New to the group

Yay!

I welcome you again, Dmac.

First off, don't worry about spelling. 99% of us have chemo brain or neuropathy, and happily blame any and all typos on that. 

Again, I tell you, don't pay too much attention to the stats.  My friends dad was told 17 months. He was doing well, responded well to chemo and radiation, then, at 17 months my friend went to visit, and found him sitting in his chair. "what's wrong?" she asked" 'They told me 17 months'. He was literally waiting to die. Poor chap! To be so believing of the Doctors. He lived another six months, and may have lived more, had he got up out of his chair and LIVED. 

So, there's my two pennies worth. 

You are allowed to be despondent though. Just for a while. But you have to 'get over it' or it will bring you down. 

I'm not saying 'all is well', you have a fight ahead, but you're no stranger to that. 

Others will be along soon with their answers. As for me, I say move forward believing that you are the one who will do well. You will beat the odds. Many here are beating the odds, join us. 

Tru

Welcome, Dmac!

You've been through so much! You certainly look strong and youthful enough to keep fighting this monster. Also, we're all unique and no one can truly tell us 'how long we have left.'  I'm only 10 months into this nightmare. People like you give me so much hope and inspiration. 

I say choose your treatments and keep living. Please share your progress with us. We'll be praying for you. - -Beth

p.s.   I kind of dig my colostomy. It's so much easier than the hell I experienced with my rectal tumor before surgery. But glad you were able to reverse, wow!

Welcome

i am not a cancer survivor my husband has the cancer. I only know about Lonsurf from what I read on here, it’s tough to handle. I see you said you might be a candidate for cyber knife, that would be excellent! Cutting things out is the best way to go if it’s possible.  I would say don’t google but I would be a hypocrite. Good luck I really hope you are able to get surgery!

plan B became our plan A

A therapy called ADAPT (daily capecitabine[5FU chemo] + Celebrex/celecoxib) was used to salvage mCRC patients whose FOLFOX/FOLFIRI treatments had failed them.  A lot of patients  added  many  years.   

We use oral 5FU chemo + celecoxib + powerful supplements on stage IVb colon cancer to re-sensitize the cancer cells to 5FU and to remove/reduce most side effects, partly targeted with an expanded blood test series of common labs.   Generics and cash prices  are actually cheaper than insurance premiums or deductibles or max copays, much less than all of them combined, for chemo without Avastin, Erbitux etc.  I shopped around for supplies and blood tests. 

Others have bought time even starting late and doing less but to me, cumulative dosage of mild generics and correct, high potency supplements,  and earliest continuity are key to time and quality of life. 

Dmac1957 said:

Thank You

I just wanted Thank All for making me feel welcomed. And, the speed of answers to questions. Since joining I already feel better mentally.

God Bless You All

Dennis

Glad

So glad that you feel better coming here.  This board has a lot of knowledge and a lot of caring people.  Keep coming here to get support, answers and understanding. 

Kim

Don't pay too much attention to the survival times,Dmac

I looked up info on cetuximab (Erbitux) when  my oncologist suggested it.  The  median progression free survival time was 4.4 months, median overall survival was 10 months. I began treatment with it, combined with irinotecan in April 2016.  So far  no new mets, and I'm still here, feeling  pretty good overall.

Grace/lizard44