bless,

Liz

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