4 Days Post CVP

Hello,

My name is Nicole. My 59 year old healthy mother has just had her first round of six CVP cycles. Today is day 4 post her first infusion. There were no complications, discomfort or pain during her session. Her port worked well and she remained in incredibly high spirits. Appetite has not been a concern, nor has her ene. August of this year she had her kidney removed due to a renal cell mass that was under 2 inches in size. Only previous symptoms was unknown neuropathy in her finger tips and toes. She had a fall in October of 2018 On her tail bone. Neurosurgeon has deemed the slight stynosis in the upper vertebrae may have caused some of that neuropathy, but after nerve studies it has been determined to be unknown. I introduced her to alkaline semi-vegan eating. She has cut out all red meat, processed foods, carbonated drinks and most animal products. She drinks 64-128oz of alkaline water a day. Fresh green juice made with a masticating juicer is supplemented with turmeric, reishi mushroom powder, chlorella, ginger and hemp powder. She also gets fresh orange, turmeric, ginger, pineapple juice that I make for immune shots daily. Black seed oil is taken once a day. Her oncologist, an amazing man who is recognized by his former employer, th Mayo Clinic for his excellence in the are of treating NLPHL, is astute and a proponent of complimentary treatments. 

Mom is 5'11" and weighs 155lbs. Though she was a bit heavier pre-surgery, she's very svelte. Always a balk of energy with a light that shines so brightly, everyone around her is drawn into her warmth. She's the type who even transfers stop to smile and talk with or ask for a hug from her. I can't explain her spirit and exuberance. Today when I saw her laying down on a day she's normally be up heading to worship services, I knew she was a bit out of sorts. Within moments of walking into the house, she lit up and rattled off what she had eaten for breakfast with a huge smile on her face. She remarked that though she feels sluggish, she won't allow it to get her down. I wonder what we should be doing or know to look for as she moves through this. Her infusions are on a 3-week cycle. Aside from Warfin (Coumadin), she was in Onadasetron (Zolfran), and Prochloroperazine/Benadryl as needed. She previously was in blood pressure meds for over 25 years, but with her new clean approach to loving and eating, has been removed from it and asiorin. At present, she only uses eye drops for her low-grade glaucoma. What more can we do to ease this transition? She meditates daily, stays active, eats well, listens to uplifting music, prays and uses affirmations often. 

it goes without saying that I want her to be well. She's the backbone of the family and has been the caregiver emotionalky for her five siblings since her mother passed from renal sarcoma when she was only 13 years old. Discovering resources on covering the costs of treatment and meds, along with complimentary therapies that may be available in our area of Virginia would be helpful. I'm so grateful to have this forum and wonderful people on here to turn to, as I often feel alone and burdened to make things right for mom. Dad and mom friends, many whom are women who have gone through various "c" diagnosis', are great as well. No one seems to be able to relate to my struggle. She started treated days before my 40th birthday. Heavy and difficult to think about celebrating for myself. But I have to stay strong for mom. That's what's important. 

Looking to make friends, because I am so lost. 

Blessings and courage to all!

 

Nicole