Colorectal Cancer in Lungs

Welcome to the forum

I am sorry that you find yourself here, on behalf of your girlfriend. 

While I can't offer anything other than a welcome, I know we have several on the forum who are dealing with, have dealt with lung mets.  One of our members, NewHere, has multiple lung mets. I do so hope he pops in and sees your thread, as I am sure he will have wonderful things to tell you. 

A Cancer diagnosis can be all-consuming. Try your best to widdle a little time in the day, where it is the last thing on your mind. It may still be on your mind, but not at the forefront. Even for an hour.  Some good music, a long walk, anything that will give you both some respite from the 'What if's'.

Folks pop in often, though not always on a daily basis; so hang in there and check back with us often. 

Tru

Trubrit said:

Welcome to the forum

I am sorry that you find yourself here, on behalf of your girlfriend. 

While I can't offer anything other than a welcome, I know we have several on the forum who are dealing with, have dealt with lung mets.  One of our members, NewHere, has multiple lung mets. I do so hope he pops in and sees your thread, as I am sure he will have wonderful things to tell you. 

A Cancer diagnosis can be all-consuming. Try your best to widdle a little time in the day, where it is the last thing on your mind. It may still be on your mind, but not at the forefront. Even for an hour.  Some good music, a long walk, anything that will give you both some respite from the 'What if's'.

Folks pop in often, though not always on a daily basis; so hang in there and check back with us often. 

Tru

CHuffed

Tru I saw an interview with the Mayor of London yesterday.  He said chuffed.  Interviewer did not know what it mean.  I did 

 

Friend from Pa.

I also have shown small lung nodules. I came through great with my colon resect at Wayne Memorial in Honesdale. Mets to liver. did 22 rounds of chemo and my liver surgeon at Geisinger keep telling me that she didn't see anything in there so she never really did any surgery for my liver. I have a friend that refered me to Hershey so I went in early Oct. Hershey did a CT of chest and liver MRI. The liver surgeon that I met told me that a liver resection would clear my liver of the cancer however the lung nodules that showed on the CT scan put a damper on that. I am back on chemo to see if we can clear the lung nodules. I will be rescaned at Hershey Jan.8th Hoping and praying. Geisinger missed their window. I really can't do anything about it now except for what I'm doing. Hope everything works out for you.

80 lung mets, part of lung removed, tumors in spine & everywhere

As Tru said, that is me

Please check this link, a recent update from August

https://csn.cancer.org/node/322051

Look into getting genetic testing now and start keeping an eye out for trials and developments.  

Do not give up hope.  The 5 year survival rate for me was 10%.  I am about to start my 6th year since this started.  3 years since my cancer came back everywhere, inoperable and not curable.  Part of the issue was some were too close to the spine, too risky of bleeing out or paralyzed.  And with the involvement with both lungs when it came back, was not really an option.  Kind of like playing whack-a-mole.  They would not even due ablation.  Too many tumors and they preferred not to put me through things that were not going to really work.  (They were considering radiaiton earlier this year for a tumor that was closing my airway, they don't know how I did not have problems breathing, the exercise I mention later.  )  Which may be the issue of what is happening with Heather.  If she is responding to chemo, keeping things at bay that way may be the prudent course of action.  When my cancer came back the third time, they actually waited a year to put me back on my second chemo.  The things were small enough that there was no symptoms.  I was still asymptomatic a year later, but they had grown enough that there was no longer a choice.  (The ones in my spine did begin to cause some pain.)  Something to consider and remember - when I was diagnosed almost 6 years ago, Lonsurf was not used for colon cancer.  As of two months ago, it is shrinking my cancer.  

More details on my situation https://csn.cancer.org/user/237551  Please take a couple of minutes to go through it.  Basically I started exercising a lot three years ago when it came back the thrid time in three years.  Swim Bike Run (Triathlon)  Though my wife says I act like a 5 year old, I am 15 years older than Heather.  I am not a natural athlete and loathe running.  But instead of being on a couch hooked up to oxygen, I swim, bike, run.  Even did a 1/2 Ironman while on chemo.  (I am very slow though )  

I do some keto 16:8, eat generally well (not a specific diet, but generally eat vegatables, fruit, and non-red meat, though will have red meat occasionally and dessert when out for dinner). I would add exercise as one thing for sure - my cardio has compensated for the cancer the doctors are pretty sure.  Look at some low cost/risk supplements.  Vitamins and stuff.  Make sure they are cleared by your oncologist if on chemo, some can conflict.  

I had a scan today and bloodwork.  Saw one of the tumor markers (CEA change) and took a look at the scan.  I have gotten better at them, but still not perfect.  Will find out later this week and will post back.

Feel free to ask me any questions, DM if you like.  Try not make sure not to get too down.  It does happen during this, but shaking it off as quick as possible helps.  (Seeing Alex Trebeck passing away the other day kind of hit me, like whan anyone famous passes from cancer.)

Sorry the above is a little bouncing around, but saw your post and wanted to get some thoughts in, have something I need to get to shortly, but wanted to tune in.