Long term survivors with recurrent poorly differentiated

GinnyO19
GinnyO19 Member Posts: 3
in Breast Cancer #1

First,  for anyone out there reading this, I’m a 35 year, Stage 2 survivor !!

I was 34 in 1985 and had only radiation and partial mastectomy.  Now after enjoying the last 35 years of being cancer free, it has returned. I just got the biopsy report, minus some of the hormonal results and one area is a high grade ductile with necrotic center and the other is invasive ducal poorly deffereniated. I’m no longer a candidate for radiation as they used the higher doses back in the 80’s, so I’ve had my life time dose. Any one else with poorly differentiated with no radiation option? 

 

Comments

  • Vickye
    Vickye Member Posts: 9
    #2
    Long term survivor with new case of cancer in remaining breast

    Hi Ginny,

        I am so sorry to hear of the return of your cancer after so many years. I had bc and a full mastectomy in 1987, Stage II b, 2 poitive lymph nodes.  I was 34, also. I was treated with 6 months of chemo and no radiation.  I remained cancer free for 30 years.  In 2018 I had a new case of cancer in my existing  breast.  Stage IIIc with one positive lymph node. I was treated with Chemo before surgery  adramycin/ cytoxin  then taxol.  Had another mastectomy and was treated with 6 months of Xeloda for prevention of recurrence.  Now I have just finished 25 rounds of radiation for prevention, also. It is really hard to accept that you have cancer again after so many years of being cancer free. I hope all goes well for you. I am on chat with many other really nice and understanding people often ,we'd be happy to have you join us. Take care. Hugs! Vickye

  • GinnyO19
    GinnyO19 Member Posts: 3
    #3
    Vickye said:

    Long term survivor with new case of cancer in remaining breast

    Hi Ginny,

        I am so sorry to hear of the return of your cancer after so many years. I had bc and a full mastectomy in 1987, Stage II b, 2 poitive lymph nodes.  I was 34, also. I was treated with 6 months of chemo and no radiation.  I remained cancer free for 30 years.  In 2018 I had a new case of cancer in my existing  breast.  Stage IIIc with one positive lymph node. I was treated with Chemo before surgery  adramycin/ cytoxin  then taxol.  Had another mastectomy and was treated with 6 months of Xeloda for prevention of recurrence.  Now I have just finished 25 rounds of radiation for prevention, also. It is really hard to accept that you have cancer again after so many years of being cancer free. I hope all goes well for you. I am on chat with many other really nice and understanding people often ,we'd be happy to have you join us. Take care. Hugs! Vickye

    Thanks for your Shari g !! I

    Thanks for your Shari g !! I’ll look forward to seeing you in the chat room . I didn’t know they had one !! 

  • mel santiago
    mel santiago Member Posts: 1
    edited February 2020 #4

    I really thought I was done. Lupectomy, radiation, 6 months chemo. Mass is only 6mm, but I am worried it is in the lymph nodes.  Also have to have a masectomy. Should or should not have reconstruction . Would like it but dont know anyone in my situation Thank you for any advice  just found out yesteday  HELP!

  • My Lan
    My Lan Member Posts: 7 Member
    edited April 2021 #5
    Vickye said:

    Long term survivor with new case of cancer in remaining breast

    Hi Ginny,

        I am so sorry to hear of the return of your cancer after so many years. I had bc and a full mastectomy in 1987, Stage II b, 2 poitive lymph nodes.  I was 34, also. I was treated with 6 months of chemo and no radiation.  I remained cancer free for 30 years.  In 2018 I had a new case of cancer in my existing  breast.  Stage IIIc with one positive lymph node. I was treated with Chemo before surgery  adramycin/ cytoxin  then taxol.  Had another mastectomy and was treated with 6 months of Xeloda for prevention of recurrence.  Now I have just finished 25 rounds of radiation for prevention, also. It is really hard to accept that you have cancer again after so many years of being cancer free. I hope all goes well for you. I am on chat with many other really nice and understanding people often ,we'd be happy to have you join us. Take care. Hugs! Vickye

    Sorry to hear cancer return,

    Hi Ginny

     

    Sorry to hear cancer return, did it return the same breast ?

  • My Lan
    My Lan Member Posts: 7 Member
    #6
    Vickye said:

    Long term survivor with new case of cancer in remaining breast

    Hi Ginny,

        I am so sorry to hear of the return of your cancer after so many years. I had bc and a full mastectomy in 1987, Stage II b, 2 poitive lymph nodes.  I was 34, also. I was treated with 6 months of chemo and no radiation.  I remained cancer free for 30 years.  In 2018 I had a new case of cancer in my existing  breast.  Stage IIIc with one positive lymph node. I was treated with Chemo before surgery  adramycin/ cytoxin  then taxol.  Had another mastectomy and was treated with 6 months of Xeloda for prevention of recurrence.  Now I have just finished 25 rounds of radiation for prevention, also. It is really hard to accept that you have cancer again after so many years of being cancer free. I hope all goes well for you. I am on chat with many other really nice and understanding people often ,we'd be happy to have you join us. Take care. Hugs! Vickye

    Bilateral mastectomy

     

    hig Vicki

    I had DCIS 5cm, stage1 IDC 1,7 cm. 0.8cm, 0.4cm, 0.2, 0.2cm all on left breast and right breast I had DCIS stage0 0.8cm, stage1 0.9cm. I had 4 chemo, 15 radiation on left breast only,  bilateral  mastectomy , now on Tamoxifen.  I am really scare, please I need mentally support.  sorry to hear your cancer come back.  did it come back the same breast

  • My Lan
    My Lan Member Posts: 7 Member
    edited April 2021 #7
    Vickye said:

    Long term survivor with new case of cancer in remaining breast

    Hi Ginny,

        I am so sorry to hear of the return of your cancer after so many years. I had bc and a full mastectomy in 1987, Stage II b, 2 poitive lymph nodes.  I was 34, also. I was treated with 6 months of chemo and no radiation.  I remained cancer free for 30 years.  In 2018 I had a new case of cancer in my existing  breast.  Stage IIIc with one positive lymph node. I was treated with Chemo before surgery  adramycin/ cytoxin  then taxol.  Had another mastectomy and was treated with 6 months of Xeloda for prevention of recurrence.  Now I have just finished 25 rounds of radiation for prevention, also. It is really hard to accept that you have cancer again after so many years of being cancer free. I hope all goes well for you. I am on chat with many other really nice and understanding people often ,we'd be happy to have you join us. Take care. Hugs! Vickye

    Forgot to ask. Your first cancer was Er+; Pr+ and Her2 negative

    Hi vickye

    Was your cancer hormonal positive Her2 negative 

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