new mother recently diagnosed ....where to begin?
I'm the husband of a lovely 43 year old brand new mother who thought her symptoms were the lingering effects of a c-section. The primary care doctor thought it might be IBD or Crohns but the pain got worse over a recent weekend and we ended up in the ER. That quickly turned south and it is in her liver with a number of not so good looking spots. A section of her colon was taken out and they feel that there are no more tumors in there. (there was one and one polyp - both removed) Lungs are clear.
One of her grandfathers had it at age 75 and lived to be almost 90, there are no other family members who have had it that we know of so it would have never occured to us for her to have a check of the colon.
We do feel somewhat fortunate that we know what it is now instead of waiting until June for a Colonoscopy which after the dr appt was the earliest they said they could get us in. And the main tumor is out ( 3/4 blockage so it had to go) so we do feel we are moving in the right direction versus a long drawn out waiting game of unanswered questions.
We have a number of appointments with some respected Oncologists in different parts of the country in the coming weeks and have also been bombarded with well intentioned ideas about alternative therapies which is overwhelming.
things that have been mentioned are medical mj, dandelion root, curmucin, chris beats cancer etc
I am generally convinced that MMJ can help with side effects of treatment but have not been convinced it helps reduce tumors
the Doctors we will be seeing are at UCLA, USC, U of C Chicago, Northwestern and one other I can't think of at the moment..what day is it again? They all have quite a following from what I understand so far
any recommendations of questions to ask would be appreciated - we have a list that is too long to post but I am looking for things to ask that we haven't thought of so please feel free to make suggestions
our first two appointments are on Monday
questions for those reading are - how criticial is it to start chemo soon? we would like to explore as many options as possible but don't want to prolong getting started
these doctors are chemo drs so I wonder how much they know about alternative therapies and or combining them with chemo
any idea how to bring that up? any thoughts on alternative therapies? success stories?
for those that saw several drs before choosing one - can you give me recs about how you chose yours? reputation, confidence? bedside manner? other???
at one of the institutions we have a very good friend who is head of all doctors and we feel that might help immensly in handling her care and help us navigate the situation
I will check back frequently for responses and if you have or had a similar situation - section of colon taken out and it has or had spread to liver - please share your experience with anything you can think of
I have seen the Sloan video on Hepatic Arterial Therapy and would like any info or comments on that as well - it is something I would like to talk to these doctors about and get their input
thanks for reading and don't be shy in responding
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