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Clinical Trials

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3327
Joined: May 2012

This link lists 231 Blood Cancers clinical trials currently planned or underway. The date of compilation was around New Year's, and as of that time only a few were already recruiting. I only skimmed it, but spotted several pertaining to T-Cells, several regarding relapsed Large B, several on Mantle Cell (MCL).  A few on follicular.

Several also related to "CAR-T" approaches.

Almost all were either NHLs or leukemias; few HL, and none on our NLPHL, Bill-NC.  Some are not in the US.

 

Since links I post usually won't open, be aware that by highlighting the link and then right-clicking, you get an option to open, which does work.  I do not know if this list is similiar to or identical with the "Clinical trials Finder" provided here by CSN.

 

https://clinicaltrials.gov/ct2/results?cond=Lymphoma+OR+CLL&term=(+%22December+1,+2017%22+:+MAX+)+[FIRST-RECEIVED-DATE]+&cntry1=&state1=&Search=Search&recrs=a&recrs=b&flds=cfg

 

 

yesyes2
Posts: 590
Joined: Jul 2009

Thank you for the link Max.  I've learned over the years that the majority of clinical trials never occur as funding dries up.  So best to look for trials that are already recruiting.  I've been researching trials for my MPN as first line treatment as it has so few options available.  There is one occurring in Southern California at the City of Hope, but hasn't started recruiting yet.  The same trial has already begun, as of April this year, on the East Coast and the drug is already being used in Europe.  If my NHL were to recur I would look for a trial as well.

We have been missing our resident T-Cell expert, have you heared from him Max?  Hope he is okay.

Again thanks,

Leslie

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3327
Joined: May 2012

Leslie,

I hope you find clinical studies relevant to your concerns.

Po has been great; enjoying some much-needed and deserved peace and quiet.

Use the CNS email function if you have a question needing rapid response.  This is true of anyone needing T-cell info or information relating to multiple relapses.

You mentioned City of Hope. One of the best cancer drug research facilities in the world, and where Rituxan was developed.

max

illead's picture
illead
Posts: 846
Joined: Aug 2012

Thanks Max,

Good to have, I bookmarked it.  A lot of trials are happening in China.  The first time we went to MD Anderson almost the whole lymphoma/ myeloma waiting room (which is huge) was full of Chinese.

Becky

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3327
Joined: May 2012

I started studying lymphoma in 2009. It seems to me that there has been mere advancement in treating Mantle Cell like Bill's than any other form.   At my second infusion I ran in to a former coworker.  He was getting chemo for MCL.  I later asked my oncologist about MCL and if it was like my HL, ad he just shuddered and said, "Oh no...mantle cell is a whole different animal."  That friend died...

Today, there are so many new drugs for MCL.  You and Bill have documented much of this development here yourselves.

illead's picture
illead
Posts: 846
Joined: Aug 2012

When Bill was first diagnosed, we were doing some volunteer construction work in the redwoods and camped there in our 5th wheel.  We had to drive back to Yuba City for his diagnosis and his onc at the time only told us MCL and nothing more.  When we got back to camp I tried to look it up but the internet was sketchy.  I only got that the prognosis was not good, it was incurable and normally the patient wouldn't live more than 5 years.  Two days later Bill went totally down, high fever, night sweats and rigors.  There was no cell service so I couldn't even call a hospital.  The next day I had to go to the project and get help.  Friends came to the park and buttoned up our 5th wheel, one of them drove it home and I drove his truck home with Bill laying in the back seat, moaning the 3-1/2 hrs home.  The friend helped Bill get into the house because he could barely walk.  Our son came from NY, we thought he was going to die.  And now you know the rest of the story.  What an incredible journey, we are so thankful for the passionate doctors and researchers who are not giving up and who have given us an extended life together and such a hopeful future.  Of course we most importantly thank our Creator for his guidance and care.  You dear friends on the forum have been an incredible comfort and support that neither of us will ever forget.  When Bill relapsed the first time, you all were there for us, I couldn't belive how many responses we got.  He was diagnosed 7 years ago this month. Just want to say thank you to you and those that don't post anymore but that we miss so much.

Becky & Bill

                         

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