"I'm back"

beaumontdave said:

Sorry for the new news, once

Sorry for the new news, once around is more than enough. It's even more unsettling to hear considering that my 111b diagnosis came in 2007 [Sept] as well. That it can show up in the colon after all this time, must be awfully disheartening for you, I really hope it's not malignant. My initial surgery was in the sigmoid section, which though complex, would seem to be a straight forward surgical procedure done in many places. I had a local hospital and surgeon do the original collectomy and then got Kaiser insurance so they did the two resections in my liver when it popped up a couple years later, and again a couple years after that. I thought I'd go to UCLA if it spread beyond a surgical solution, but with work and caring for my wife, the two hour commute seemed a complicated route to go. You being in Vegas that would be a 5 hour one way trip, or getting a room to deal with whatever they required. I recall considering City of Hope as well since they have centers farther out of LA, making the commute easier, but I've heard mixed opinions about them as well, so I'd want to know a lot more about them. Im curious as to whether this would be considered a new cancer or somehow a recurrance?  Best of luck in your choices and outcomes, firstly that it's not cancer, and secondly that if it is they get it all cleanly and quickly..........................................Dave

Hi Dave,  thank you for your response.  I am so sorry you have been through so much.  I am having biopsy this Thursday then planning on going to Mayo in AZ.  The oncologist here did not want to give me any information until he got the biopsies.  I hate that they don't want to discuss the "what if's".  I want to be educated so I can make decisions.  I asked him if it is cancer would it be Stage IV.  He said most likely would be a new cancer and have it's own Stage but depends on results. The active areas seem to be close to the anastomosis. My 1st cancer experience was horrible as they misdiagnosed it for 2 years.  Blamed everything on "female problems" many surgeries including hysterectomy.  Finally had emergency surgery for a 2 bowel obstructions and they found the lemon size tumor.  I will be proactive and they will have to understand.

I will keep you up to date as I find out more.

Thank you for all your kind thoughts....right back at ya.

Debbie

yetti said:

CTCA. In Arizona

Hi grammaDebbie , I'm a patient at CTCA in GA, which is great cancer center, I went there for a 2nd opinion stage 4B endometrial cancer, onc in fla wanted to continue chemo after CTCA said I was NEd I'll be NEd 2 yrs April 2021,  ??? for you for upcoming procedure , please keep us posted, Yetti

Hi Yetti,  So glad to hear that  you are NED.   I will continue to pray for you.  We know that is what gives us the ability to fight this beast.  The Drs originally told me I only had a 50 - 50 chance of surviving 1 year.  I will continue to be proactive and educate myself.  Thank you and keep me updated and I will do the same.

Praying,

Debbie

wolfen said:

Debbie, so sorry to hear the

Debbie, so sorry to hear the "beast" may be lurking again.

MD Anderson has a center here in the Phoenix area also, part of Banner Health. My husband went there in 2012 for Head & Neck and Lung Cancers. It was relatively new then and a bit disorganized, but I do believe he received good care.

Wishing you the best outcome.

Thank you for your response and information.  I will check that out.  Currently going to Mayo AZ for 2nd opinion but you never know.  May want a third.

Thank you for y our kind thoughts.

Debbie

AnneO1965 said:

Good luck!

Hi Debbie,

If you have an MD Anderson near you, go there.. I started my treatment at the Houston center and they were wonderful. So sorry that you are dealing with the beast a second time. I'm going through the whole cancer thing again, but this time it's lung cancer. You do what you have to do, and if the doctor is an ashhat, tell them you want a different one.

Hi Anne,  thank you for your recommendation.  I am going to Mayo Clinic in AZ for a 2nd opinion.  Just waiting for paperwork to be completed and then will start their process.  I'm having a colonoscopy tomorrow and hopefully get the biopsies back soon.  So sorry that you are dealing with this beast again.  I will keep you in my prayers

Hello friends,   I had my colonoscopy yesterday and it looked good.  He see "Findings suspicious for 2 areas of active malignacy in the sigmoid colon" from the PET/CT scan.  The PET scan showed the size of a peanut and one the size of a grape.  The colonoscopy showed an area that was a little red and he biopsied it but thought it was just irritation.  Boy am I confused.  Any suggestions.  See oncologist next week and get biopsies back next week.

grammadebbie said:

UPDATE

Hello friends,   I had my colonoscopy yesterday and it looked good.  He see "Findings suspicious for 2 areas of active malignacy in the sigmoid colon" from the PET/CT scan.  The PET scan showed the size of a peanut and one the size of a grape.  The colonoscopy showed an area that was a little red and he biopsied it but thought it was just irritation.  Boy am I confused.  Any suggestions.  See oncologist next week and get biopsies back next week.

Biopsy Showed NO CANCER Thank You Lord!   I was able to find the biopsy report online 3 days ago thru my health network.  I still would be waiting for Drs results.  I think thats horrible for Drs to have results and not call right away.  I have appt tomorrow.