VISION ISSUES

Yes, I did

My vision was better than 20/20 before chemo. By the end of chemo, I needed prescription reading glasses. During chemo, I had a series of weird vision things -- fuzzy vision in general during the days right after chemo (when I was on those awful steroid doses), some trouble with depth perception, too. Over time, my distance vision seemed a little fuzzy, too. After my 4th infusion, I developed a strange "ripple" in my vision, as though I was looking at everything through a sheer piece of glass that had ripples in it. That scared me enough I went to see my opthamologist, who could find nothing wrong but also said she didn't think chemo would cause it. By that time in chemo my hemoglobin was seriously in the toilet and I needed multipe blood transfusions to get through chemo. I felt certain the vision ripple was related.

A month after chemo ended and 3 weeks after my last blood transfusion, the ripple went away, the general fuzziness went away, and none came back. My eyesight never returned to 20/20, though. My distance vision is fine, but I now need glasses to read.

I had the usual carbo/taxol. I'm sorry you're experiencing some problems -- is it only right after an infusion?

My last chemo was December 7,

My last chemo was December 7, 2015, and my eyesight is awful! Now, whether it is from the chemo or from the stoke on December 24, 2015, I don't know but my eyesight changes DAILY!

I thought maybe I was imagining things so I had my eyes tested a month ago on a Wednesday. I was going to get my glasses at another place on Friday and when I got there, they said the $99 included two pair of progressive lenses PLUS an eye exam. I thought, what the heck, so had them do the exam. The prescription, especially in my left eye, was way different. I showed the eye doctor the prescription and he arranged the lenses in the machine to that prescription and I could hardly see. I told him how some days I see pretty good and other days not good at all. I told him my eye MD doctor thought I may have neuropathy in that left eye and he said he had heard of that but never had seen it personally.

So....here I sit! Some days I see pretty good and other days I'd be afraid to drive. Luckily, my dear husband has no problem chauffering me around. My eyes are dry too and I use drops daily. The eye MD doctor thought I had scar tissue caused by the chemo that blocks the ducts. He said most people need to blink to refresh the eye every 15 seconds; I blink every four seconds. At best my left eye can be corrected to 20/60 and my right eye to 20/40. At least I can still read!!!

But, at least I'm alive and have a husband who doesn't mind driving me around.

Love,

Eldri

Me, too and 2 years from

I was told by my ophthalmologist before I began treatment that it could cause eye problems. My eyesight is some worse and called for a stronger lens, and I have watery eyes a lot. I am one year out of treatment with cisplatin and 2 years out from carbo/taxol. My major complaint is the muscle soreness in arms and legs. We all pay a price for fighting to survive.

EZLiving66 said:

My last chemo was December 7,

My last chemo was December 7, 2015, and my eyesight is awful! Now, whether it is from the chemo or from the stoke on December 24, 2015, I don't know but my eyesight changes DAILY!

I thought maybe I was imagining things so I had my eyes tested a month ago on a Wednesday. I was going to get my glasses at another place on Friday and when I got there, they said the $99 included two pair of progressive lenses PLUS an eye exam. I thought, what the heck, so had them do the exam. The prescription, especially in my left eye, was way different. I showed the eye doctor the prescription and he arranged the lenses in the machine to that prescription and I could hardly see. I told him how some days I see pretty good and other days not good at all. I told him my eye MD doctor thought I may have neuropathy in that left eye and he said he had heard of that but never had seen it personally.

So....here I sit! Some days I see pretty good and other days I'd be afraid to drive. Luckily, my dear husband has no problem chauffering me around. My eyes are dry too and I use drops daily. The eye MD doctor thought I had scar tissue caused by the chemo that blocks the ducts. He said most people need to blink to refresh the eye every 15 seconds; I blink every four seconds. At best my left eye can be corrected to 20/60 and my right eye to 20/40. At least I can still read!!!

But, at least I'm alive and have a husband who doesn't mind driving me around.

Love,

Eldri

Neuropthomologist

Hey Eldri!  Why don’t you consider seeing a neuropthmologist? That’s who identified my optic nerve neuropothy. We think it was caused by the amiaderone but one never knows. I was in active chemo at the time and it was bilateral. Unfortunately I have permanent effects from it. 

CheeseQueen57 said:

Neuropthomologist

Hey Eldri!  Why don’t you consider seeing a neuropthmologist? That’s who identified my optic nerve neuropothy. We think it was caused by the amiaderone but one never knows. I was in active chemo at the time and it was bilateral. Unfortunately I have permanent effects from it. 

I searched for a

I searched for a neuropthomologist and cannot find one in the Tampa Bay or Green Bay area. Is that the correct spelling??

Love,

Eldri