What are the chances PET scan is wrong?

caregiver3
caregiver3 Member Posts: 49
in Colorectal Cancer #1

My husband had his first PET scan this week and we didn't get the results we were hoping for.  3 lesions showed on his liver that weren't in previous ct or MRI in September.  3 showed with intense uptake SUV of 6, 4.4, and 3.6.  The oncologist wants a needle biopsy of the one that had the most uptake.  But the scan report says consistent with mets.  Also the lung nodules that we have been watching showed uptake but oncologist said we would still watch those.  Also a lymph node showed. So what are the chances the liver lesions aren't METS?  Anyone have a positive PET with intense uptake and it not be a met?  

Comments

  • darcher
    darcher Member Posts: 304 Member
    #2
    If anything the opposit might

    If anything the opposit might be indicitive of a bad scan.  The amount of glucose in your system if high would mute the affects of what's in the injection.  From my very limited understanding it can take 2 to 3 months for something to show up from one test to another depending on growth rate and the fact that any of these tests are limited to a certain number of cells needing to be present in order to be seen.

  • Joan M
    Joan M Member Posts: 409 Member
    edited November 2017 #3
    CT scan may be more accurate

    CT scan may be more accurate than PET scan.  I've only had one PET scan because my doctors believe the CT is much more effective for comparing tumor growth over time. 

    They only scan my chest and abdomen to watch the tumors that were identified origininally.  I would like to get another PET scan done though to be sure cancer hasn't spread to my thighs or head.  

    Not sure if any of that helps you, but maybe you can ask your doctor about it. 

     

  • caregiver3
    caregiver3 Member Posts: 49
    #4
    I don't know if he wants the biopsy!

    Thanks for the replies so far.  My husband told me today that he has read bad things about the needle biopsy and I don't know if he even wants the biopsy.  Sounds painful!  And why all the steps?  I guess my frustration is if the PET scan showed 3 liver lesions, all with uptake is this standard to do a biopsy?  I guess I'm wondering what's the point of the scan?  And not to mention I'm now officially scared that my husband's stage 3b cancer will now be stage 4!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    edited November 2017 #5
    My husband had a biopsy

    but they missed the lesion and it was a false negative. Basically the liver surgeon said since they  appeared after the cancer they were cancers and took them out, and yes they were cancer. The biopsy was not painful,though and didn't cause any issues. Stage is scary, but my husband has been stage 4 for 3 years, and many others have been for even longer. Good luck, my thoughts are with you.

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    #6
    caregiver3 said:

    I don't know if he wants the biopsy!

    Thanks for the replies so far.  My husband told me today that he has read bad things about the needle biopsy and I don't know if he even wants the biopsy.  Sounds painful!  And why all the steps?  I guess my frustration is if the PET scan showed 3 liver lesions, all with uptake is this standard to do a biopsy?  I guess I'm wondering what's the point of the scan?  And not to mention I'm now officially scared that my husband's stage 3b cancer will now be stage 4!

    My needle biopsies weren't

    My needle biopsies weren't memorably bad, less of a jab than lung effusions were. My first PET after the colectomy had three lymph nodes lighting up in both armpits and my neck, and they came to nothing, so tell your man to have faith, and hang tough........................Dave

  • caregiver3
    caregiver3 Member Posts: 49
    #7
    Thanks for the info

    I really appreciate the posts and support.  My nerves are completely gone after the news from this PET scan!  It has really hit me hard today.  It looks like even with scans and biopsies, there is room for error.  Scares me!

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