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Lynparza

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

Ok so I am 8 years out! I’ve had 2 surgeries on my lung because of recurrence from UPSC ! I have also had radiation at the beginning and 2 sets of chemo! Carbo and Paclitaxol. I am suppose to start Lynparza because o have an mutation in my BRCA sequence. I’m not necessarily BRCA positive! Probably from chemo! I am afraid of side effects from it!  I have been doing homeopathic medicine for awhile! Also essential oils I’m not sure what to do!! It’s so hard to make a decision!? Tami Ayers Erie Pa

TAyers's picture
TAyers
Posts: 86
Joined: Aug 2012

 

TAyers's picture

Posts: 85
Joined: Aug 2012

Lynparza

Ok so I am 8 years out! I’ve had 2 surgeries on my lung because of recurrence from UPSC ! I have also had radiation at the beginning and 2 sets of chemo! Carbo and Paclitaxol. I am suppose to start Lynparza because o have an mutation in my BRCA sequence. I’m not necessarily BRCA positive! Probably from chemo! I am afraid of side effects from it!  I have been doing homeopathic medicine for awhile! Also essential oils I’m not sure what to do!! It’s so hard to make a decision!? Tami Ayers Erie Pa

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HisChild
Posts: 5
Joined: Nov 2020

Hello Tami.  I know this is an old post and I hope this finds you doing well.  I was just wondering if you decided to do the Lynparza or not?  I'd also like to know what homeopathic medicine you were or are using.   My doctor is also recommending Lynparza and I too am having difficulty making a decicsion.

 

God Bless You

Nora

cmb's picture
cmb
Posts: 614
Joined: Jan 2018

Nora,

Tami hasn't been on the board since 2019, so unfortunately, she probably won't see your question.

I'm sorry you haven't gotten a response to your original post on Ovarian board regarding Lynparza. PARP inhibitors are more frequently prescribed for ovarian versus uterine cancer, so I was hoping someone from that board would share their experience with you.

In the meantime, however, please feel free to continue posting on this Uterine board as you have your second opinion next week. There are a few of us with carcinosarcoma who are currently posting on this board. In addition, there are many other women with different, but equally aggressive types of cancer.

I'm also including a link to your original post on the Ovarian board as not everyone on the Uterine board reads those posts. But you gave a lot of good information in your first post, especially considering this is the second cancer you've had to deal with recently.

https://csn.cancer.org/node/322508

I did see this relatively current article about PARP inhibitors at:

https://www.cancer.gov/news-events/cancer-currents-blog/2019/parp-inhibitors-ovarian-cancer-initial-treatment

Let us know how your appointment with Stanford goes next week.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2853
Joined: Mar 2013

cmb, thanks for picking this up. 

I have met Tami in Washington DC, probably in 2013 or 2014???  When I saw this I reached out to her and great news is she is still doing ok!  

Love23
Posts: 8
Joined: Feb 2019

Thank you fo the great news!!

cmb's picture
cmb
Posts: 614
Joined: Jan 2018

Thanks, NoTime, for the update on Tami. We always hope that when someone stops posting it's because they've moved on with their life, but it's great to get confirmation.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1728
Joined: Jun 2015

Such great news NoTime! Thanks for taking the time to reach out and then share it with us.

CMB - I've said it before.... But it is worth doing so again.... You are such a wonderful support person on our forum. Thanks for all of your efforts.

Love and Hugs,

Cindi

cmb's picture
cmb
Posts: 614
Joined: Jan 2018

Cindi,

We all make valuable contributions to this board, so I'm happy to help where I can.

txtrisha55's picture
txtrisha55
Posts: 687
Joined: Apr 2011

Wishing you luck on your decision.  I have not had a recurrence nor taken this drug but just wanted to know that I will be praying for you and for you to make the best decision for you. trish

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