Thought the pathology report would clear things up, but ...

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Comments

  • takingcontrol58
    takingcontrol58 Member Posts: 272 Member
    Evolo58

    Evolo58,
    You have to contact Foundation One directly.  They will have you fill out a form
    to see if you qualify for financial assistance.  Then you will know in advance
    if it will be covered. You have nothing to lose to ask them. My testing 
    was done in Jan 2015.

    This is what a friend of mine did. She called them first to know they would
    pay for it. Then she worked with the doctor to send in her tumor sample.

    Takingcontrol58

     

     

  • evolo58
    evolo58 Member Posts: 293 Member
    edited December 2017 #23
    I finally talked to someone

    I finally talked to someone from the university. While their program is similar to Foundation One, it takes months to get results. FO takes weeks. The person had no idea as to the cost of the university program. Also, you need to be approved. It's annoying that it all seems so hush-hush in any case.

    I am seeing a genetic counselor next week. I might be able to ask more then about Foundation One. Right now, it's the holidays, and I'm not expecting miracles re anyone getting back to me.

    Since my tumor isn't even removed yet (this chemo is neoadjuvant), I guess I have a little time to sort things out. But whichever program I choose, I want to send it SOMEWHERE to be sequenced. It's not exactly encouraging, though, when the Uni rep isn't entirely enthusiastic about the Uni program!




    EDIT.

    My PCP is willing to give me at least a low dose of Metformin. So that is some development.

    When I talk to my genetic counselor and/or message my doctor, I will talk ask more about Foundation One re financial assistance. If I am rejected for financial aid, it will definitely tip the scales if the second faciiity approves me for their sequencing program, even if it does take months. It will TAKE months for me to get through the second round of chemo after surgery (3 sessions @ 21 days). To me, the main thing is to be approved for SOME sort of sequencing program ... have my tumor examined for any mutations that impact my treatment in the future. Foundation One would be optimal, but I will not put my family into debt to do so if I am rejected for aid. It looks like the FO financial aid application form is pretty basic ... nothing particularly shocking. As takingcontrol58 indicated, nothing ventured and all that. Having a possible Plan B is actually a little comforting, even if that is not 100% what I want. The idea is to be proactive and move forward and get a genomics process moving.