Colon Cancer and metastasize to Lungs

13»

Comments

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    Travelmom said:

    Mets..hair..scans

    Good morning. It's been awhile since I've been on. I am normally the ultimate optimist but I'm feeling down today. I have a scan on Wed and I guess I'm just getting "scanziety". I also have been such a trooper through all this...if I may say so myself...lol...but now I am losing ALL my hair. I know it's nothing compared to what others have lost.. and I try to keep reminding myself of that. I was a beautiful, natural red head with long, thick hair. It was how people described me. I wanna cry everytime I look in the mirror. So I stopped looking. Anyway..on to head scarves and wigs. I really am sorry for complaining on here but you guys are all so gracious. Anyway...also not to high jack the subject....I too have mets to the lungs that shrank a wee bit after 4 rounds of Folfieri. I just finished round #8. My dr never mentioned surgery. When does that get considered? 

    SometimesI just want to go to bed and not get up. But I have 3 wonderful children and a good husband. What would they do w/o me? Thanks for listening folks.

     

    Allowances

    You are allowed to be devestated about your hair. I remember thinking before mine fell out, that it would be no big deal; but it was. I was devestated every time I got out of the bath, and saw all of my hair in the tub. So allow yourself this time of sadness, but try your very best not to let it take over. 

    Ask your Oncologist outright, why surgery hasn't been mentioned.  And if no surgery, why. 

    Don't ever feel you need to apologise for your sorrows. That is why we are all here. To listen, to empathize and to bouy you up. 

    Tru

     

  • Pamcakes
    Pamcakes Member Posts: 112 Member

    My Husband Just Diagnosed with Stage 4 Mestastic Colon Cancer

    4 weeks ago he had surgery to remove the mass in his colon.  He is going to the oncologist next week. He has it in his lungs and liver.  Does anyone know the best hospitals in the USA for lung and liver cancer and the newest technologies available?? 

    I know how you feel as a wife

    I know how you feel as a wife and trying to grasp all of this. We choose MD Anderson bec we knew of friends of friends who've had success there. We reside in WV. So the cost every 2.5-3 months is costly. We continue to go because we are comfortable and feel they best meet DH needs( he is 38 & stage 4). Honestly find a good well know cancer center close to you and try them out. We have a local oncologis. Well we just fired the local oncologist and will be "interviewing" new ones local. as I ramble, my point is don't settle, far from home, close, wherever or how many on your care team. Develop a care team you and your husband are comfortable with. You pay for their service, if you are not comfortable and not receiving the care you want/ attention to needs, look elsewhere.  Be your husbands advocat. This is a very trying time and you have very little control, make sure your DH has a team that listens and cares as well as kicks cancers ****! Prayers! This is hard as a caregiver. I've not received much support emotionally from family etc. so keep in mind there are wives that understand and reach out. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Travelmom said:

    Mets..hair..scans

    Good morning. It's been awhile since I've been on. I am normally the ultimate optimist but I'm feeling down today. I have a scan on Wed and I guess I'm just getting "scanziety". I also have been such a trooper through all this...if I may say so myself...lol...but now I am losing ALL my hair. I know it's nothing compared to what others have lost.. and I try to keep reminding myself of that. I was a beautiful, natural red head with long, thick hair. It was how people described me. I wanna cry everytime I look in the mirror. So I stopped looking. Anyway..on to head scarves and wigs. I really am sorry for complaining on here but you guys are all so gracious. Anyway...also not to high jack the subject....I too have mets to the lungs that shrank a wee bit after 4 rounds of Folfieri. I just finished round #8. My dr never mentioned surgery. When does that get considered? 

    SometimesI just want to go to bed and not get up. But I have 3 wonderful children and a good husband. What would they do w/o me? Thanks for listening folks.

     

    Treatment

    Sometimes treatment affects others differently.  My hair never fell out but thinned out very much but no one could tell, but I've experienced other affects from different treatment.  I'm sorry that you are going through this and hoping that all will go well going forward.  This is a hard place to be in and sometimes you do just want to go an curl up and not go on, but like you said you have children, husband and LIFE.  Remember, you can only do what you can, but don't ever give up hope. 

    Kim