Cologuard Thoughts on a positive finding?

davejc6
davejc6 Member Posts: 9

Cologuard Thoughts on a positive finding? 

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Comments

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited April 2021 #2
    Welcome

    Over the years, here on the forum, we have seen several false postive results from Cologuard.  Every person went ahead and had a colonoscory, to cover their tracks, and were never seen to post here again. 

    I am sure there are millions who do the test, and get negative results when they are negative, or positive when they are positive. I have not seen anyone here - which is, at the end of the day, a small community - say that they started off their journey with Cancer, with a positive Cologuard.

    In my humble opinion, if I had a positive cologuard test, I would definitely follow it up with a colonoscopy. 

    Whatevery your plans, I wish you good luck.

  • davejc6
    davejc6 Member Posts: 9
    edited April 2021 #3
    Trubrit said:

    Welcome

    Over the years, here on the forum, we have seen several false postive results from Cologuard.  Every person went ahead and had a colonoscory, to cover their tracks, and were never seen to post here again. 

    I am sure there are millions who do the test, and get negative results when they are negative, or positive when they are positive. I have not seen anyone here - which is, at the end of the day, a small community - say that they started off their journey with Cancer, with a positive Cologuard.

    In my humble opinion, if I had a positive cologuard test, I would definitely follow it up with a colonoscopy. 

    Whatevery your plans, I wish you good luck.

    cologuard

    Yes I have pne next friday. pretty shocking news 

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited April 2021 #4
    davejc6 said:

    cologuard

    Yes I have pne next friday. pretty shocking news 

    Deep breath

    It will be a long week, I know. 

    Do you have a colonoscopy scheduled for after your PNE or will you wiat for the results of the PNE? 

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    edited April 2021 #5
    Trubrit said:

    Deep breath

    It will be a long week, I know. 

    Do you have a colonoscopy scheduled for after your PNE or will you wiat for the results of the PNE? 

    Colonoscopy

    Colonoscopies are uncomfortable but can give comfort.

  • davejc6
    davejc6 Member Posts: 9
    edited April 2021 #6
    Trubrit said:

    Deep breath

    It will be a long week, I know. 

    Do you have a colonoscopy scheduled for after your PNE or will you wiat for the results of the PNE? 

    I have my colonoscopy 4/23 but the nurse says they see lots of these tests and very little problems . 

     

  • Denise66
    Denise66 Member Posts: 81 Member
    edited April 2021 #7
    My friend had the Cologuard 2

    My friend had the Cologuard 2 years ago. It was negative. Last Friday via a colonoscopy she was diagnosed with rectal cancer. So, the questions are did it miss the cancer?  Was it interpreted wrong?  The cancer she has did it just nto pick up her specific mutation. The doctor told her she has had the cancer for at least 10 years. It was a 8 cm tumor.  

    The end result is colonguard  or may not detect colon cancer.   It does not pick up polyps which are removed during a colonoscopy to prevent colon cancer. If you want to prevent colon cancer and almost 100% rule it in or out you have to get a colonoscopy. 

    [Content removed by CSN Support Team] 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited April 2021 #8
    Findings

    It can have some results that aren't accurate.  If you have one that is positive for possible colorectal abnormal cells, it would be best to follow up with a regular colonoscopy just to make sure.  The prep is the worst part of the procedure, and the procedure itself is done very quickly and you are completely under so you won't notice anything.  Wishing you the best.

    Kim

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    My Rectal Cancer

    My doctor also told me that my rectal cancer was there for about 6-7 years.

    Kim

  • davejc6
    davejc6 Member Posts: 9
    edited April 2021 #10
    Cologuard

    Yes the first few years seems like a great test but hearing lots of bad news lately 

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited April 2021 #11

    Findings

    It can have some results that aren't accurate.  If you have one that is positive for possible colorectal abnormal cells, it would be best to follow up with a regular colonoscopy just to make sure.  The prep is the worst part of the procedure, and the procedure itself is done very quickly and you are completely under so you won't notice anything.  Wishing you the best.

    Kim

    Must ask

    It is best to ask what medication they use during a colonoscopy. Allot of places use Propofol, but the rural hospital I had my colonoscopies, used a sedative, which never really worked on me, so I was awake - albeit drowsy, throughout the whole procedure. Enough that I could feel what was going on, and even see the screen. 

  • Jnap26
    Jnap26 Member Posts: 7 Member
    edited April 2021 #12
    Positive cologuard

    I had a positive one. I had just turned 50 and it was a routine test.  My doctor said to schedule a colonoscopy and they found cancer. I never had any symptoms of colon cancer, no family history. I was pretty healthy. I honestly thought the Cologuard was a false positive. It actually saved my life. The cancer was caught early enough and I was able to have surgery since it had not spread. So please schedule a colonoscopy. I tell everyone to get the colonoscopy because they can remove polyps which can lead to cancer. 

  • davejc6
    davejc6 Member Posts: 9
    Jnap26 said:

    Positive cologuard

    I had a positive one. I had just turned 50 and it was a routine test.  My doctor said to schedule a colonoscopy and they found cancer. I never had any symptoms of colon cancer, no family history. I was pretty healthy. I honestly thought the Cologuard was a false positive. It actually saved my life. The cancer was caught early enough and I was able to have surgery since it had not spread. So please schedule a colonoscopy. I tell everyone to get the colonoscopy because they can remove polyps which can lead to cancer. 

    Positive

    Not what i wanted to see first thing in the morning. With all my seaches you are the first I heard of. I'm happy it worked out for you. 

    It's going to be a long week. I have one friday 

     

     

     

     

  • Jnap26
    Jnap26 Member Posts: 7 Member
    edited April 2021 #14
    Positive

    I am sorry, I did not mean to upset you, just wanted to encourage you to follow up with a colonoscopy. There are a high percentage of false positives and I hope that is the case for you. I just wanted to share my experience. Good luck on Friday. 

  • davejc6
    davejc6 Member Posts: 9
    Jnap26 said:

    Positive

    I am sorry, I did not mean to upset you, just wanted to encourage you to follow up with a colonoscopy. There are a high percentage of false positives and I hope that is the case for you. I just wanted to share my experience. Good luck on Friday. 

    No Worries

    I'm happy you give your experince with this 

    Was it found in 2019? 

  • Tueffel
    Tueffel Member Posts: 327 Member
    edited April 2021 #16
    Europe

    I know it is an American site but I live in Europe. It is not recommended here, apparently it is only in the US. I am sure it is more comfortable than a colonoscopy but a colonoscopy prevents cancer. The most common, adenocarcinoma, develops from polyps that turn malignant. With a colonoscopy you can remove these precancerous lesions. So a colonoscopy is not only early detection but also prevention.

     

  • Jnap26
    Jnap26 Member Posts: 7 Member
    edited April 2021 #17
    Positive

    Davejc6,

    Yes, I had the colonoscopy 11/14/19 and surgery 11/20/19. 

  • davejc6
    davejc6 Member Posts: 9
    edited April 2021 #18
    Tueffel said:

    Europe

    I know it is an American site but I live in Europe. It is not recommended here, apparently it is only in the US. I am sure it is more comfortable than a colonoscopy but a colonoscopy prevents cancer. The most common, adenocarcinoma, develops from polyps that turn malignant. With a colonoscopy you can remove these precancerous lesions. So a colonoscopy is not only early detection but also prevention.

     

    I read your profile

    Sorry to hear about your Dad I'm sure I'm in his age bracket .

    Did he have a syptoms ? Or just a routine check up at stage4 

  • Tueffel
    Tueffel Member Posts: 327 Member
    edited April 2021 #19
    davejc6 said:

    I read your profile

    Sorry to hear about your Dad I'm sure I'm in his age bracket .

    Did he have a syptoms ? Or just a routine check up at stage4 

    I try

    I try to give a lot info on my profile so others might be able to compare. My dad had 3 years before his diagnosis a colonoscopy. The cancer was there but the mucosa looked normal. It was a negative colonoscopy, well done, well prepared. But his nerve got infiltrated by the tumor which caused the little stingy pains. But there was nothing. Now we know a lot more. Months before my dads diagnosis he had the typical symptoms of left sided coolon cancer. The symptoms were obvious but if you basically just had a colonoscopy no one even the doctors did not think of cancer until the diagnosis came. Between his 2 colonoscopy he received meds against MS that diminished his immune cells which only accelerated the growth. In all a case out of million where cancer is even more unpredictable. 

  • davejc6
    davejc6 Member Posts: 9
    edited April 2021 #20
    Tueffel said:

    I try

    I try to give a lot info on my profile so others might be able to compare. My dad had 3 years before his diagnosis a colonoscopy. The cancer was there but the mucosa looked normal. It was a negative colonoscopy, well done, well prepared. But his nerve got infiltrated by the tumor which caused the little stingy pains. But there was nothing. Now we know a lot more. Months before my dads diagnosis he had the typical symptoms of left sided coolon cancer. The symptoms were obvious but if you basically just had a colonoscopy no one even the doctors did not think of cancer until the diagnosis came. Between his 2 colonoscopy he received meds against MS that diminished his immune cells which only accelerated the growth. In all a case out of million where cancer is even more unpredictable. 

    MS

    I seen a few other poeple with MS get this. I wonder if it's the Meds 

    Not trying to be nosiey or anything 

  • Tueffel
    Tueffel Member Posts: 327 Member
    edited April 2021 #21
    davejc6 said:

    MS

    I seen a few other poeple with MS get this. I wonder if it's the Meds 

    Not trying to be nosiey or anything 

    Tbh

    Yes probably. Most of the time you want to decrease the immune system response so the immune system does not attack the CNS. Unfortunately if your immune system is diminished it also decreases the activity to fight mutated cells. I think I read that even longer time on steroids might do it. So if you are immunocompromised you do have a higher risk. Transplant patients have the same problem unfortunately. 

    Unfortunately at this time a drug against T cells was the best option, we did not expect cancer cells to be there and now doctors are running out of options. Maybe if the comonoscopy was done a year later while my dad was immunocompromised things would be different but these thoughts are useless.