Folfox7 2 down 10 to go

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  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #42
    Tom M. said:

    Hi everyone, just updating.

    Hi everyone, just updating. Blood counts remaining good. Cea holding steady at 1.8, on to treatment 9 of 12 tomorrow morning. Oh btw preparation h did the trick. Thanks

    You are rocking

    I'm so glad you are doing the countdown as that really helps.  It stinks starting out but now you are counting down and seeing that only 4 to go and the end is so near for no more treatment.  You are rocking with this treatment and handling so well, so good for you.  Hope all went well today.

    Kim

  • Tom M.
    Tom M. Member Posts: 223 Member
    #43
    9 of 12 complete. On bag

    9 of 12 complete. On bag buddy disconnect day which was yesterday I felt extremely tired. I pretty much slept the whole day. Feeling tired today. Not sick, just tired. I'm used to moving around allot. I guess all the treatments are adding up now. Looking forward to the finish line. Thanks for all the input and advice. Will keep you all updated.  Tom

  • Tom M.
    Tom M. Member Posts: 223 Member
    #44
    Feeling much better today.

    Feeling much better today. Looking forward to talking with oncologist next treatment. Writing all my questions down.  Wishing everyone a great Labor Day.

  • D_3John
    D_3John Member Posts: 4
    edited September 2019 #45
    Folfox treatments

    I've been told that I have to have twelve treatments and I start on Tuesday.  I wanted to know if I should eat before I start the treatment and if so how far in advance of the treatment.  Also, I have a dog, should I be concerned?  Unfortuately, I have not had a teaching, so that I could be informed of what to expect from Folfox treatments.  So any information would be of help.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited September 2019 #46
    D_3John said:

    Folfox treatments

    I've been told that I have to have twelve treatments and I start on Tuesday.  I wanted to know if I should eat before I start the treatment and if so how far in advance of the treatment.  Also, I have a dog, should I be concerned?  Unfortuately, I have not had a teaching, so that I could be informed of what to expect from Folfox treatments.  So any information would be of help.

    Hello there...

    Welcome to the forum. 

    May I suggest you start your very own thread, so that folks can reply just to you. That way, you will get all the info you need without having to shift through this thread. 

    Here is the link where you can post https://csn.cancer.org/forum/128

    We can fill you in on all that you shuold have been told before treatment. You have come to the right place. 

    Tru

  • Tom M.
    Tom M. Member Posts: 223 Member
    #47
    D_3John said:

    Folfox treatments

    I've been told that I have to have twelve treatments and I start on Tuesday.  I wanted to know if I should eat before I start the treatment and if so how far in advance of the treatment.  Also, I have a dog, should I be concerned?  Unfortuately, I have not had a teaching, so that I could be informed of what to expect from Folfox treatments.  So any information would be of help.

    John, I know the many things

    John, I know the many things running through your mind right now, all of us here do. So far I have completed 9 of 12. I just went into it with allot of faith and a very positive attitude. Your nurses will keep close tabs on you. Everyone responds differently. If you are fairly healthy now and are feeling good my guess is you will do fine. You will be given pre meds before chemo to combat possible side effects. Don't be afraid, my side effects are very minimal. Ask your nurses everything on your mind,jot it down if you have to. As far as eating, they feed me lunch when I go. Dog is fine, if its a jumper just protect your port. Watch the tube on your bag buddy too. Stay positive it's killing cancer. Listen to Kim and Tru. They both have a world of knowledge. Good luck. Peace be win you. You're in good hands. Your nurses are in charge now. Keep em laughing, they love it.     Tom

  • Tom M.
    Tom M. Member Posts: 223 Member
    #48
    Seems like yesterday that I

    Seems like yesterday that I was saying 2 down 10 to go. Well now it's 10 down 2 to go. Everything holding good. Cea is still at 1.8. I get tired after treatment but it goes away during my full off week. Neuropathy is mild and it too subsides late in my off week. I am set up for another PET scan on October 7th. Please keep me in your prayers.      Thanks, Tom

  • myAZmountain
    myAZmountain Member Posts: 417 Member
    #49
    So glad you are close to being finished!

    Hope that you continue to have just mild symptoms for the final push and that the PET scan is good in October!

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited September 2019 #50
    Keep It Up

    You are almost done - keep it going as you are doing great.  Always appreciate the update.  Hope next treatment treats you well.

    Kim

  • Tom M.
    Tom M. Member Posts: 223 Member
    #51
    Thanks for your well wishes

    Thanks for your well wishes everyone. The upcoming pet scan is both exciting and scaredy at the same time. But it will tell the tale of where I am at. I feel really good about everything and I also feel good physically. Hoping for a good outcome.

  • Capox Dude
    Capox Dude Member Posts: 122 Member
    #52
    Congrats Tom

    Just keep doing what you are doing, and maintain that great attitude.

  • Tom M.
    Tom M. Member Posts: 223 Member
    #53
    Treatment 11 complete. Went

    Treatment 11 complete. Went well, as usual the neuropathy right after which will go away before my 12th treatment. Been lucky there I guess. My pet scan is moved up to October 5th. Hoping for a good one. Cea was still 1.8. Will let you all know how pet scan goes.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited September 2019 #54
    Nice to have it moved up....

    Less time to think about it. 

    Sounds like all is going well, and than makes me happy. 

    Tru

  • Tom M.
    Tom M. Member Posts: 223 Member
    #55
    Trubrit said:

    Nice to have it moved up....

    Less time to think about it. 

    Sounds like all is going well, and than makes me happy. 

    Tru

    Thanks Tru. I feel really

    Thanks Tru. I feel really good. A little tired at times but I'm still getting things done around the house. The nurses say that I did very well on the dreaded folfox7. The pet scan will tell us how well. No matter what I plan to be a long term survivor. Being positive is a big part of the battle as you well know.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #56
    Treatment

    So glad this treatment has been going good for you as far as side effects.  Wishing you well on the upcoming scan and feel that everything is going to come out just fine.  You have a great attitude and it seems like you just started.  Thank you for the update and look forward to the news of your scan results.

    Kim

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #57
    How did the PET scan go?

    I hope the scan itself was fine. Its the waiting for results that get to you. 

    I was thinking of you, Saturday. 

    Tru

  • SoCal42
    SoCal42 Member Posts: 78
    #58
    D_3John said:

    Folfox treatments

    I've been told that I have to have twelve treatments and I start on Tuesday.  I wanted to know if I should eat before I start the treatment and if so how far in advance of the treatment.  Also, I have a dog, should I be concerned?  Unfortuately, I have not had a teaching, so that I could be informed of what to expect from Folfox treatments.  So any information would be of help.

    Folfox

    I eat a small meal or snack an hour before I go in for infusions. I tend to get anticipatory nausea, so I don't want my stomach to be either too empty or too full. When I was on FOLFOX, I had a lot of the very weird neuropathy symptoms, but they usually didn't start up until right at the very end of the infusion. Some people don't get those things at all. If you are scheduled for a teaching session, they should go over the most common things to watch out for, and definitely as them all your questions. The website chemocare.com is also very helpful with summarizing drug side effects and their frequency. 

    You might consider starting a brand new thread, and you can probaby get a lot more responses that way.

  • Tom M.
    Tom M. Member Posts: 223 Member
    #59
    Trubrit said:

    How did the PET scan go?

    I hope the scan itself was fine. Its the waiting for results that get to you. 

    I was thinking of you, Saturday. 

    Tru

    To my dear friends, I saw the

    To my dear friends, I saw the new oncologist this morning before my final treatment. Pet scan looked good she said, I responded well to the treatments. Liver might need some work yet. Showed improvement but she wants me to talk to a surgeon to remove what's left there. All other organs are free and clear. Nothing in nodes. Looking forward to building my blood counts back up. They are in normal range by lab standards but a little low for my normal readings. Cea continues to remain low at 1.9. I want to thank all of you for your words of encouragement. It really helps in keeping a good attitude towards a journey like this. I pray for all of you every day. I will keep you all up to date with things. I WILL be a long term survivor.    Love you all, Tom

     

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    edited October 2019 #60
    Tom M. said:

    To my dear friends, I saw the

    To my dear friends, I saw the new oncologist this morning before my final treatment. Pet scan looked good she said, I responded well to the treatments. Liver might need some work yet. Showed improvement but she wants me to talk to a surgeon to remove what's left there. All other organs are free and clear. Nothing in nodes. Looking forward to building my blood counts back up. They are in normal range by lab standards but a little low for my normal readings. Cea continues to remain low at 1.9. I want to thank all of you for your words of encouragement. It really helps in keeping a good attitude towards a journey like this. I pray for all of you every day. I will keep you all up to date with things. I WILL be a long term survivor.    Love you all, Tom

     

    Excellent news

    Great news Tom.

    You have the right attitude all the way, and you will go far with it. 

    I hope, if they have to do surgery, that it is an ablation, because that is less invasive and an easier recovery. 

    I look forward always to your positive posts. 

    Tru

  • Tom M.
    Tom M. Member Posts: 223 Member
    #61
    Trubrit said:

    Excellent news

    Great news Tom.

    You have the right attitude all the way, and you will go far with it. 

    I hope, if they have to do surgery, that it is an ablation, because that is less invasive and an easier recovery. 

    I look forward always to your positive posts. 

    Tru

    Well my friends here is my

    Well my friends here is my update. I saw the oncologist today and she has decided to keep me on chemo up until surgery. The toned down version. FU5 no avastin. I see the oncology surgeon this coming Monday. I asked about not seeing anything on the PET scan on liver and she told me the tumors drunk but still have to be cut off the liver. Blood work remains good. Cea is at 1.7.  Any thoughts out there?      Thanks. Tom

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