Vaginal Atrophy or something worse? Advice needed.

Hi ladies,

 

I had endometrial cancer which was diagnosed in Dec. 2010. I had a complete hysterectomy in Feb. 2011. I was fortunate that it was caught early and after surgery, I didn't require any follow-up treatments other than seeing my Gynecologic Oncolgist twice a year for a pelvic exam and a vault smear.

What brings me here is ithis....last August I found some blood in my underwear. I was shocked to see it. It had never happened before. It wasn't alot, but enough to kind of freak me out. I went to the ER and the Dr. did a visual exam with a speculuum. He said that everything looked okay. He said he thought he saw a bit of dried blood very high in the vagina. I saw my Gynecolgic Oncologist in September and did a pelvic, digital rectal exam and a vault smear. He said things looked and felt fine. Vault smear came back normal. He thought it was probably vaginal atrophy. But can vaginal atrophy cause spontaneous bleeding? I thought most of the time you only bled after sex if you had this?

Okay...so no more incidences of bleeding until around Thanksgiving I was using the restorom and when I wiped I noticed a bit of pinkish blood in the tissue.  Late January I had a few spots in my underwear again.Oh and I have been having microhematuria in my urine samples for a couple years and this always puzzled me. I call my Primary Care Doctor and refers me to a Urologist to make sure my urinary tract is functioning normally.  I have a consultation and a urinalysis...yes there is some microhematuria in my sample. They schedule a CT/Urogram for the next week. The CT doesn't show anything much except for some prominent lymph nodes in my upper bowel area and some anterior bladder wall thickening. They want me to have another CT scan in 3-6 months to check the prominent lymph nodes again. I just had that last week and it came back normal. Nothing else was noted excepted for bladder thickening and some spine issues that I was already aware I had.

I had a Cystoscopy in January and the Urologist said that he didn't see anything suspicious for a malignancy, but he said I have Trigonitis. From what I gather, Trigonitis is a bit like Interstitial Cystitis except it's the triangle area of your bladder and the floor, not the entire bladder. I guess I'm worried that perhaps he missed something or maybe should have taken a biopsy of my bladder to make sure it really was Trigonitis.

 

I woke up Saturday morning and had some watery-ish blood again. I hadn't wet my pants or anything. I have never had urine gush out or anything either, I hope I don't sound ignorant because I can't 100% tell if it's vaginal or urethral!  Oh and before the CT last week, they had to check my kidney function and it was good.

 

My Gynecologic Oncologist prescribed VagiFem tablets last fall and I have yet to start them. I guess I was worried about the estrogen, but he assured me that it was not systemically absorbed. Should I start them and see if I have no more incidences of blood? I am just a mess because all I can think about is I have cancer somewhere and no one has figured it out. I would think that the CT scan would have shown any masses so I should try to calm down.  If anyone has experiences with vaginal atrophy or what it behaves like, could you please share?  Thank you for reading my novel!  Best to all.