Good News and Questionable News

Betsydoglover
Betsydoglover Member Posts: 1,248 Member
edited March 2014 in Colorectal Cancer #1
Hi all -

Last Thursday, I had a PET/CT and the results were to quote my oncologist "fabulous". For the third time there is no evidence of disease. She is now consulting with a National Cancer Institute specialist about the possibility of an RFA to zap the area where the met initially showed up. I'll hear back next week - I'd have to be part of a clinical trial, but apparently there are all levels of trials and I might qualify for one that doesn't require anything like not taking Avastin again if necessary. So, we shall see. She is very positive about my outcome (makes me feel good) and will call me by next Thursday about the outcome of her consults with NCI. So, this is pretty much as good as it gets and if we end up doing RFA, I'm ready.

So, that's the great news.

The not so great news is that I had a mammogram last Friday and my oncologist called to say they want me to come back for further compression to rule out anything. So, I am freaked out. Doc says not to freak out, that it is very common and that she actually doesn't care for the radiology clinic I went to and that she herself always has to have repeat mammograms. But still I am nervous. And also angry, because the clinic told her they had contacted me to return and actually they have not! Damn! (Pardon!) So, tomorrow I call for a more serious - i.e. squish it down even more - mammogram. I am just not sure how I can deal with it if it turns out I have breast cancer too. But, one day at a time. Any good wishes will really be appreciated.

Betsy

Comments

  • mindy10
    mindy10 Member Posts: 182 Member
    Hi Betsy I pray that you get news. You have been through enough and you dont need this. Keep us updated. Mindy
  • JADot
    JADot Member Posts: 709 Member
    Hi Betsy:

    Grrreat to hear your "fabulous" news!!! NED your good friend is with you. That's great.

    Sounds like you may want to use a different radiology shop in the future. It may very well be their mistake but you have to put up with worrying and more discomfort. That's really frustrating! I hear ya about the more squishing. I had to have mine done days after I had my port put in, so it was tugging at a very sore spot already, yikes.

    I think you are doing absolutely the right thing - which is to take it one day at a time, and have faith in what your oncologist's hunch is. Sounds like your onc has been good for you.

    I am beaming good luck vibes to you ~~~~~~luck~~~~~!

    Cheers,
    JADot
  • andyc56
    andyc56 Member Posts: 42
    Hi Betsy, similar story with my wife (stage IIIc) last fall. Felt a small nodule under her arm (I felt it too) and freaked out (understandably!). By the time the mammogram was done, the nodule was gone, and results were clear. Apparently it was some type of "residue" from where her port was inserted.

    It's probably nothing. Sounds like you are doing great!
  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    JADot said:

    Hi Betsy:

    Grrreat to hear your "fabulous" news!!! NED your good friend is with you. That's great.

    Sounds like you may want to use a different radiology shop in the future. It may very well be their mistake but you have to put up with worrying and more discomfort. That's really frustrating! I hear ya about the more squishing. I had to have mine done days after I had my port put in, so it was tugging at a very sore spot already, yikes.

    I think you are doing absolutely the right thing - which is to take it one day at a time, and have faith in what your oncologist's hunch is. Sounds like your onc has been good for you.

    I am beaming good luck vibes to you ~~~~~~luck~~~~~!

    Cheers,
    JADot

    Mindy, JADot - you are already making me feel better! Thanks so much. I'll keep you posted (and I will definitely do my juicing thing tomorrow!)

    Betsy
  • jerseysue
    jerseysue Member Posts: 624 Member
    Glad to hear about NED! I'm sending all my good vibes your way for your other squish! Thoughts and prayers are with you. Sue
  • Moesimo
    Moesimo Member Posts: 1,072 Member
    Betsy,

    Congrats on your NED.

    I know it is easier said than done, but try not to worry too much about the mammagram. I have had to have an ultrasound in the past. It was only cysts. I am sending positive vibes your way.

    Maureen
  • finner
    finner Member Posts: 230 Member
    Good vibes and best wishes are going your way from me.

    Margo
  • kangatoo
    kangatoo Member Posts: 2,105 Member
    finner said:

    Good vibes and best wishes are going your way from me.

    Margo

    hiya Betsy....boobysqeeze?....YOWCH!Sometimes I think us blokes are on the better side of sexuality. I know when Jen had a mammogram she had some unusual spots show so it was back for another go....luckily only some muscle tissue that went...err how do you say..tough...sinewey...something like that. Anyway she was fine but the look on her face after the results came in showed her relief so I can understand how you gals feel now. I like Andy's approach...have a feel.....aw...don't laugh now....I do it also Andy and for the very same reason. Sometimes Jen is not sure what she feels, although she is pretty aware of what to look for....metinks she wants me to check her out just to be a little more confident she misses nothing.
    Nothing wrong with that I say.
    We are hoping that all will be well Betsy, Ross and Jen
  • tkd3g
    tkd3g Member Posts: 767
    Hi Besty,

    Juast wanted to let you know, it's pretty common practice to do additional films. Since my diagnosis, 2 years ago, I have had 2 mammo's. Both times, I was called back for more films.

    It is so common, that my group has you wait till the Radiologist reads the films, before you go. That way, they just get the additional films before they let you go home.

    Think positive thoughts.

    Love to you,

    Barb
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  • Betsydoglover
    Betsydoglover Member Posts: 1,248 Member
    All - thanks so much for the good thoughts, hugs and humor. It helps a lot.

    I have a repeat mammogram scheduled for next Friday PM (unfortunately I couldn't get it sooner). Everyone tells me it is "probably nothing". I intend to enjoy my weekend and not let this consume me (easier said than done, of course). Thanks all.

    Betsy
  • lfondots63
    lfondots63 Member Posts: 818 Member
    Oh Betsy,

    You have me hurting just thinking of the extra "squish" as someone said. I am sending you good vibes and my prayers that this is the radiology dept just doing their job and being extra cautious. Hugs!

    Lisa
  • oneagleswings
    oneagleswings Member Posts: 425 Member
    Hi Betsy:
    Ditto to what everyone else says- a second look is mostly just routine..so try very hard not to let it consume you- I'm sure it will be just fine- but I'll be thinking of you and saying a little prayer.
    Bev