Newbie here. A few questions

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  • mp327
    mp327 Member Posts: 4,440 Member
    #42
    Sonic Sedition

    I'm glad you are doing so well through treatment and I hope the last 3 days go well for you!

  • Kim Gaia
    Kim Gaia Member Posts: 73
    #43
    SonicSedition said:

    Update

    Hey everyone! Want to thank you for all your assistance. only 3 days left of my 28-day treatment. I can say I am very fortunate that the side effects were/are very minimal. I've experienced little chemo (Xeloda) side effects. Doc said I should be thankful because I'm like in the 10% or less range of the average patient. No pain so far from the radiation, but just now started experiencing the diarrhea (using Imodium) and the urination frequency/urgency issues (no meds for that). Hopefully this will subside once I’m all done. Next, exam from surgeon next week and then I'm sure another MRI to see where we are at. Then surgery. Thanks again for everyone’s help and concern. It means a lot.

    Good luck on your final 3

    Good luck on your final 3 days Sonic Sedition, and your upcoming exams.

    kim

  • Ottawamarc1234
    Ottawamarc1234 Member Posts: 148 Member
    #44
    34 Days Post...Still Issues. Good Luck.

    Feeling better in some ways but other strange after effects as well. The 'hole or fissure' the Rad burned into me is my big hurdle these days. Treating it as a 'Fissure'.

     

    Strange muscle pains and tingling sensations continue 34 days after. Old male 56 and a slow healer I guess. Follow up MRI late September.

     

    Best of Luck to you.

  • SonicSedition
    SonicSedition Member Posts: 30
    #45
    Chemo Rad Results

    Haven't been around for awhile but wanted to update my status. Saw my surgeon last week and my MRI showed a reduction of about 60+ % of the tumor Smile 

    Surgery is schedule for Sept 5th and since it's shrunk so much and back from the sphincter, I may not need a permanent colostomy. Issue is that would mean a second operation. Of course she said once she gets in there that may change. Apparently, if shes able to cut out the section and hook everything back up, there is still up to a 30% chance of it leaking and all kinds of incontinence etc issues. Can anyone here let me know your experience. I'm not so sure I wouldn't prefer one and done. Millions live with a colostomy and I'm retired so not really concerned about work etc etc.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    #46
    SonicSedition said:

    Chemo Rad Results

    Haven't been around for awhile but wanted to update my status. Saw my surgeon last week and my MRI showed a reduction of about 60+ % of the tumor Smile 

    Surgery is schedule for Sept 5th and since it's shrunk so much and back from the sphincter, I may not need a permanent colostomy. Issue is that would mean a second operation. Of course she said once she gets in there that may change. Apparently, if shes able to cut out the section and hook everything back up, there is still up to a 30% chance of it leaking and all kinds of incontinence etc issues. Can anyone here let me know your experience. I'm not so sure I wouldn't prefer one and done. Millions live with a colostomy and I'm retired so not really concerned about work etc etc.

    Congratulations on the shrinkage

    That is good news. 

    We have several folks who have experience with colostomy and reversals. I'm sure they will pop along soon to share their advice. 

    I will be thinking of you on the 5th. 

    Tru

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #47
    Colostomy

    Mine is reversible but I didn't have it reversed by choice.  I'm very comfortable with it.  Miles way better than when I didn't have this.  There's really no issue except that you just have to handle it well so that it won't easily leak.  Its very convenient because I just drain it when its full.

  • mp327
    mp327 Member Posts: 4,440 Member
    #48
    Good news

    I'm glad you got good news on the shrinkage of the tumor.  May your surgery go well on September 5th.

  • Ouch_Ouch_Ouch
    Ouch_Ouch_Ouch Member Posts: 508 Member
    #49
    SonicSedition said:

    Chemo Rad Results

    Haven't been around for awhile but wanted to update my status. Saw my surgeon last week and my MRI showed a reduction of about 60+ % of the tumor Smile 

    Surgery is schedule for Sept 5th and since it's shrunk so much and back from the sphincter, I may not need a permanent colostomy. Issue is that would mean a second operation. Of course she said once she gets in there that may change. Apparently, if shes able to cut out the section and hook everything back up, there is still up to a 30% chance of it leaking and all kinds of incontinence etc issues. Can anyone here let me know your experience. I'm not so sure I wouldn't prefer one and done. Millions live with a colostomy and I'm retired so not really concerned about work etc etc.

    Soon..........

    Hello, SonicSedition -

    1) September 5th is coming soon. Is the plan you mentioned still in place? Fingers, toes, and eyes are all crossed for you. 

    2) Is "Sonic Sedition" the name of your band? [I'm an anal cancer forum cross-over.]

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