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Really good news

Ruthmomto4's picture
Ruthmomto4
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Joined: May 2013
Apr 30, 2019 - 3:26 pm

which I am happy about for now, because I know it can all change in an instant. After 2 years of being really sick, 5 years at stage 4 right now my husband is showing NED and all his blood work is normal, except one liver enzyme due to his stent in his liver. The narrowing in his ducts are just narrowing and it looks like the radiation destroyed the tumor he had in his bile duct. 

He has not had any chemo in his pump since December and even then it was 1/4, at least I think it was it might have been November, no systemic since 2018. He let his hai pump die  because it caused him so many problems. 

Cautiously optimistic.....
JanJan63's picture
JanJan63
Posts: 2482
 Joined: Sep 2014
Apr 30, 2019 - 3:40 pm

Oh my goodness! That's absolutely awesome news!! I'm always stunned when stage four people become NED. Who'd have thought it was possible? It gives the rest of us so much hope!! I am SO happy for you both! What a wonderful break from all the crap!

Hugs!

Jan
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:50 pm

we are going to enjoy the three months until the next scan and blood test!
mojogirl67
Posts: 279
 Joined: Oct 2018
Apr 30, 2019 - 4:01 pm

Wonderful news! Sending good energy and prayers for many more years to come of NED! Your seat as a caregiver is not easy and I wish you strength to keep fighting with him!! Hugs to you both!! ..M
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:51 pm

i hope your starting to feel better and the chemo is leaving your body for good!
suzycruise76's picture
suzycruise76
Posts: 100
 Joined: Mar 2019
Apr 30, 2019 - 4:03 pm

news,congratulations! It is so helpful to read story like yours. 

All the best to you and your husband,

Suzy
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:56 pm

Hoping we get through the next round in three months! Cautiously optimistic..
abita's picture
abita
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 Joined: Dec 2017
Apr 30, 2019 - 5:46 pm

I am so happy for you! And as I love to have hope, was all his cancer removed surgically? I am hoping that chemo can get someone to ned.
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
Apr 30, 2019 - 6:49 pm

except for a rare spread of a tumor inside his bile duct which was treated with some doses of hai pump chemo and SBRT radiation therapy (14 doses)

i guess technically one was ablated during his second resection 

 

i am am editting this to say when pathology came back on the resected tumors they were 95% necrotic which was an excellent response. If chemo can’t get you to Ned there are lots of other non surgical options like radiation and ablation that can get you there.
abita's picture
abita
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 Joined: Dec 2017
Apr 30, 2019 - 7:03 pm

That is encouraging! Thanks!
Trubrit's picture
Trubrit
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 Joined: Jan 2013
Apr 30, 2019 - 6:19 pm

i am at the airport right now, and HDM is at home, on my computer.  He will arrive late to this very wonderful party. 

Dont worry about what ‘may’ show up in the future; celebrate now. 

Tru
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:52 pm

no worries! I hope you made it home safely!
Msboop15's picture
Msboop15
Posts: 83
 Joined: Apr 2019
Apr 30, 2019 - 6:25 pm

Always so good to hear NED, especially Stage 4. Reminds us it is possible. 

Elaine
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:53 pm

Just taking it cautiously to the next scan!
SandiaBuddy's picture
SandiaBuddy
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Apr 30, 2019 - 6:52 pm

Congratulations!  It is always inspiring to hear good news.  
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:54 pm

hoping it lasts a while!
myAZmountain
Posts: 291
 Joined: Apr 2018
Apr 30, 2019 - 7:23 pm

Wonderful to hear he is NED ! Love to hear it is possible at Stage 4!!
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:54 pm

i am just enjoying the next three months, and happy Birthday!
Annabelle41415's picture
Annabelle41415
Posts: 6304
 Joined: Feb 2009
May 01, 2019 - 12:03 am

That is wonderful news.  He's been through a lot so I'm glad that he can sigh a little bit of relief.  Thanks for sharing.

Kim
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 01, 2019 - 6:55 pm

good news was a welcome change! Today is actually a year to the day of his second liver resection.
Kazenmax's picture
Kazenmax
Posts: 387
 Joined: Feb 2016
May 02, 2019 - 1:03 pm

Always wonderful to hear NED! You both have been through so much. Now try to relax and enjoy. 

K
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 03, 2019 - 1:25 pm

i will try, it’s been dampened a bit by the loss of our sweet dog Sophie on monday. My heart is still broken so it felt wrong to be happy about the good news. 
beaumontdave's picture
beaumontdave
Posts: 1012
 Joined: Aug 2013
May 03, 2019 - 2:32 pm

Great to hear, after such a fight that your winning some rounds. Enjoy the break............................................Dave
Ruthmomto4's picture
Ruthmomto4
Posts: 640
 Joined: May 2013
May 03, 2019 - 10:46 pm

that’s a perfect way to put it!! we will enjoy this round for 3 months and wait to see how the next one plays out. :)
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