How long has it been since your kidney surgery? What stage were you? Any recurrences of cancer?

2

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  • todd121
    todd121 Member Posts: 1,448 Member
    Answers...

    1.  How long has it been since your kidney surgery?

         Radical right nephrectomy December 9, 2012.

    2.  What was your staging?  

         At that time, Stage 3 Grade 3 (Stage 1 prior to surger, after pathology came back, it was Stage 3).

         Tumor size: 6.8cm

    3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

          I did a 1 year drug trial for Everolimus, but it turned out I was on the placebo, which I found out after being unblinded when I had a recurrence.

    4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

         Two years later, recurrence to right adrenal gland (the same one that had been attached to my kidney). Had adrenalectomy in February 2015. Refused a second drug trial for Votrient vs Placebo. Staging changed to Stage 4 as a result of the recurrence. So far cancer free 3 years. Followup CT scans every 3 months for chest/abdomen/pelvis and blood work.

  • Bay Area Guy
    Bay Area Guy Member Posts: 618 Member
    June, 2016

    June, 2016

    Stage 1.....1.7 cm.....chromophobe.

    No chemo or any other treatment.

    Sixmonth and one year x-rays/CT scans were NED, so doc put me on annual scans for now.

  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member
    Duty Done

    1 Sept 2017 partial nephrectomy by Da Vinci.. four weeks after diagnosis right kidney

    2 Stage 1b no grade Chromophobe RCC 4.4 cm greatest dimension ( I follow Stub in every thing I do)

    3 No

    4 No based on low risk screening done March 2018

    6 six months on still struggling with fatigue and other wierd symptoms 

     

  • Hd67xlch
    Hd67xlch Member Posts: 151 Member

    1.  How long has it been since your kidney surgery?

         2011

    2.  What was your staging?  

         stage 1 grade 2

         Tumor size: 4.7cm

    3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

          no cancer drugs or any treatment

    4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

         2016 right lung surgery lower lobe removal, 2017 left lung surgery to remove two mets in upper lobe, still no cancer drugs

  • JoeyZ
    JoeyZ Member Posts: 210 Member
    1.  How long has it been

    1.  How long has it been since your kidney surgery?

    Radical right nephrectomy on March 8th - 6 weeks ago today.

     2.  What was your staging?  

    Papillary Renal Cell Carcinoma, Type 2, Grade 3

    Tumor Size: 10 cm

    3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

    Yes, on April 5 this year I started Oral Chemo - Cabometyx, 60 mgs. per day. Just starting my 3rd week on it today. (Apr. 19th) Side effects are beginning to increase, but we are managing them thus far. Bloodwork says liver is fine to continue with this strength treatment. Mostly doing this as they were not sure if they got everything out of the liver, and the CT Scan with no contrast does not show organs clearly. Going to ask the Nephrologist about this tomorrow, if I can have a scan with dye or contrast just to see.

    4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

    None so far. Just had a CT Scan a month after surgery. Still have a lot of swollen lymph nodes in the chest, but no new tumors visible. Everything is what they call "Stable."

    I guess there will be another scan in 3 months, as this is quite an aggressive cancer. Happy to be NED!! But we have to watch the lymphs carefully.

  • daisybud
    daisybud Member Posts: 541 Member
    My info

    1. Partial right robotic nephrectomy 2/2016

    2. Stage 1 ,  grade 2

    3.no

    4.no

  • Cinnamongirl
    Cinnamongirl Member Posts: 199 Member
    My info

    1. Radical left robotic nephrectomy Dec 5, 2017

    2. Stage T2B (13.3 cm tumor) Grade 3

    3. No other treatment waiting on ablation for new primary tumor 1.5 cm on remaining kidney

    4. No metastases but new primary in right kidney. After ablation I will be NED

     

    Cin

  • BoondockSaint
    BoondockSaint Member Posts: 242 Member
    Wife had partial neph in Marc

    Wife had partial neph in March of 2017

    Stage 1 @ 3.5cm RCC

    No additional drugs or treatment 

    6 mo. Scan - NED

    1yr Scan - NED

     

  • Steph85
    Steph85 Member Posts: 166 Member
    My info

    1) January 22, 2018

    2.) no chemo or anything 

    3.) nothing so far! I had a bone scan which was clear. First set of scans in June. Day before my birthday, so they better be NED! It would be the best birthday gift ever! Haha! 

     I forgot- size was 3.3 cm, stage 1 grade 2 clear cell RCC

    Stephanie 

  • Devastated Wife
    Devastated Wife Member Posts: 52 Member
    Thanks, everyone.

    I'm really feeling down about it all.  I can't stop thinking about it.

    My husband is such a good person.  I keep all my worrying to myself because I just want my husband to remain happy and positive.  I don't want to bring him down.

    I think I've gone on too many sites and the information I read has just been so bad and it has really affected me.

    The good comments above have helped.

  • rhominator
    rhominator Member Posts: 233 Member

    Thanks, everyone.

    I'm really feeling down about it all.  I can't stop thinking about it.

    My husband is such a good person.  I keep all my worrying to myself because I just want my husband to remain happy and positive.  I don't want to bring him down.

    I think I've gone on too many sites and the information I read has just been so bad and it has really affected me.

    The good comments above have helped.

    To boost your spirits,

    To boost your spirits, consider posting another survey/questionaire, something like, asking members what have they accomplished, done or enjoyed since their cancer diagnosis.

  • Arknut
    Arknut Member Posts: 5
    1. Left partial neph March 22

    1. Left partial neph March 22, 2018

    2. Originally told stage 1-  tumor was 2.8- blessedly benign oncocytoma!

    3/4. Just had another CT scan 4/18/2018 to check arteries- all clear! No additional followup needed. My surgeon was positive this was cancer. Just goes to show we are not in charge. Keep the faith, good news does happen!

     

  • schmadj18
    schmadj18 Member Posts: 2
    My info

    1.  How long has it been since your kidney surgery?

         Robotic partial nephrectomy January 5 2018

    2.  What was your staging?  

         Stage 1 Grade 3

         Tumor size: 4cm

    3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

          No

    4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

           No   Follow up in May        

     

  • klj15
    klj15 Member Posts: 38
    Surgery: 03/20/2017

    Surgery: 03/20/2017

    Stage: 3 - 16.9cm chRCC

    Other treatment: None so far

    Recurrences: None so far

  • CRashster
    CRashster Member Posts: 241 Member
    me

    May 2016

     

    T3A

     

    Nope

     

    Nope.

  • Devastated Wife
    Devastated Wife Member Posts: 52 Member

    To boost your spirits,

    To boost your spirits, consider posting another survey/questionaire, something like, asking members what have they accomplished, done or enjoyed since their cancer diagnosis.

    Thank you, rhominator.

    Smile

  • jazzgirl
    jazzgirl Member Posts: 240 Member
    One more -

    1.  July 27, 2016     Open partial nephrectomy right side (born with only right kidney)

    2.  Staging:  pT1b   Renal cell carcinoma, clear cell type, ISUP grade 3; 4.7 cm

    3.  No chemo or other treatments

    4.  No recurrences.  Dec 2016 CT scan showed a weird cyst or something on the left side - In CT a month later nothing appeared.  It seems to fill and empty where the left kidney should have been.  A little primordial kidney?  I'm curious to see what they find (or not) this June.  One year scan NED.  Recent lab tests good; major scans coming up in June.

  • Glidergal365
    Glidergal365 Member Posts: 93
    Hopeful surgery is enough!

    1.  How long has it been since your kidney surgery?

         March 29, 2018- laparoscopic right Hand assist (2 port holes, one 5-6 inch incision right lower abdomen)

    2.  What was your staging?  

         T1b Papillary RCC Type 2

         Tumor size: 4.5 cm by 3.5 Right lower lobe- completely contained, no renal vein or artery involvement. Clear margins. No perinephric fat involvement.

    3.  After you had your kidney removal surgery, did you go on chemotherapy or any other treatments?

          No

    4.  Have you had any recurrances of cancer?  If so, what happened and how long after your kidney surgery?

    no- Will be establishing with an oncologist next week for my future follow up

     

     

  • EK75
    EK75 Member Posts: 6
    My info

    1. Robotic partial sept 2016

    2. Stage 1A, Grade 2

    3. No

    4. No

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    EK75 said:

    My info

    1. Robotic partial sept 2016

    2. Stage 1A, Grade 2

    3. No

    4. No

    Dr, says I will die of something else.

    1. Nephed, 8.01.02

    2, 4,2 cm

    3 and 4, NO

     

     

    icemantoo