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SBRT

Cinnamongirl
Cinnamongirl Member Posts: 199

Well a week from today I will be starting radiation treatment to my lung nodules. I'm really nervous. My goal is to stay off systemic treatment for as long as I can. 

Has anyone undergone this? I am a little worried about long term effects. My left side is in a tricky spot. Any insight would be appreciated.

Hope you all are well and happy!

Cin

Comments

  • Manufred
    Manufred Member Posts: 241
    Stay Strong

    Can't help with any personal experience, but stay strong - you can do this and win.

    Best Wishes, Fred

  • Allochka
    Allochka Member Posts: 974
    Good luck, Cin, we'll keep

    Good luck, Cin, we'll keep fingers crossed for you. It's great that no systemic treatment is required at this point!

  • Retcenturion
    Retcenturion Member Posts: 240
    Good to see your Post

    Can't offer any insight today. But am glad to see your Post Cin. As always hope your having a better day and sending some positive thoughts your way.

  • Jan4you
    Jan4you Member Posts: 1,330 **
    Aww.... i hope you get

    Aww.... i hope you get answers soon. If not here, maybe try Smartpatients.com 

    Did you lookon CSN under lung cancer too?

    Keep posting here, you never know. IN fact, make your title of your post here more specific maybe?

    But I am here for you ALL the WAY!!

    Sending you, gentle, healing hugs!!!!!

    Jan

  • donna_lee
    donna_lee Member Posts: 1,018
    All we can do is wish you a pleasant excursion

    And send lots of hugs and love and good wishes and sweet dreams.

    Gotta cheer on the West Coasties.

    Take care.

    donna_lee

  • Cinnamongirl
    Cinnamongirl Member Posts: 199
    Thank you

    Thank you all for being so supportive. I'm a little nervous..ok a lot nervous! Everyone keep their fingers crossed for an easy, non eventful 10 sessions (5 to each side)

    Hope you all are well and happy!

    Cin

  • eug91
    eug91 Member Posts: 340 **
    You've got this!

    It'll be over before you know it. Sending you good thoughts! 

  • a_oaklee
    a_oaklee Member Posts: 566
    edited March 2019 #9
    My husband had sbrt

    My husband had sbrt as you described to his shoulder.  Another time to his hip.  He did not have it to his lungs.  He left work to go to the treatment, and went back to work afterwards.  He didn't have any problems.  Told me it was like getting a long xray, and only complained about the uncomfortable table he was lying on.  During the two week treatment plan he did complain of being tired, but that could have been from anything.  My husband's mets were in his bones and the treatment was successful in completely getting rid of pain, and also it killed the cancer.

  • Cinnamongirl
    Cinnamongirl Member Posts: 199
    Side effects

    Dr said side effects would be fatigue, rib discomfort and maybe some esophageal discomfort. However pneumonitis is common which worries me. Most cases resolve themselves. In other cases steroids are required...let's hope that doesn't happen.

  • a_oaklee
    a_oaklee Member Posts: 566

    Side effects

    Dr said side effects would be fatigue, rib discomfort and maybe some esophageal discomfort. However pneumonitis is common which worries me. Most cases resolve themselves. In other cases steroids are required...let's hope that doesn't happen.

    I sincerely hope that none of

    I sincerely hope that none of those things happen to you.  I can understand that lung tissue has got to be different than bones.  Especially the location of my husbands treatment being shoulder and hip.  He also had cyberknife twice to his spine.  We were told a host of possible side effects that included paralysis.  That was scary, but none of the terrible side effects happened to him.  You will find more people on smart patients who have undergone advanced treatments.  There is alot of really great information on treatment for lung mets.  One of the participants works in the field and her support and information re treatment is phenomenal.  Let us know how you are doing. 

  • penitent
    penitent Member Posts: 79
    edited March 2019 #12
    SBRT

    My son-in-law had SBRT and I can fill you in on quite a bit about it.  Private email me with any questions.

     

    Penitent

  • a_oaklee
    a_oaklee Member Posts: 566
    edited March 2019 #13
    penitent said:

    SBRT

    My son-in-law had SBRT and I can fill you in on quite a bit about it.  Private email me with any questions.

     

    Penitent

    share knowledge please

    Penitent.  I really appreciate you being here and posting.  I certainly can appreciate wanting to keep things private via a private email.  I've done it myself, but if you have any general helpful ideas, warnings, suggestions, I sure would appreciate knowing.   Being Stage 4 is really a tough place to be.  Advice and experience are greatly appreciated.  Thanks.