Stent Update

derMaus
derMaus Member Posts: 558 Member

I've had my stent for three weeks now and am happy to report no problems thus far. To recap, they tried a nephrostomy tube (aka pee bag) but couldn't insert it because the tumor was in the way. The urologist gave 30% odds of being able to insert a stent; with odds so low I thought why even try? Plus, I was really, really apprehensive based on poor Cheese's horrible experience with her stent. And, the whole idea of a stent - a piece of plastic permanently stuffed up your ureter - sounded horrible. Mercifully, the surgery was a success and, after 48 hours worth of pain (think of the worst UTI you've ever had) things settled down and the stent and I are co-existing relatively well. The stent is actually doing it's job and my circulatory and fluid retention issues have abated dramatically. Some days it's more sensitive and I move in a gingerly fashion, and I often have what feels like low-level premenstural cramps, but this is very manageable compared to what others have experienced.  I start my new chemo next week - Torisol, an IV version of the Everolimus that Lulu was taking - which will hopefully shrink the tumor that's pressing on the kidney and ureter. Meanwhile, I'm eternally grateful that thus far the stent has provided nothing more than minor and intermittent irritation. Thanks to all of you who offered encouragement ! 

Comments

  • oldbeauty
    oldbeauty Member Posts: 366 Member
    What a relief!

    literally (you) and figuratively (me).  So glad to learn that you have regained function and a degree of comfort.  I wish you peace and confidence as you head in to your next treatment.  Best wishes.  Oldbeauty

  • Jairoldi
    Jairoldi Member Posts: 221 Member
    What oldbeauty said

    So glad you've found relief and wishing you everything good and great as you continue your treatment.

  • Donna Faye
    Donna Faye Member Posts: 427 Member
    So good to hear

    Have looked daily to see if you have reported how the stent was working and how you were feeling. So good to know things are better. You write so clearly and we can get a great understanding of the way your treatments go. Wishing you all the best feelings and good vibes I can muster.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
    edited July 2019 #5
    So happy to hear this update!

    So happy to hear this update! I hope you have amazing success with the new treatments.

    Love and Hugs,

    Cindi

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    So so glad to hear the stent

    So so glad to hear the stent is working, Bobbi, and you are starting on your new chemo. I am praying this works to shrink those tumors. Just being out of pain is such a relief! Please keep us updated on your progress. (((Bobbi)))

    Love,

    Eldri

  • LisaPizza
    LisaPizza Member Posts: 358 Member
    So happy for this :)

    So happy for this :)

  • MAbound
    MAbound Member Posts: 1,168 Member
    Yay!

    So happy that this is being manageable for you and doing what you need it to! Let's hope that your next step with chemo goes well, too. It feels like such a relief to hear something go right for you! 

  • Forherself
    Forherself Member Posts: 961 Member
    Your persistence pays off again

    Another good decision for you.  Now praying that you can enjoy some goood days.   We are cheering for you!!

  • ConnieSW
    ConnieSW Member Posts: 1,677 Member
    Good news

    I'm so glad to learn your experience with the stent is a positive one. 

  • BluebirdOne
    BluebirdOne Member Posts: 654 Member
    Beating the odds again!

    You have shown a remarkable resiliency that is so admirable. None of us know what is in store for us down the road, but I only hope I can face adversity and thrive as you have. Not to mention your extraordinary support of others while you have been fighting so hard. Glad to hear of the good news.

    Denise

  • cmb
    cmb Member Posts: 1,001 Member
    Moving forward

    I'm so glad to hear that the stent has relieved some of the pain that you were experiencing, with mostly tolerable side effects. And I'm sure that getting rid of the excess fluids is also helping you feel better.

    With this big step behind you, onward to Torisol to shrink that persistent tumor!

  • Wannabeatit
    Wannabeatit Member Posts: 100 Member
    Good news!

    Good news!

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    edited July 2019 #14
    Hugs!!!

    so happy to hear you are getting some relief.    I know that first day when you get the stent in is like......I don’t know how I’m going to do it.....  then it finally calms down

    sending you sone positive vibes to help shrink those tumors

    all the best

    Kathleen 

  • SF73
    SF73 Member Posts: 317 Member
    So glad to hear that surgery

    So glad to hear that surgery was a success. Wishing you all the luck with the chemo sessions.

  • Armywife
    Armywife Member Posts: 451 Member
    Woohooo!!!!

    Oh, derMaus, I'm so glad to hear this wonderful report!  Onward.  So proud of you, brave girl.  I learn from you every time you post.

  • jan9wils
    jan9wils Member Posts: 202 Member
    Glad you are getting relief

    Glad you are getting relief and the stent is working. Now for the everolimus to do its job.

  • barnyardgal
    barnyardgal Member Posts: 272 Member
    I'm so glad to hear your news

    I'm so glad to hear your news! What a relief! I've heard good things about everolimus!

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    Yes good to hear!!

    Glad the stent is working, now for the chemo to do it's job and shrink that beast. You are in my thoughts and prayers. Wishing you an easy chemo cycle and managable side effects!! xoxo

  • MoeKay
    MoeKay Member Posts: 476 Member
    Hope the good news keeps on coming

    I hope the chemo is working like a charm and big congratulations on the good news with the stent!!  I like your urologist's style; better to be conservative on the statistics beforehand than to over-estimate the odds of success and end up with a disappointed patient.