new member from the nederlands

m@rtin
m@rtin Member Posts: 11 Member
in Kidney Cancer #1

hello everyone 

myname is martin 47 yaer old end i live in the nederlands . left kindney removerd two monds ago tumor stage 3a aggressivenes2 no metastases . in the nederland there is little information about kidney cancer so i hope to find a lot of infermation here .

i write my tekst with google translate . in the nederlans there is littje information about the chances of recovery about kidney cancer ,i would like to know what my chances are . what read on the internet is that it is high risk on return 

i signed themup for checkmate 914 now . 

best regards

m@rtin

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #2
    What was the size of your tumor?

    What was the size of your tumor?

     

     

    icemantoo

  • donna_lee
    donna_lee Member Posts: 1,042 Member
    #3
    Q & A

    3a says it hasn't involved the nodes or metastasized. But, you will need to be vigilant with follow up exams (computer tomography/CT's or chest x-ray with abdominal untrasound.  IF-a big IF, it shed a cell or two before it was removed, they can go anywhere once they get into the blood stream.

    Mine would be considered a 4b (they added a new category after my surgey in 2006) as it had mets to the liver and a set of nodes.  It did reoccurr in 2 separate nodes in 2007 and 2008, which were both removed surgically.

    Click on my user name to find out more about my experience.

    Glad you found this board.  There are a bunch of long timers who can hold your hand and send air hugs.

    donna_lee

  • m@rtin
    m@rtin Member Posts: 11 Member
    edited September 2020 #4
    donna_lee said:

    Q & A

    3a says it hasn't involved the nodes or metastasized. But, you will need to be vigilant with follow up exams (computer tomography/CT's or chest x-ray with abdominal untrasound.  IF-a big IF, it shed a cell or two before it was removed, they can go anywhere once they get into the blood stream.

    Mine would be considered a 4b (they added a new category after my surgey in 2006) as it had mets to the liver and a set of nodes.  It did reoccurr in 2 separate nodes in 2007 and 2008, which were both removed surgically.

    Click on my user name to find out more about my experience.

    Glad you found this board.  There are a bunch of long timers who can hold your hand and send air hugs.

    donna_lee

    tumor size was 10 cm the was

    tumor size was 10 cm the was in the area around the kidney but not outside the kidneycapsule . i signed up for the checkmate 914 study .  imuum therapy is then used preventvely to kill any remaining cancer cells. what i understand is that i have a high risk of cancer recurrence. thank you all for your messages

    best regards

    m@rtin

  • Mmoses25
    Mmoses25 Member Posts: 321 Member
    #5
    m@rtin said:

    tumor size was 10 cm the was

    tumor size was 10 cm the was in the area around the kidney but not outside the kidneycapsule . i signed up for the checkmate 914 study .  imuum therapy is then used preventvely to kill any remaining cancer cells. what i understand is that i have a high risk of cancer recurrence. thank you all for your messages

    best regards

    m@rtin

    I’m 3a also

    sorry you had to come here try not to read to much on internet because it's old news just keep up with your scans and try not to worry I know it hard not to but if you have any questions just ask someone will answer you on here I was 3A and the size of mine was 4.1 cm

  • Biner
    Biner Member Posts: 136 Member
    #6
    I'm pt3a too but grade 3, I

    I'm pt3a too but grade 3, I had 2 oncologist opinions and I declined the trial checkmate

  • m@rtin
    m@rtin Member Posts: 11 Member
    edited September 2020 #7
    Biner said:

    I'm pt3a too but grade 3, I

    I'm pt3a too but grade 3, I had 2 oncologist opinions and I declined the trial checkmate

    hello biner why did you

    hello biner why did you refuse the checkmate study if i think may ask? iwas told that there is a 50% chance of the cancer returning  wich made me decide to participate in the study. i know side effects can occur but i hope that will not last. the idea suonds good to use imuum therapie as a preventive measure . 

    best regards

    m@rtin

  • Biner
    Biner Member Posts: 136 Member
    #8
    No proof 

    No proof that it prevents recurrent, worst side effects can lead fails organs 

  • jag28
    jag28 Member Posts: 3
    edited September 2020 #9
    I know what you are feeling (Stage III RCC survivor)

    Hello.

    I had a 17cm tumor. I lost my left kidney and the biospy was conducted after the surgery ... Stage III N0 M0. In October 2020, I have my 2 year check. In

    In my surgery, the Kidney and 5 lymph nodes were removed. The lymph nodes were cancer free ... so no other threatment was recommended. I thought I would need ImmuneTheraphy. 

    Can I please ask, what is this checkmate 914 study?

    Thank You, John.

     

  • m@rtin
    m@rtin Member Posts: 11 Member
    edited September 2020 #10
     Checmate 914 study is to use

     Checmate 914 study is to use  imuumtherapie  as a preventieve measure  to kill remaining cancer cells.    Google checkmate 914

    Best regards m@rtin

  • Biner
    Biner Member Posts: 136 Member
    #11
    Yes, there are clinical

    Yes, there are clinical trials such as the one you mentioned: ipi-nivo (dual immunotherapy) vs intravenous placebo (saline solution). You would have a 50% chance of getting either. Again, this is controversial. Do you need ipi-nivo now -- or would it be better to wait for such a time IF (IF!) your disease recurs. There is some scientific thinking that suggests that immunotherapy will work better if there is enough tumour in the body (vs what you might have now -- microscopic cells). So for this option as well I would suggest a second opinion before you sign up.

  • m@rtin
    m@rtin Member Posts: 11 Member
    #12
    In melanomen ( skin cancer) i

    In melanomen ( skin cancer) i think onocologist  also use imuumtherapie as a preventive measure  ,and when the cancer returns  imuumtherapie can still be used  it still seems  to work.  I am only 47 years old and i will nog wat for the cancer to return,then i am still too Yong. I want to do everything i can to prevent it from returning .if  i was 70 years i might have waited  and not  participated  in the study.  I have already registeren for the stuy 

     

  • Michael_B
    Michael_B Member Posts: 4 Member
    #13
    Second Opinion

    I've gotten three opinions on enrolling for CM 914; two oncologists and one urologist/surgeon.  All three say signing up is "no brainer."  So we shall see.  I can withdraw at any time.

     

  • m@rtin
    m@rtin Member Posts: 11 Member
    #14
    hello michael

    hello michael

    take a look at smartpatiens there is my conversation on checkmate . there are two more participants to be found there . i,m glad i participates my onocologist says that people who undergo a reaction benefit better from the imuun therapy. ifthe cancer does not return , i will happily pay the price that my adrenal glands stop working

    martin

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