Another good report

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Comments

  • Phil64
    Phil64 Member Posts: 838 Member
    Mikenh said:

    Glad to hear it but you need

    Glad to hear it but you need to stick around for the new folks with Stage 4 that are terrified.

    Mike, I wish I had more time!

    Mike, I wish I had more time!  But I will try to drop in on this forum more!

    Hoping for goodness and Blessings for you today! 

  • Phil64
    Phil64 Member Posts: 838 Member
    Bellen said:

    Great News

    Phil - First of all - I am so happy that you have such good news to share.  What a great feeling!   I noticed in your write-up that you had folfiri - did you have it up to Dec. 2014?  I have had 27 avastin + folfiri, and am on a 2 1/2 mo "much needed" break.  Going back on same chemo when I resume.  Have multiple liver lesions - no surgery.  CT scans have shown shrinkage in tumours, but still says multiple.  

    Chemo Info

    Bellon,

    Thank you!

    I posted to a blog throughout my chemo and surgeries. I also maintained a chart which summarized my chemo, surgeries, and CEA tests. My Blog is found at http://pscamihorn.me. My chart can be found on my blog or via the following link (https://public.tableau.com/views/CEA/Dashboard1?:embed=y&:display_count=yes&:showTabs=y&:showVizHome=no#5).

    I rece  FOLFIRI and Oxciliplatin from 06-2012 through 11-2012. When another recurrence was found I had a surgery followed by Folfiri and Erbitux. The addition of Erbitux proved very effective in my case. Erbitux is usually only considered if KRAS mutation tests positive (Usually 50% of colon cancer cases). In my case I did test positive for this mutation and the Erbitux really kicked the cancer hard.

    After the tumors shrunk I had surgery followed by four more months of Fofiri and Erbitux. Unfortunately I had Mets in colon and then later in liver. These Mets were surgically removed only to be followed by more mets in liver a few months later. 

    At that point the surgeon was not willing to operate because of all the recurrences. However my onc wanted to hit me with intense chemo and therefore gave me six months of folfixiri and bev (avastin). This was intense for me but it did prove effective and the surgeon reconsidered and agreed to a third liver resection on 12/5/2014. He removed 40% of my liver and removed the gallbladder in that surgery. My onc decided that we should try one year of Erbitux alone as a cleanup therapy. After that year we have only been doing CEA tests and CT scans and this colonoscopy most recently. So far I have been NED since the 12/5/2014 surgery.

    I have permanent neurapathy from the oxciliplatin in my feet. And I have some scarring from Erbitux rash. I also feel a lot more arthritis and have more sinus issues than past but I don’t really know if that is related to chemo or just getting older.

    One other IMPORTANT point. Around my last surgery my onc tested me for vitamin D deficiency. He started me on 1000 units of Vitimin D3. And reported that 90% of his colon cancer patients tested deficient. He also reported that recent data links vitimin D deficiency with multiple different cancers. 

    Hope this info helps!

    Love and Light to you on this Thanksgiving!

    Phil

     

     

  • Phil64
    Phil64 Member Posts: 838 Member

    Thank you!

    Phil, I am one of those current Stage IVs and I thank you for your encouragement.  I have been so fearful of the full on chemo but I have decided today to go for it. Port and all.  You and others are proof it can work and we can conquer the beast.

    I’ve been told by others on

    BRHMichigan, thank you for your note. And may Love and Light find you and bring you Joy, Healing, and Wonderful!

    I’ve been told by others on this forum... NEVER give up hope! And we fight because that is what we do!

    Please check on that Vitimin D3. Michigan especially deprives us from enough sun light. And my onc siting the data linking this to cancer should not be taken lightly. He is a data guru and follows all the latest research. 

    UMHS (now known as Michigan Medicin) is an awesome team of care providers.

  • Phil64
    Phil64 Member Posts: 838 Member

    WooHoo

    That is more than awesome news since you were diagnosed with Stage 4.  It's such a wonderful feeling to have all that back as "clean and squeaky".  So glad for you and you can have a very great Happy Thanksgiving now.  You have a lot to be thankful for.

    Kim

    Thank you Kim and great big

    Thank you Kim and great big virtual hug! May Strength, Joy, Healing, and Love envelop you during this feast of thanksgiving!

  • Phil64
    Phil64 Member Posts: 838 Member
    NewHere said:

    Here It Comes

    imageimage

    I love this :-)

    I love this :-)

    Thank you for the smile! And may countless Blessings flow to you beginning with this joyous celebration of Thanksgiving!

  • Phil64
    Phil64 Member Posts: 838 Member
    ron50 said:

    Congratulations Phil

     I hope survival becomes one of your habits. All the best for the future, Ron.

    Thank you Ron for being a

    Thank you Ron for being a role model of survival! May you find much Love and Joy during this celebration of Thanksgiving!

  • lhduffer
    lhduffer Member Posts: 90 Member
    What wonderful news

    That is wonderful news.  Truly something to be very thankful for!  May the NED continue forever more!  Have a blessed Thanksgiving!

  • BRHMichigan
    BRHMichigan Member Posts: 368
    edited November 2017 #29
    Phil64 said:

    I’ve been told by others on

    BRHMichigan, thank you for your note. And may Love and Light find you and bring you Joy, Healing, and Wonderful!

    I’ve been told by others on this forum... NEVER give up hope! And we fight because that is what we do!

    Please check on that Vitimin D3. Michigan especially deprives us from enough sun light. And my onc siting the data linking this to cancer should not be taken lightly. He is a data guru and follows all the latest research. 

    UMHS (now known as Michigan Medicin) is an awesome team of care providers.

    Vit D

    I have been supplementing Vitamin D for awhile now.  I'll continue Vitamin C IV therapy too, ozone saunas and some other natural supps.  Whatever it takes.  I am going to St. John Providence for treatment. Wanted to get 2nd opinion at UM but don't want to lose any more time at this point.

  • pritam24
    pritam24 Member Posts: 1
    My father is suffering from Buccal Mucosa Cancer

    Hi everybody my name is Pritam my father who is 61 years old was diagnosed for Buccal Mucosa Cancer ( cancer which appears on Cheeks inner side) we are already done with is surgery few months back and after that surgery it was found that the Level 5 node had showed the presence of Cancer cell but it is now taken out of his body .He has under goen 4 Chemo therepy and 11 cycles of radiation and one concurrent chemo ( chemo given between radiation therepy ) as of now he cant eat properly as the neck part is having ulsers that is caused due to chemo , we are going to stop the radiation in middle that is after his 11 cycles of radiation.( doctor has suggested for 34 cycle) 

    Radiation was advised to us as a precautionary measur so that the cancer should not reaccure as of now considering is inabality to eat anything m thinking that rather than detoratiing his health any further i should stop the radiation because i cant see my father in pain .

    Please if their is anyone who has stoped his radiation in middle do let me know . 

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    pritam24 said:

    My father is suffering from Buccal Mucosa Cancer

    Hi everybody my name is Pritam my father who is 61 years old was diagnosed for Buccal Mucosa Cancer ( cancer which appears on Cheeks inner side) we are already done with is surgery few months back and after that surgery it was found that the Level 5 node had showed the presence of Cancer cell but it is now taken out of his body .He has under goen 4 Chemo therepy and 11 cycles of radiation and one concurrent chemo ( chemo given between radiation therepy ) as of now he cant eat properly as the neck part is having ulsers that is caused due to chemo , we are going to stop the radiation in middle that is after his 11 cycles of radiation.( doctor has suggested for 34 cycle) 

    Radiation was advised to us as a precautionary measur so that the cancer should not reaccure as of now considering is inabality to eat anything m thinking that rather than detoratiing his health any further i should stop the radiation because i cant see my father in pain .

    Please if their is anyone who has stoped his radiation in middle do let me know . 

    Welcome, Pritam24

    I a so sorry to read of your father's diagnosis. It is a shock to the patient and to loved one, as they face the battle together. 

    This is the Colorectal Cancer forum, and you may find more help on the Head and Neck Cancer forum. Here is the link https://csn.cancer.org/forum/164

    I wish your father the best, as he moves forward with treatment, hoping that he can tolerate, especially the radiation. 

    Tru

  • danker
    danker Member Posts: 1,276 Member
    edited December 2017 #32
    Phil64 said:

    Thank you Sue. Wishing you

    Thank you Sue. Wishing you much Love and beautiful peaceful nature on this feast of thanksgiving

    Good News

    Phil, may you be NED forevermore!!