Clinical Trial

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  • DM_K
    DM_K Member Posts: 51
    #42
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    I lost out on getting into a

    I lost out on getting into a clinical trial that my doc really wanted me to get into.  They couldn't find a tumor 1 cm bigger than what was required for the study.  After waiting nearly 2 months and having a few CT scans trying to find a tumor that would meet criteria, I've had 5 paracentesis with an average of 2.5 liters of cancer cell fluid removed.  Ascities is the worst as far as I am concerned.  Today I started on Doxil and Avastin, which my doc had to battle my insurance company for the Avastin.  After my treatments I then went and had my 5th paracentesis where 2 liters were removed and I haven't felt this great in months.  I know it will take a couple of days for the side effects to hit me but after feeling this good I'm ready for it. 

  • DM_K
    DM_K Member Posts: 51
    #43
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    Lulu7582 said:

    Thank you Ladies

    Your comments lift my spirit!! Thank you!! So very thankful for all of you.

    Just back from my doc appt ..... all is well. The unions here are having a strike day and I needed labs drawn today but thank goodness for a few folk who decided to work anyway. I thanked them for coming to work and not effecting patient care. I believe in unions but glad someone was there to draw the labs they need before Friday's infusion. 

    It is blue skies and sunshine outside so getting ready to go for another walk and yes it does feed the soul to be in the sunshine.  xoxo

    PS for all you English majors I apologize if I used the wrong effect vs affect..... not my strong point!! LOL 

    Lulu so glad to read you are

    Lulu so glad to read you are moving right along with your treatment, we never know what will work for good!

  • BluebirdOne
    BluebirdOne Member Posts: 656 Member
    edited April 2019 #44
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    So sorry to hear that.

    I hope that the new meds and treatment will do the trick. I am thinking of you.

     

    I hope that the new meds and treatment will help you. I am thinking of you.

    Denise

     

     

     

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #45
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    DM_K said:

    I lost out on getting into a

    I lost out on getting into a clinical trial that my doc really wanted me to get into.  They couldn't find a tumor 1 cm bigger than what was required for the study.  After waiting nearly 2 months and having a few CT scans trying to find a tumor that would meet criteria, I've had 5 paracentesis with an average of 2.5 liters of cancer cell fluid removed.  Ascities is the worst as far as I am concerned.  Today I started on Doxil and Avastin, which my doc had to battle my insurance company for the Avastin.  After my treatments I then went and had my 5th paracentesis where 2 liters were removed and I haven't felt this great in months.  I know it will take a couple of days for the side effects to hit me but after feeling this good I'm ready for it. 

    Hi

    Yes DM_K I do hope the treatment doesn the trick and stops the ascites for you. All the best. 

    I am doing ok although my neuropathy has just got worse with pain at night so they are dropping the dose of Taxol.....yay! Much more in line with what I think is low dose......70mgs vs the 135mgs.  Friday I get the lower dose so we will see how things go. xo

  • SF73
    SF73 Member Posts: 317 Member
    #46
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    Lulu7582 said:

    Hi

    Yes DM_K I do hope the treatment doesn the trick and stops the ascites for you. All the best. 

    I am doing ok although my neuropathy has just got worse with pain at night so they are dropping the dose of Taxol.....yay! Much more in line with what I think is low dose......70mgs vs the 135mgs.  Friday I get the lower dose so we will see how things go. xo

    Best of luck on Friday, Lulu.

    Best of luck on Friday, Lulu. Are you icing your hands and feet during chemo treatment? Not walking too much on the day of the chemo also helped me.

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #47
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    SF73 said:

    Best of luck on Friday, Lulu.

    Best of luck on Friday, Lulu. Are you icing your hands and feet during chemo treatment? Not walking too much on the day of the chemo also helped me.

    Thanks

    My hands are fine and actually the feet aren't too bad but thought I would mention the weirdness I get at night and they decided to drop the dose of Taxol which is fine with me. I do have icing booties but it is such a pain so will see how the lower dose goes. Thanks for the advice. xoxo

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #48
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    Happy Easter / Passover

    Long day yesterday....due to all the clinical trial requirements but it is what it is. So far all my blood tests are staying normal. Completed first cycle and they did reduce the Taxol to 117mg/m2 which hopefully will also reduce the side effects of nausea etc. Neuropathy is fine now...weird how that last week had a couple night where they ached. Tried to ice the toes this time and nearly froze my feet off...have to figure this out better...maybe 20 mins on then 20 mins of to make if more comfortable. 

    Anyway feeling good today but on the steroids. So getting lots done...washing clothes, cleaning house and cooking stuff for Easter dinner tomorrow. Have a wonderful holiday weekend everyone. xo

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,368 Member
    #49
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    Lulu and DM_K, you are in my

    Lulu and DM_K, you are in my prayers.

    DM_K, I hope they can find something for you.  Here is the clinical trials site as well:

    https://clinicaltrials.gov/ct2/results?cond=Uterine+Cancer&term=&cntry=&state=&city=&dist=

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