Complex Hyperplasia with Atypia/**New Diagnosis Post Op - Endometrial Adenocarcinoma Stage 1-A

13»

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    Thanks for checking in! Glad

    Thanks for checking in! Glad that your surgery went well and they took samples. This will give you the best information for going forward.

    Remember to walk, rest and don't lift anything over 10 lbs. Give your body time to heal. 

    Please stay in touch. We will be here for you every step of your journey.

    Love and Hugs,

    Cindi

  • Kaleena
    Kaleena Member Posts: 2,088 Member

    Two Days Post Op

    Hello ladies! Just wanted to check in and let you know that I am now two days post op. They did end up taking both ovaries both fallopian tube's cervix and uterus and they did actually take nodes.  I am assuming that nodes were taken because the frozen section was positive. I know Have to wait for the final pathology for any clear answers. The good news is is that I am feeling better each day and I don't regret my decision for a second. I will continue to keep you guys updated once I get my full pathology back.

    Thanks for checling in And I

    Thanks for checling in And I am glad that you are feeling better.  Take care but don't over do it.  

    Kathy

  • Heatherlynn707
    Heatherlynn707 Member Posts: 20
    Pathology is in!!!

    Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

    I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

    I love my Doctor but I am not a fan of his staff.......

    Results below:

    1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
    2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
    3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
    4. Left Pelvic Lymph Nodes dissection - six - negative
    5. Right Pelvic Lymph Node dissection - two - negative

    Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

    I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

    Once again, thank you so much for all of the information, support and kindness!

    Fight On!!

    Heather

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member

    Pathology is in!!!

    Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

    I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

    I love my Doctor but I am not a fan of his staff.......

    Results below:

    1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
    2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
    3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
    4. Left Pelvic Lymph Nodes dissection - six - negative
    5. Right Pelvic Lymph Node dissection - two - negative

    Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

    I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

    Once again, thank you so much for all of the information, support and kindness!

    Fight On!!

    Heather

    I am so happy to hear your

    I am so happy to hear your report! I agree 100%, a month is WAY too long to wait for that all-important report. 

    Love, 

    Eldri 

  • MAbound
    MAbound Member Posts: 1,168 Member

    Pathology is in!!!

    Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

    I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

    I love my Doctor but I am not a fan of his staff.......

    Results below:

    1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
    2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
    3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
    4. Left Pelvic Lymph Nodes dissection - six - negative
    5. Right Pelvic Lymph Node dissection - two - negative

    Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

    I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

    Once again, thank you so much for all of the information, support and kindness!

    Fight On!!

    Heather

    Whew!

    So glad that they caught and removed your cancer early! I had the same numbness in my left thigh that you are describing after surgery. I was told that it was from the position they put you in for the surgery. It will return to normal, but it may take a while. Enjoy the rest of your life!

  • Forherself
    Forherself Member Posts: 962 Member
    Awesome news

    I can't believe the office said you have to wait so long for pathology.  Good for. you not settling for that.   Great pathology report.  Thank you for coming back and sharing your good news.

  • ConnieSW
    ConnieSW Member Posts: 1,677 Member
    Second best good news

    Everything is realative.  I celebrated that my grade 3 cancer was a stage 1a. 

    I, too, had numbness postop in my left upper thigh. Can't remember how long it lasted but it did go away. 

  • pato58
    pato58 Member Posts: 120 Member

    Pathology is in!!!

    Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

    I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

    I love my Doctor but I am not a fan of his staff.......

    Results below:

    1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
    2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
    3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
    4. Left Pelvic Lymph Nodes dissection - six - negative
    5. Right Pelvic Lymph Node dissection - two - negative

    Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

    I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

    Once again, thank you so much for all of the information, support and kindness!

    Fight On!!

    Heather

    Hi Heather,

    I followed your journey and I am glad that you could finally get the results of your pathology report. I was diagnosed on July 2018 with stage 1A grade 1 endometrioid adenocarcinoma. My initial D&C was grade 2 but it was downgraded upon final pathology report.

    I assume you had robotic surgery.  Did they take more than sentinel nodes? I wonder if the neuropathy on the left side could be related to more nodes taken from that side? But I also remember an achy pain on the left side only after my robotic surgery, so I agree with the other ladies.
    Do they have results for pelvic wash and lymphovascular space invasion (LVI)? 
    Take care!
    Pato

  • LisaPizza
    LisaPizza Member Posts: 358 Member

    Pathology is in!!!

    Hello Ladies!!  The fog is lifting.....Final Pathology Report is in.....despite my doctor being on vacation and the office staff telling me I would have to wait until 11/25 (my follow up appointment) to receive my report!

    I went down to the hospital and had my results within 5 minutes......it really shouldn't be this difficult for a patient to receive their own report and it is certainly rude to expect a patient to wait over a month to find out if they had cancer.  Keeping in mind that I came out of anesthesia poorly and needed to be sedated :( - apparently I came out fighting so it is all a big blur - this information may have been conveyed to me but I was totally out of it!!  

    I love my Doctor but I am not a fan of his staff.......

    Results below:

    1. Endometrial adenocarcinoma, endometriod type FIGO grade 1, limited to endometrium, arisingin association with polypoid EIN.
    2. Cervix with chronic cervicitis and squamous metaplasia, negative for dysplasia and carcinoma
    3. Serosa, bilateral fallopian tubes and ovaries with no specific pathologic changes, negative for carcinoma
    4. Left Pelvic Lymph Nodes dissection - six - negative
    5. Right Pelvic Lymph Node dissection - two - negative

    Obviously this was the second best result desired!!  First being, no cancer, of course.  The relief I felt after receiving this information today is unexplainable and now I finally feel as though I can rest and start the healing process!!  

    I am so grateful to all of you wonderful ladies for all of the support and well wishes!  I feel a million times better than I did yesterday and believe that I will fill even better tomorrow.  The bloating and swelling has finally disapaited and I have been off of pain meds since Saturday night.  I finally feel like I can breath and rest.  I have not been alone since my surgery - blessed beyond measure!!  Tomorrow will be my first day alone after my husband leaves for work and I am off work until 11/11!  I look forward to getting back to my normal self with a new focus on getting healthy and listening to my body.  I was able to see my accupunturist today and she will help me focus on healing my body!!  I am experiencing some neuropothy in my upper left thigh....Have any of you experienced this?  One last question.....upon follow ups, what should I expect?  Will they be scans or just pelvic exams???

    Once again, thank you so much for all of the information, support and kindness!

    Fight On!!

    Heather

    Fantastic second best result,

    Fantastic second best result, as you say. Congratulations!

  • Heatherlynn707
    Heatherlynn707 Member Posts: 20
    pato58 said:
    Not positive about the wash..

    Not positive about the wash....not sure it was done???  I will ask the Dr. at my follow up.  The LVI was "not identified" so I am assuming negative for carcinoma....but will double check.  Keep in mind, I am my own Dr. right now....I obtained my report on my own and am translating what I can identify.  I am pretty good at this after having been a part of too many people close to me with cancer!!  I am able to work my way through the report enough to know that I am in the clear and don't think that I will need further treatment other than follow ups to watch closely!!

     

  • zsazsa1
    zsazsa1 Member Posts: 565 Member
    Not identified means they

    Not identified means they didn't see any LVSI.  This is wonderful news.  I'm not sure you need any further treatment!  Hooray!  Caught early, not high grade, all out.  Mazal Tov!

  • pato58
    pato58 Member Posts: 120 Member

    Not positive about the wash..

    Not positive about the wash....not sure it was done???  I will ask the Dr. at my follow up.  The LVI was "not identified" so I am assuming negative for carcinoma....but will double check.  Keep in mind, I am my own Dr. right now....I obtained my report on my own and am translating what I can identify.  I am pretty good at this after having been a part of too many people close to me with cancer!!  I am able to work my way through the report enough to know that I am in the clear and don't think that I will need further treatment other than follow ups to watch closely!!

     

    Yes

    for sure. I was getting every 4 months only pelvic check-ups and he now decided that he can see me every 6 months, which gives me a little more anxiety. Enjoy the moment! 
    LVI not identified is good!

     

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571

    I am so happy to hear your “second best” diagnosis!!! I am sorry your doctor’s staff could think of a way to give you your pathology results sooner!

    Good for you for advocating for yourself and getting your results from medical records at hospital. No one should have to wait until their doctor gets back in town. 

    I also had a tightness feeling and some weakness in my left groin after my surgery. I think I had it for a year. It is gone thank goodness!

    You have a positive attitude and outlook on your health, so live your best life and don’t forget that you too can help another uterine cancer survivor in some small way.

    Live strong Heather! ((Hug))

    Lori