Update on my mother´s mmmt - Recurrence, spread and bad perspective

Dear ladies,

I have to say that even if I don´t write in a while I keep on reading many of your posts and I´ve noticed that many of you keep active on writing just to support others. I can just say thank you all for that involvement and commttment with us. I cannot speak for others but for me it has been one of the major supports ever. Thank you.

If I write now is because my mother is still going through this process and each time is more and more difficult to remain somewhat positive. In order to not being too long I just put here the link of my mother´s story (I think this is the thread: https://csn.cancer.org/node/318449) and just add the continuation of it up to the point we are now.

I will try to be short because we have been through so much (at least from my view). In the GCS forum website I was recommended to visit a doctor in my hometown (thank you Kathy) after my mother´s recurrence (reminder: total hysterectomy and 6 rounds of carb/tax which devasted her and didn´t prevent her from early recurrence). Great person this oncologist and his team but unfortunately we cannot afford to pay it. So we overlapped this visit with 2 other hospitals from our NHS (a very good one, to be honest). First she was offered brachy but anatomical conditions of her body didn´t let to use it. Then another surgery was put on the table but, apart from being too risky for her, it was rejected afther the last PET-CAT, where the tumor seemed to pop out of the cervix to nearby (in just 3 months!!!). I think that in the liver, but I was very afraid of asking. Though we were not very keen on the surgery this news fall into us as a cold shower.
At this point we have to see what the next treatment could be… For the moment one of them, the biggest hospital, has offered her to participate in a clinical trial if she meets the requirements (the drug is Entrectinib- Anyone heard of it before?) but, even if she doesn´t, the molecular information will let them to use the most proper meds for her tumor. But in the meantime, which is nearly two months, we don´t know what to do... For the moment, where she has been treated from the very beginning, the oncologist suggests another type of chemo for those parts of the tumor out of the cervix... Next monday we have an appointment with the other NHS hospital to see what the oncolog will suggest. From one side my mother is willing to treat again while waiting for the molecular results, because this beast seems to spread as fire, and in 2 months we don´t know how far it will be. However, my mother health condition is so sensible that I don´t know how good this will be (she has a high degree of toxicity due to previous chemo for annal cancer). It´s such a difficult dilemma! And I don´t want to influence her decision, but it´s so frustrating seeing her suffering so much and not being able to help.
We are totally devastated… Nor hope for healing, neither for some deceleration of the disease. Doctors view is so grim that it is difficult to keep some sort of hope for even a chronic condition, as other type of cancers. For them my mother is hopeless… I can see it in their faces and their eyes. Even my family and friends are asking me to be realistic. The speedness of this f****** tumor does not hepl either, it is something so outstanding that is difficult to believe.

Sorry again for this deployment of negativity but lately I am just receiving one bad news after another.

Keep you posted anyway with the coming news on treatments, though. Hope this information will be useful for someone else one day.

 

Lot of love for every of you, brave warriors.