Also recommended for bladder removal but when I went to surgeon he said I was too old (78) and in bad physical shape (overweight with large stomach) for surgery.  Have since started chemotheraphy and radiation.  

i was diagnosed at age 45....about a year ago and have since had radiation and light chemo. had a pet scan done about 10 days ago and was informed it had spread to my lymph nodes in my back and surrounding areas. 2 days later i was admitted to the hospital for acute hematuria which is passing blood and quarter sized clots. very painfull 4 days in hospital but finaly cleared up. was told it would keep happening because the tumor in my bladder would continue to shed tissue. i m not sure what will come next or how much longer i will live. guess its a waiting game to see where it shows up next. i started imunnatherapy and have my second treatment next week. hoping it will buy me some more time. i refuse to take heavy chemo.....just cant see how  poisoning my body will save or extend my life. i have a wife and 6 yr. old daughter at home and i worry about there future. i also worry about how much suffering and pain i m gonna go through.can  anybody relate to my condition? would like some info on what comes next or just to share your story. thanks!