Newly diagnosed - need advice

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Comments

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    #22
    KitKat3 said:

    Post surgery

    thanks for all the great advice it served me well. I am home post surgery and on my way to recovery. Was in hospital for a week due to low blood pressure but all ok now. Results are in and margins are clear and 22 lymph nodes taken also clear - what a great Christmas present. Waiting now for next steps. 

    Great results

    It sounds like you got great results.  Here's to hoping for a future without chemo!

  • KitKat3
    KitKat3 Member Posts: 17
    #23
    SandiaBuddy said:

    Great results

    It sounds like you got great results.  Here's to hoping for a future without chemo!

    Chemo or not?

    Yes I’m reading lot of trial data and not seeing benefit to OS or DFS for chemo with my results from surgery. Any thoughts? I know people don’t like giving advice just experiences.

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #24
    So happy to hear you are done with surgery

    Heal well, and I wish you luck as you make your chemo or no chemo decision. 

    Tru

  • SandiaBuddy
    SandiaBuddy Member Posts: 1,381 Member
    #25
    KitKat3 said:

    Chemo or not?

    Yes I’m reading lot of trial data and not seeing benefit to OS or DFS for chemo with my results from surgery. Any thoughts? I know people don’t like giving advice just experiences.

     

    Chemo

    That's a bit of a hot topic here lately.  I can only speak for myself.  As a 3b, chemo gave me a 10% increase in survival chances.  It almost killed me and caused what seems to be permanent heart damage, among other things.  I wish I had not done it.  Hopefully it is not an issue you will need to address. But I would encourage you to be educated on the issues when you talk to your oncologist 

  • KitKat3
    KitKat3 Member Posts: 17
    edited December 2019 #26
    SandiaBuddy said:

    Chemo

    That's a bit of a hot topic here lately.  I can only speak for myself.  As a 3b, chemo gave me a 10% increase in survival chances.  It almost killed me and caused what seems to be permanent heart damage, among other things.  I wish I had not done it.  Hopefully it is not an issue you will need to address. But I would encourage you to be educated on the issues when you talk to your oncologist 

    Chemo

    thanks yes I have been doing a lot of research. Sorry to hear of your heart troubles.

  • Kazenmax
    Kazenmax Member Posts: 463 Member
    #27
    Take your time to heal. Walk

    Take your time to heal. Walk when you can. We will be with you all the way.

    k

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #28

    Glad the surgery went well and you are home recovering.  You had awesome news with your pathology report too.  Just remember to get rest and walk, walk, walk.  Hope your recovery is quick.

    Kim

  • KitKat3
    KitKat3 Member Posts: 17
    #29
    Kazenmax said:

    Take your time to heal. Walk

    Take your time to heal. Walk when you can. We will be with you all the way.

    k

    Thanks

    Thanks

  • KitKat3
    KitKat3 Member Posts: 17
    #30
    Annabelle41415 said:

    Glad the surgery went well and you are home recovering.  You had awesome news with your pathology report too.  Just remember to get rest and walk, walk, walk.  Hope your recovery is quick.

    Kim

    Thanks

    Thanks

  • KitKat3
    KitKat3 Member Posts: 17
    #31
    Trubrit said:

    So happy to hear you are done with surgery

    Heal well, and I wish you luck as you make your chemo or no chemo decision. 

    Tru

    Thanks

    Thanks

  • myAZmountain
    myAZmountain Member Posts: 417 Member
    #32
    So glad to hear your surgery went well!

    And that you are home and recuperating--I am a right hemi-colectomy myself--just a "semi-colon" now.  Ver good news that the margins/lymphnodes were clean, have you had any other scans done to check liver/lungs etc.? 

  • KitKat3
    KitKat3 Member Posts: 17
    #33
    myAZmountain said:

    So glad to hear your surgery went well!

    And that you are home and recuperating--I am a right hemi-colectomy myself--just a "semi-colon" now.  Ver good news that the margins/lymphnodes were clean, have you had any other scans done to check liver/lungs etc.? 

    Other checks

    Hi and thanks. I had CTs and did not show anything scary. Surgeon did mention she took some of my stomach lining will find out more Friday.

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