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  • CheeseQueen57
    CheeseQueen57 Member Posts: 933 Member
    #62
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    wolfera said:

    Thank you! I feel down pretty

    Thank you! I feel down pretty much all the time. I’m trying to be positive, but’s it’s been tough. do you have any experience with UPenn?

    UPenn

    I am treated at Fox Chase but my oncologist, Dr Laine Martin recently moved to Penn. 

  • pato58
    pato58 Member Posts: 120 Member
    #63
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    wolfera said:

    Thank you! I feel down pretty

    Thank you! I feel down pretty much all the time. I’m trying to be positive, but’s it’s been tough. do you have any experience with UPenn?

    Not particularly,

    but we all know UPenn's reputation and you can certainly consider it for a second opinion.
    One of the ladies here CheeseQueen57 went to Fox Chase and she also considered UPenn. 
    You may also be not far away from Mt. Sinai Medical Center, New York, NY ?
    Take care

  • pato58
    pato58 Member Posts: 120 Member
    #64
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    CheeseQueen57 said:

    UPenn

    I am treated at Fox Chase but my oncologist, Dr Laine Martin recently moved to Penn. 

    CheeseQueen,

    This is funny, I just wrote about you in my response below without checking your comment Wink

  • wolfera
    wolfera Member Posts: 48 Member
    #65
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    pato58 said:

    Not particularly,

    but we all know UPenn's reputation and you can certainly consider it for a second opinion.
    One of the ladies here CheeseQueen57 went to Fox Chase and she also considered UPenn. 
    You may also be not far away from Mt. Sinai Medical Center, New York, NY ?
    Take care

    Thanks for the feedback,

    Thanks for the feedback, ladies. I’ve been narrowing down options all weekend. So I have my initial appointment on Tuesday with a GYN onc at the Helen Graham Cancer Center. The bonus is that it’s only 15 min from my house. I’ve heard a lot of positive feedbac, but also some negative. I’m originally from Baltimore and most of my family is there. After mulling it over with my husband, I think I’m going to go to Hopkins. It’s not that close, but we have a lot of family and friends in the area we can stay with...

  • DonnaA
    DonnaA Member Posts: 12 Member
    #66
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    Name or Nickname: Donna

    Name or Nickname: Donna

    Type of Cancer: Carcinosarcoma 

    Grade & Stage: 1B/3  Grade 3 they said they consider me bordline since the tumor was so large and 1-2mm from leaving the Uterus plus I am LVI positive 

    Date of Diagnosis: 8/18

    Treatment: 5 weeks external radiation, 3 Brachytherapy an have am scheduled #2 of Taxo/Carbo which will probably be pospobed because platelets are 55    Also had Neulasta 

    Where Treated: Arizona Oncology 

    Outcome: last Pet Scan 10/18 was NED

    Anything Else: had severe Radiation Cystitis from Radiation   For me Radiation was much worse than the Chemo........so far! 1st Chemo  mild nausea, body aches and pains, diarrhea and of course low platelets and neutropenia   I normally run low platelets in the 90’s and if they wait till my platelets are in the 90’s it’ll be 4-6 weeks before I can have chemo  after radiation it took a moth to go from 75 to 95   Wonder how well chemo works only getting it every 2 months  

     

     

  • EZLiving66
    EZLiving66 Member Posts: 1,482 Member
    #67
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    DonnaA said:

    Name or Nickname: Donna

    Name or Nickname: Donna

    Type of Cancer: Carcinosarcoma 

    Grade & Stage: 1B/3  Grade 3 they said they consider me bordline since the tumor was so large and 1-2mm from leaving the Uterus plus I am LVI positive 

    Date of Diagnosis: 8/18

    Treatment: 5 weeks external radiation, 3 Brachytherapy an have am scheduled #2 of Taxo/Carbo which will probably be pospobed because platelets are 55    Also had Neulasta 

    Where Treated: Arizona Oncology 

    Outcome: last Pet Scan 10/18 was NED

    Anything Else: had severe Radiation Cystitis from Radiation   For me Radiation was much worse than the Chemo........so far! 1st Chemo  mild nausea, body aches and pains, diarrhea and of course low platelets and neutropenia   I normally run low platelets in the 90’s and if they wait till my platelets are in the 90’s it’ll be 4-6 weeks before I can have chemo  after radiation it took a moth to go from 75 to 95   Wonder how well chemo works only getting it every 2 months  

     

     

    I only made it through three

    I only made it through three chemos and I'm still NED from Stage 2, Grade 3 UPSC. No radiation either. Sure hope you can keep those platelets up!!

    Love, 

    Eldri 

  • Ribbons
    Ribbons Member Posts: 150 Member
    #68
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    Oregon

    Name: Cheryl, age 66. I had stage 1A grade 3, clear cell with some serous, 22 lymph nodes taken, all clear but slight LVSI noted. Dignosed in August 2018, total hysterectomy on Oct 1st. Robotic assisted. I have always been healthy before this. Just completed 6 rounds of Carbo/Taxol and going for 3 brachytherapy treatments starting this Thursday. I go to an oncology gynecologist near Portland, Oregon . She did my surgery at Providence St. Vincent’s Hospital and the cancer treatment center is right next to that, called Compass Oncology. I would like to find others on here from Oregon or at least the West Coast, seems there aren’t many from here. Extra things: I am blessed with close supportive adult kids, a good friend for a husband, and my two horses who force me to stay active. 

  • Soup52
    Soup52 Member Posts: 908 Member
    #69
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    Names- Soup52 with real name

    Names- Soup52 with real name Kathy

    diagnosed August 2015

    grade 3 clear cell- stage 3 C

    treatment- robotic hysterectomy Oct 2015- external radiation 5 weeks- three internal, 6 rounds or carbo/taxol chemo with treatment ending July 2016

    results- so far cancer free but I do have intestinal issues and some neuropathy in my feet

    i have yearly ct scans with my next one in April with a new gynechological oncologist as mine moved back to Texas

    i have been followed every 3-6 months with ca 125 and exams.

    i don’t know how I’ve been so lucky with my high grade and stage, but I’ll take it. I’m now 66 years old

    treatment at Illinois Cancer Care, Peoria, Il

     

     

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