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Whoo boy do I need help

clederman
Posts: 10
Joined: Jan 2018

58. 7 years post menopause.  Started bleeding, light colored.  Stopped.  Started again with what I can only describe as pieces of tissue.  Stopped.  Gyne appointment yesterday.  Never had children so she could not get speculum open enough to get past cervix.  Next up, transvaginal ultrasound then appointment to discuss those results.  Now everything is freaking me out.  I am overweight with hypertension.  She mentioned the c word.  Now my bowels have been off for about two weeks.  (green, not my usual routine)  now I went to the bathroom and it is dark!  I am really freaking out here.  Anyone out there have the same symptoms before diagnosis?  I know from reading you all are not doctors but I need some like experiences if there are any.

 

Thank you!

 

Cindy

saltycandy13
Posts: 167
Joined: Dec 2017

There is a pill called Cytotec.  This is known as "the abortion pill" but it's for women who never had children and have a closed cervix.  She should make you take one of these pills the night before the exam.  That will open the cervix.  I've had to do this 3 times.  I never had kids either.  The pill causes cramps and nausau but it's worth it.

clederman
Posts: 10
Joined: Jan 2018

Thank you for this.  I will ask her about it

janaes
Posts: 741
Joined: May 2016

Im glad you are getting this stuff checked out. Its important. It might not turn out to be cancer. This testing is a hard time. It was for me. I tried to stay busy doing other things. I too never got pregnant. I hope the best for you as you go forward with this testing.  I did end up with cancer and was able to do what i neede to. Eberything seems to work out.  Let us know how things go.  This is a great group for support and information. I hope others com along soon also.

Janae

MAbound
Posts: 829
Joined: Jun 2016

Hi, welcome to the group! Take a breath and take this one step at a time. Iron can make your stools green or dark, so think about what you have been eating (some processed foods are iron fortified) or maybe ask to have your level checked. 

SF73
Posts: 252
Joined: Oct 2017

So glad that you immediately made an appointment to understand what is going on with your body. So often life gets in the way. It is nerve racking to wait for the test results but going to the doctor when you have something abnormal is the best thing you can do for your health. Please don't forget to share all your symptoms with your doctor at your appointment. I am hoping that it is nothing. But if it turns out to be the scary C word, you can follow the leads of many warriors here on this forum. Best of luck! 

Northwoodsgirl
Posts: 506
Joined: Oct 2009

So glad you found us in your time of need. We have all had this period of anxiety and fear. You will get through this uncertainty about your symptoms and unknown diagnosis. 

Personally I don’t have faith in ultrasounds. My ultrasound was normal but my biopsy confirmed endometrial cancer. I too never was pregnant- that being said my mother bore 4 children and she was diagnosed with uterine cancer 4 yrs before me at age 72. I was 52 years old when diagnosed. I just thought my vaginal bleeding was symptom of going through menopause. Please talk with your doctor about getting vaginal biopsy. If diagnosed with uterine cancer find a board certified Gynocologist-Oncologist. Come back to this discussion board and we will help you based on our collective experiences. There are a lot of intelligent, well read and knowledgeable women who frequent this site. We will help you! Please know that most all of us remember how freaked out we were when we had symptoms that may or may not be cancer.  It will get better once you know a definitive diagnosis, have an appointment with Gyn-Oncologist (IF you have cancer) and have your first appointment with a physician in a clinic that is focused on a treatment plan that is based on your individualized and personal needs and values. Hang in there! For what it is worth I am a registered nurse and it was such a helpless time in my life until I learned and understood my diagnosis and treatment plan and decisions I needed to make about my treatment. Once I had a treatment plan then I regained a sense of control and stopped freaking out. It is a roller coaster of emotions not knowing what is going on....

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017

I had the bleeding issue, and was 51, so we chalked it up to being peri menapausal. (I too never had kids) After a few Dr's just put me on medicine, one finally did a biopsy after the blood was bright red. It ended up cancer. Do as the others have suggested and get a biopsy and then take it from there with your Dr. . As was stated, your food can make your poop change colors (don't you love how we can be blunt lol) so it might be what you are eating too. Relax and take one day at a time. We are here to help however we can!

HorseLvr's picture
HorseLvr
Posts: 102
Joined: Nov 2017

I am 55 and have been having occasional bleeding and/or spotting since a couple years after menopause (at 45). I didn't do anything about it untill last Oct. when I had a gyn appointment for something else, and had a 3 days bleed a couple weeks prior, which I told my GP about and she said to tell the gyn. I'm waiting for an u/s date (long story about why I didn't have one sooneer), so we're at a similar stage in the process of investigating. My gyn told me yesterday that all cases of post menopausal bleeding are considered cancer until proven otherwise. He has also told me that 19 out of 20 cases of PMB are *not* cancer. It's easy to forget that when you are worried and anxious. I totally get the anxiety, I'm a horrid one for being anxious, then cancelling everything to retreat into denial land. Ask the ladies  here lol. 

Good luck with it. I hope all goes well for you. Will watch for updates.

clederman
Posts: 10
Joined: Jan 2018

Thank you all so much for your helpful advice.  It is almost getting to the point where I don't want to go to the bathroom because I never know what surprise I have waiting for me! LOL!  I will let you all know what my test results are.

pinky104
Posts: 574
Joined: Feb 2013

Not only iron-rich foods and iron pills can turn your BM's dark, but so can Pepto Bismol if you've taken any of that lately.  I'm another one who never had kids.  I had an ultrasound which found a polyp, then had a D&C which determined that the polyp was cancer after the tissue was biopsied.  Probably almost everyone on this site had about the same reaction as you did when facing this problem.  Nobody wants to hear that news. 

 

Jacjac2's picture
Jacjac2
Posts: 44
Joined: Feb 2016

Please don't put it off.  I had several signs, and just told myself it was something minor.  It wasn't.  Not everyone gets the bad news, it can be minor but to be same please just get it done.  I am not on here often, I guess I try not to think about it.  While I dont respond to everyone, the ladies that do have some really sincere, open, honest, and loving replies that say a lot.  If noting more, it helps me realize, I am not alone.  Thank you ladies who are faithful with us all.  I keep the group in my mind and hope to be here more often.

 

clederman
Posts: 10
Joined: Jan 2018

So here are my test results.  Have doc appt on Wednesday and....... my mammo showed a 1cm small focal asymmetry so I have to have a second look and ultrasound.  My trans vag showed a 3cm mass and thickened wall so I am not sure what she is going to say.  All in all I am hoping for good news.  If the fibroid is benign I hope she has it all taken out so I don't go through this again.  Will update after doc appt on Wednesday.

Northwoodsgirl
Posts: 506
Joined: Oct 2009

Wednesday can’t come soon enough I am sure. Praying for good news. 

clederman
Posts: 10
Joined: Jan 2018

Well after many extra pictures and a 3D splice view, my mammogram was given an all clear :).  I have to have a D & C and the pathology from that will determine where we go from there but she assured me that 1% is cancerous so I am very hopeful.  The mass is outside of my uterus and she is 100% confident that it is a fibroid.  Good news all around.  Will come back and give pathology update.  Thank you again ladies for all of your wisdom and encouragement.

MugsBugs
Posts: 103
Joined: Jan 2018

clederman - the D&C is a piece of cake.  You will take a nice little nap and wake up feeling pretty good.  There was only slight cramping (not even as bad as having your period) for about an hour or so afterwards.  Good luck - hopefully it is just Fibroids!

 

Good luck! 

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

Great news!  Just a bit of my history I had a D&C in 2004.  All clear.  Post menapasual 2011 started bleening went to gyn dr said let's another d&c.  This time there were more polyps and a tumor in my uterus.  Cancer.  If I knew what was to be, I would have had a hystorectomy back in 2004.  Might think about it.  Now that I am 6 1/2 years from the cancer I have a much better ability to look back on it.  I now wear any color I want, even white pants, no worries.  One of my co-workers, in her 40s had a partial hystorecomy, left the ovaries, everything else removed.  She loves it.   Good Luck with your meeting and health.  trish

saltycandy13
Posts: 167
Joined: Dec 2017

Great news about the mammogram.  Now you need to get through the D/C   I had 3 in 5 years so they are not all that bad.  You'll be out of the hospital the same day, probably bleeding a bit though.  Keep us posted.  We pray for good news!

 

Karen

clederman
Posts: 10
Joined: Jan 2018

Can you all tell me what type of anesthesia you used?  I am being given a choice of twlight or general anesthesia.  Both carry worries from my end.  Twlight I am afraid it will hurt (me and medical procedures do not get along)  GA and I am concerned about my heart palpatations and my obesity.  Let me know what your experiences were

MugsBugs
Posts: 103
Joined: Jan 2018

I had general anesthsia for the D&C and it was a piece of cake.  I had to have a colonscopy as well because they thought they saw a mass in my colon (thank God it was anything except diverticulosis - I don't know if I could have dealth with both uterine and colon cancer - but I digress).  They gave me the twilight anesthesia for the Colonscopy.  I was asleep for part of it but was awake for part of it as well.  Personally I prefer the general anesthesia because I didn't have any reaction and what I don't know won't hurt me - I was kind of freaking out when I saw the diverticulosis because i thought it was a mass.  The D&C and hysterscopy (which I assume they are going to do as well) takes less than 1/2 an hour.  Within an hour you will be ready to go home.

cmb's picture
cmb
Posts: 344
Joined: Jan 2018

I've had both types of sedation. My first colonoscopy years ago and the port insertion last year were done under twilight sedation.

Except for a brief moment, I was pretty much out for the colonoscopy.

I was awake during the whole port insertion process, but it was very quick and I didn't feel any pain since they had also given me a local anesthetic.

I've had general anesthesia for both my D&Cs, two most recent colonoscopies and hysterectomy.

I've had no problems with either form of anesthesia, despite being obese and having a naturally fast heart rate. When I have a choice, I prefer the general anesthesia since that ensures an anesthesiologist will be in the room during the procedure. This isn't always the case during twilight sedation where the doctor performing the procedure may also administer the sedation drugs.

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

For an easy and quick procedure like a D&C twilight sedation is just fine...I've had it several times (at least 5 different procedures) and I always fall asleep (excpet when I had my port put in and the doc kept talking to me the whole time). For my D&C i remember saying hi to my doc and then I don't remember anything until they woke me up and for that I had twilight sedation...I have no memory of the procedure and no pain at all...

if you have general anesthesia they will have to put a breathing tube in you...it's more than just a little medicine in your iv...and since the procedure is easy and quick the twilight will keep you from feeling and remembering any pain or anything and you don't have the risks of general anesthesia...

MrsBerry
Posts: 102
Joined: Dec 2017

If by “twilight,” they mean sedation, that is how I had my d & c/ hysteroscopy. It was fine. I remember the lovely anesthesiologist putting on some music, I sang along for about 3 measures and then it was Lights Out For me! Next thing I know, I am in recovery, everything done and I was unconscious the entire time. 

Best of luck to you, you have had quite a worrying time, but I am so glad you are getting things taken care of. Hugs! 

saltycandy13
Posts: 167
Joined: Dec 2017

I had Twilight all three times.  Never had a problem with it.  all of my D/C's were less than 1 hour long.  You should not worry.  As long as your EKG is okay, you are good to go.  Don't forget the Cytotec.  That was my main problem because of my closed cervix.

Karen

clederman
Posts: 10
Joined: Jan 2018

So my D & C is scheduled for Friday.  Doc calls today and says that even though I am only having twilight she wants a chest xray and EKG because of my weight.  Now I am terrified.  If she has concerns then clearly there is more risk than I thought

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1504
Joined: Jun 2015

Clederman,  I am not overweight and other than having had cancer, I'm very healthy. I had to have an EKG and xray prior to my D&C too. Just wanted you to know that it is not uncommon for doctors to make sure all is well so that they can avoid any potential issues or at the very least, be prepared for possible problems.  While there is always a risk with surgery, they have come a long way in managing us while we are under.

I hope this helps!

Love and Hugs,

Cindi

clederman
Posts: 10
Joined: Jan 2018

Hi all,

D & C went fine.  Didn't feel any pain and even though I was terrified about anesthesia, I came out just fine.  She found a polyp and is 99% sure that was the cause of the bleeding.  She scraped the lining and I have an appointment Wednesday for the results.

EZLiving66's picture
EZLiving66
Posts: 1322
Joined: Oct 2015

Please let us know the results!!  The waiting is sometimes the worst.

Love,

Eldri

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2547
Joined: Mar 2013

glad it went well.  try to relax.

Northwoodsgirl
Posts: 506
Joined: Oct 2009

So glad to hear your procedure went well. I imagine it is hard to wait for results. One day at a time! 

Lori

clederman
Posts: 10
Joined: Jan 2018

Hi Ladies,

Wanted to let you all know that my pathology was all clear.  I want to thank you all for taking time out of your own journey's to assist me and assure me in mine.  You all were a blessing in a time of intense worry for me.  I wish you all much luck and blessings in your journeys and I will pray for you all.

Cindy

ConnieSW's picture
ConnieSW
Posts: 1415
Joined: Jun 2012

i am so very happy for you. Live well. 

Kaleena's picture
Kaleena
Posts: 1928
Joined: Nov 2009

Cindy, now you can breath!   Great to hear good news!  Now go out and enjoy!

Kathy

Cass83's picture
Cass83
Posts: 151
Joined: Feb 2017

I am happy for you that things turned out so well!

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1504
Joined: Jun 2015

Great News! Now you can put this experience behind with a new found love of life!  Congrats and take care.

Love and Hugs,

Cindi

Northwoodsgirl
Posts: 506
Joined: Oct 2009

Blessings to you! A clean pathology report! Live your life to its fullest every day! 

Lori

clederman
Posts: 10
Joined: Jan 2018

Well I started bleeding again.  Terrified.  My pathology was clear but she did have one fibroid she could not get out.  Is it possible that even with clear pathology that the one she left behind could be cancerous?  Doc appt tomorrow

pato58's picture
pato58
Posts: 97
Joined: Jun 2018

the procedure called myomectomy that could remove the fibroid in question and determine if it is benign (almost always) or not.
Let us know

zsazsa1
Posts: 291
Joined: Oct 2018

Having had a myomectomy 30 yrs ago (with a small low transverse incision), and having just had a vaginal hysterectomy with laparoscopy, I would say that the myomectomy was definitely harder to recover from.  Honestly, if they would let you have a vaginal laparascopic total hysterectomy, then you would never have to worry about it again.

But to reassure you, the chances of them having missed malignancy are very low.  

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