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Are there any other MMMT survivors out there?

1975goatgirl
Posts: 1
Joined: Nov 2009

I am a 34 yr old woman who was diagnosed with stage 4B uterine MMMT. Mine had metastasized to my omentum, colon, appendix and most of my pelvic and abdominal lymph nodes. I am 3.5 years in remission. I would love to hear from other survivors. I know this is a very uncommon cancer in relation to most uterine cancers. I've never talked to anyone else with it.

My email is kisses4fluffies@yahoo.com

Thank you,

Carrie

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jinkies
Posts: 8
Joined: Sep 2016

I pray your tests show no signs of cancer, keep us posted on your condition, in the meantime I will keep praying for you. My CA125 is always normal so they cannot track my cancer other than scans and there is no guarantee they can see it with those since it looks like normal cells and I am scared of frequent CT SCANS being exposed to so much radiation and that is all they ever offer. I didn't think I would find another mullerian so I am excited about finding this site. I live in a rural area and nobody is familiar with it. Wishing you all the luck in the world, keep strong I am rooting for you.

jinkies's picture
jinkies
Posts: 8
Joined: Sep 2016

Are you still doing well? I just got diagnosed in Feb 2016 and finished taxol and carbo in August. I am lost as far as what is the next step to do at this point. The internet is very discouraging and I have not found a facility to accept me for a second opinion. i pray you are doing well, and I hope you get this message.2016-09-19

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Editgrl
Posts: 903
Joined: Jun 2015

Where do you live, jinkies?  Is there a Comprehensive Cancer Center anywhere close to you?

https://www.cancer.gov/research/nci-role/cancer-centers/find

LorySC
Posts: 1
Joined: Sep 2016

Hi all, it is conforting for me  to know that some of you are cancer free. Briefly my mom got diagnosed with MMMT the past july and after having an historectomy and chemo, recently, she has been suffering of ascites , liquid was inthe abdominal (peritoneal) cavity.  Because of that she couldn't persue radiotherapy. Did any of you have that? and if yes, what makes it better? Unfortunatly my mom is in the hospital right now and she is waiting for a MRI. hoping for the best.  Your feedback is appreciated.  

 

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Kvdyson
Posts: 789
Joined: Jan 2016

Hi LorySC, I didn't experience ascites but I believe that others on this support group have. You may want to start a new string with just that subject line so that others will reply. I hope your mom is doing okay and that you're holding-up, too. Let us know how it's going. Kim

gailbeth
Posts: 1
Joined: Jun 2016

i was recently diagnosed with stage 1C ovarian MMMT.  i am going thru 18 treatments of taxol and Carbo and am half way thru.  i have had 4 treatments canceled so far due to low platelets.  Is this normal?  Also is there anyone els out there with stage 1c who had treatment over a year ago and if so has it reappeared?  I am very thankful it was caught early, but what I read about MMMT seems it is very aggressive and will no doubt come back.

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Kvdyson
Posts: 789
Joined: Jan 2016

Hi Gailbeth, I don't have the proper experience to answer your specific questions but wanted to reach out to let you know that you're not alone. I was diagnosed a year ago with stage 1b uterine MMMT and have been NED since June. From what I can tell from all the support groups I follow, MMMT is aggressive but there are many of us who are NED and living wonderful, full lives (sometimes with recurrence). Please don't give up hope! Kim

Flower58
Posts: 1
Joined: Sep 2016

Hello all,

I have been diagnosed with MMMT.  I meet with an oncologist tomorrow. What Chemo drugs were you given? What was your treatment plan?

Thank You!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Hi Flower58, so sorry that you've had to join our group. I was diagnosed with stage 1b, grade 3, uterine MMMT in September 2015. My treatment was 6 rounds of chemo ( Ifex/Mesna/Taxol) with 28 external radiation treatments "sandwiched" between the 3rd and 4th rounds of chemo. I finished treatment at the end of May 2016 and have been NED since June 2016. Hope this information helps you. Kim

recently diagnosed
Posts: 2
Joined: Sep 2016

Hello, I have recently been diagnosed with carcinasarcoma of the uterus. I had a 15cm tumour removed from my womb lining as well as a radical hysterectomy. I have been offered both chemo and radiation but have chosen a radical change in my diet making my body alkaline. The doctors cannot guarantee I still have cancer so the chemical route for me I did not want to go down.  My question is has anyone else rejected the traditional chemo/radiation treatment and gone to raw foods alkaline diet and survived?

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Editgrl
Posts: 903
Joined: Jun 2015

Check out her "About Me" page.  She is not very active on this board any more, but you can try PM-ing her.  She refused chemo and radiation and went with diet and other lifestyle changes.  As of the end of last year, almost 6 years.

janaes
Posts: 782
Joined: May 2016

Hi recently diagnosed.  I was diagnosed with carcinosarcoma back in May of 2016.  I had a total hysterectomy May 2nd 2016.  As hard as the desision was for me, i chose to do chemotherapy.  I just finished 6 rounds of it last week and now am choosing to do bracytherapy in two weeks.  There are others on this board who have this diagnosis as well.  This kind of cancer is an agressive type and I felt by doing chemo  it was my best shot at life.  I had chemo 23 years ago for a different kind of cancer and chemo saved my life then.  I didnt want to do chemo again but i did know it can save lives and so i did it.

There is also a yahoo Carcinasarcoma group that has a lot more MMT menbers.  You might want to consider joining there as well.

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Kvdyson
Posts: 789
Joined: Jan 2016

You may also want to google Angel Howerton. She was stage 4 carcinosarcoma, went the holistic route and just celebrated her 5 year NED anniversary. Good luck to you and please let us know how you are doing. Kim

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marti968
Posts: 37
Joined: Apr 2013

Hello Carrie.  I am Marti.  I am 5 years March.  I do have MMMT. This is an extremely aggressive cancer.  I am sorry to say but you are not out of the woods.  This darn MMMT can creep up when you least expect it.  Each day is a blessing. I live a fairly normal life for me. I am phsically challanged so this is a little harder to deal with but there are are numerous wonderful thingw thqt hqppen in my life. I don't mean to tell you give up, never do that.  Just be certain to take good care of your self. That will atribute to a longer life span also.The worse thing is giving up.  When life isn't perfect you just do your best. I wish there was something more possible to say aout this MMMT.  

MaryO143
Posts: 1
Joined: Jan 2017

I have been diagnosed with Uterine Carcinsarcomas or MMMT. I am having surgery tomorrow. I survived Colorectal Cancer 9 years ago. I read somewhere that radiation might have caused MMMT. Is there anyone out there with MMMT who also had Radiation?

I am encouraged that there are survivors out there. I have not been staged yet... so I don't know my chances yrt. 

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Hi Mary, so very sorry to hear that we share the same diagnosis but please stay hopeful - regardless of the staging. You'll read many encouraging stories of ladies with every stage here. There is hope - just stay focused on healing from your surgery tomorrow and don't worry too much about what is to come next. 

I've also heard that radiation is one risk factor for this type of cancer. There are quite a few. I didn't have any of them and still ended up with it - go figure!

Once your surgery is over and if you're feeling up to it, come back to this site and start a new post letting us know how you are doing. We'll be sending out positive vibes for you tomorrow! Good luck to you and don't be a stranger! Kim

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ConnieSW
Posts: 1456
Joined: Jun 2012

Good luck to you tomorrow.  I'll be thinking about you and hoping for the best 

janaes
Posts: 782
Joined: May 2016

Mary welcome to our group.  It is interesting that you mention your story because last May (2016) I was diagnosed with the same cancer you were.  I was told by two oncologists that my cancer was caused by the radiation i recieved for my Hodgkins Lymphoma cancer i had twenty three years ago.  I found that with my first cancer it was a little common to get another cancer years later because of the large amount of radiation given.(even with other cancers)  I dont know if  my MMT cancer (specifically) was nessasaraly because of my first cancer but its interesting that your mentioning that.  I remember when i first found out about this second cancer.  I was so upset and I will be honest I did less radiation for the treatment for this cancer than some others have had partly because of the radiation I have already had and with my doctors telling me radiation caused this cancer.  Reading up on all this and asking others that had my other cancer helped me as i went forward in my journey.

Lots of love with your new journey

your not alone

Janae

Nellasing
Posts: 529
Joined: Oct 2016

So glad you found this wonderful group of ladies- they are smart, supportive and there is a lot of activity daily.  I am sure sorry to hear this isn't your first go round with this!!!  I do not have your type of cancer but just wanted to cheer you on with your surgery tomorrow.  We'll be thinking about and praying for you as you get through this step.  Please do come back and let us know how it goes when you can.   (((HUGS)))

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TeddyandBears_Mom
Posts: 1564
Joined: Jun 2015

Glad you found us Mary. I hope your surgery goes smoothly tomorrow and you get the best possible news out of this. We will all be supporting you on the sidelines! Please do come back and let us know how you are doing when you feel up to it.

Ask us anything. Someone will most likely have an answer for you.

Love and Hugs,

Cindi

BrendaRog
Posts: 1
Joined: Jan 2017

I am newly diagnosed with MMMT. I'm about 10 days out from a total hysterectomy, and will see my GYN Onc in 3 days. She has said chemo and radiation are a must.  So I will be back with to report my treatment plan. Ten years ago I had breast cancer, so I've been throgh chemo and rads once before.  I think I may have posted a thread here a day or 2 ago, but someone else pointed me here. I'm already in the FB group.

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TeddyandBears_Mom
Posts: 1564
Joined: Jun 2015

Brenda,

Welcome to our board. Glad you found us and so sorry you needed to!  Please come back and let us know how you are doing once you get through surgery. I hope you are a good candidate for robotic surgery. Healing time is faster and easier. We are here for you with any and all questions. Nothing is off limits!

Love and Hugs,

Cindi

Nellasing
Posts: 529
Joined: Oct 2016

You have been through it- so very sorry to hear you are now newy dianosed with MMMT- that just sucks and sure isn't fair! 

I am very glad you posted here- you will find this is a very active group with the most AMAZING and SMART ladies!!!  They never cease to amaze me with their support and intelligence!

All the best as you recover and then meet with your gyn/onc.  We look forward to hearing how things go.   (((HUGS))) and prayers for your journey

janaes
Posts: 782
Joined: May 2016

Hi BrendaRog,  Sorry I have posted so late.  I hope you have found some support.  I hope your recovery from surgery is going well.  I had cancer 20 years ago(hodgkins lymphoma) .  I was diagnosed with MMT uterine cancer last May.  I had to do chemo all over again too.  I made it through treatment in October and am doung pretty good now.  If you havent done it yet I would suggest you start a new thread about this and more people will respond.  These old threads are hard to find.  There are some MMT survivers who still post and are further along than me.  I wish you the best as you go forward

Janae

LMPB1927
Posts: 6
Joined: Feb 2017

I am an 89 year old woman recently diagnosed with Stage 4 Mullerian cancer. I lead a busy life, maintain a home, sill drive, and (for the time being) am still out and about most days. I had a hysterectomy last year and a cat scan three weeks post surgery that detected the cancer. Possible causes include having been on estrogen therapy for many decades, and taking tamoxifen during a prior bout with breast cancer (no recurrence since the 1990's). Both estrogen and tamoxifen are now listed as contributing factors to the onset of MMMT. As noted, I was diagnosed as stage 4, and given an original prognosis of approximately 6 months to live (surgery August 2016, and diagnosis in September). After a  subsequent cat scan (December) showed no signs of metastasis my prognosis was revised to (up to) 2 years. While there are no visible metastasis, my cancer antigen blood counts remain high. There was cancer present in my lymph nodes but it was too small to conduct an additional biopsy. I am happy to find this forum as this is a relatively rare form of cancer, so input or advice from others who've had a similar diagnosis, or fought (or are currently fighting) the same disease would be most welcome. My doctor has indicated chemotherapy would be of no benefit, at this point anyway, so my path forward currently involves regular check-ups, including blood tests, and cat scans every two months. I had another scan just 10 days ago, and received a fairly positive report. Of three growths/nodes, or areas they are tracking, two showed no change at all, and one showed a (new) very small growth of just a few millimeters in length. As a result there was no change to my prognosis, and the doctor is still recommending no treatment at this time. I am also making an effort to pursue healthy, cancer fighting nutrition guidelines, and as mentioned, am quite active on a daily basis and have suffered almost no pain thus far. I know this is likely to change at some point, but for now I am taking things one day at a time. I am fortunate to have a strong support group of both family and friends. Any information regarding potential treatments, or trials, or anything else someone feels might prove beneficial as I fight this battle, would be greatly appreciated. I am not interested in debilitating treatments that offer little in terms of an extended life span. That said, I might be willing to consider a difficult course of treatment if it could potentially add even a year or two to my current prognosis.  Given the rapid advances in immunotherapy, and other treatments, an extra year might make a difference with respect to new and improved therapies becoming available.

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

LMPB1927, I am sorry to hear about your diagnosis but LOVE your attitude! My diagnosis was also MMMT but my treatment was much different. After surgery, I was given 28 external radiation treatments "sandwiched" between 6 rounds of chemo. Luckily, neither were too bad for me and I continued working through them. My status is NED (no evidence of disease) since the end of treatment in May 2016.

Have you had your genes tested? The results may indicate whether you are a candidate for some of the current trials for targeted treatments and/or immunotherapies. I had mine tested but none had any variants so chances are not good for me to be accepted into any trials if I should ever need them.

We're so glad that you found our group and look forward to hearing more from you. You may even want to consider starting a new post as it's easier to follow replies that way. Good luck to you and don't be a stranger! Kim

LMPB1927
Posts: 6
Joined: Feb 2017

Thank you for the nice response, and for recommending I start a new thread.  I just did that. I haven't had my genes tested yet; I will ask my doctor about that during my next visit. I wasn't even aware of that option, so I've already learned something new!

Nellasing
Posts: 529
Joined: Oct 2016

Wow you are amazing!!!  I want to be just like you when I grow up Laughing  Welcome to this group- these ladies have been truly wonderful and inspirational and there are several who are fighting with MMMT and they will probably be along soon.  Looking forward to getting to know you and linking arms as we journey along.  So much better with "peachy" sisters to connect with!  (((HUGS)))

LMPB1927
Posts: 6
Joined: Feb 2017

Thank you for the nice reponse, and kind words. I just re-submitted my intial post on a new thread. I am so happy to hear from you and others, and look forward to making many new friends during the days and months ahead.

armyjjg8790's picture
armyjjg8790
Posts: 2
Joined: Jul 2016

Not sure how to post. I'm new here. 4 1/2 months in remission from stage 3C1, MMMT. I'm unable to find recent post. Thank you 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1564
Joined: Jun 2015

Hi armyjjg, First .... welcome to the board! Congrats on finding your way to NED. May you continue the dance forever. :-)

This is a great place to ask questions or get support when needed. Or give the same to others.

If you have any questions and want to start a new thread, go to the top of the page and it says something like start a new topic. Clic on that and you will be all set.  (I'm making an assumption that since you are NED, that you have completed your treatments. If that is not true, you may want to read 'Ladies Going Through Chemo' and 'Let's talk about radiation'. Both have a ton of information from several of us that went through this in 2015 / 2016.)

Love and Hugs,

Cindi

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CancerSucks2015
Posts: 1
Joined: Oct 2017

Hi, I was told on my birthday (Sept) in 2015 that I had cancer. I had surgery in October. I was told it was MMMT stage 4 grade 3 ( go big or go home) My port was put in, had a chemo, then ended up ICU, during Thanksgiving, with an infected port that was removed (again go big or go home). Finally, got that cleared and had to have another port put in. Then I did my 5 more chemos.... May 2016 NED.... Still NED next scan in January 2018..... 

I just found y'all....

 

If you are on Facebook, there is a page for MMMT - lots of ladies with plenty of answers.... 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1564
Joined: Jun 2015

Welcome to our board! Just wanted to say congratulations on dancing with Mr. Ned. May you continue that dance forever!

Love and Hugs,

Cindi

janaes
Posts: 782
Joined: May 2016

Welcome. Im sorry you had to find out you had cancer on your birthday.  I found out about a month and a half before my birthday. I stsrted chemo the tuesday after my friday bithday.  As much as i was glad i wasnt doing chemo yet and desided i wouldnt until my birthdau was over , it was sure hard celebrating knowing i had cancer.  You a tough cookie

Oh by the way i was diagnosed with mmt stage two grade 3.  Its been almost a year since i was done with chemo. Sometime this month. 

Congrades on your NED.  

Janae

 

Lou93's picture
Lou93
Posts: 3
Joined: Nov 2017

Hi, I am a new MMMT patient, Stage 4 and will start chem on Mon, 20Nov2017.  My regimen includes taxo and carboplastin plus a new drug called Avastin (which is intended to block angiogenesis or blood vessel growth into the tumors).  What drugs did you take??

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2611
Joined: Mar 2013

Lou, sorry that you had to find us but there are good women here.  I would encourage you to start a new topic to introduce yourself to everyone so you can be welcomed with open arms.  You are not alone.  Please let us know how it goes and let us know if you have ANY questions.  We talk about everything.

itsmary850
Posts: 2
Joined: May 2018

Diagnosed Jan 2017. Surgery Feb 2017. 6 rounds chemo..platin and taxol. After 3, severe neuropathy. Dr changed treatment. Had 3 months off then radiation. After radiation, my recurrent tumor had grown. Radiation only damaged kidney and bladder. Tumor growth has caused blockage to uretha which prevents ability to pass urine. I am scheduled for surgery to insert stent into uretha. Dr recommends Doxil. After researching side effects I have declined. Chemos and radiation have affected my liver such that anything I take such as meds for high blood pressure, simple ibuprofen causes intense itching and discomfort. It isn't looking good. I have turned my cancer over to the great physician. My hope is in God. After all, he has final say...alpha and omega. He gives me peace. I have a grandbaby that is 2.5 years. Love watching her grow. I am 67 years old, btw. Christian music and daily word keeps me happy and without fear. It also helps to read about ladies who relate. My prayers are for each and every one of you. My doctor is a Godsend. Clearly the lord has been with me every step of the way. Mary

 

 

GinaCatR's picture
GinaCatR
Posts: 4
Joined: Jun 2018

Not sure if anyone is still reading these posts since most seem to be from last year. My mom was diagnosed with MMMT of the ovary in late Jan. Had a full hysterectomy and is finishing her last round of chemo. I don't really trust her doctors. She goes to Cleveland Clinic of Florida but I feel like these guys aren't being straight with us. I see everyone with specific stages and they seem more informed. The surgeon just kept telling her it was serious and when we asked about stages they danced around. The oncologist said 2 but the surgeon said maybe more like 3--I mean--don't they give you more specifics? I'm ready to bounce her out of there. I want someone who knows what they are doing since this cancer is very aggressive. Everyone's stories are giving me hope though. But I need guidance and need to find doctors that are straight with us and know what is happening. If anyone can help, please reach out!! xo

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2611
Joined: Mar 2013

Dear GinaCatR, yes there are people here who still read and comment.  With 7 electronic pages it is sometimes hard to find things when they get posted.

I would think your mother would be dealing with a gynecologic oncologist if you are working with the Cleveland Clinic - I am assuming it is a hospital that has some affiliation.  (Indianapolis has something like that with MD Anderson)  Not sure where in Florida you live, but there are a few other ladies here who may be able to suggest another doctor/hospital.  

Since your mom has had the hysterectomy I think they should be able to give you the proper staging.  I think you need to find someone who will give you some answers.  I am sorry your family is having to go through this and you are a good daughter to be concerned. 

Where in Florida does she live?  How many chemo's has she had and do you know what kind?  (Taxol and/or Carboplatin?)

GinaCatR's picture
GinaCatR
Posts: 4
Joined: Jun 2018

Oh wow!! Thank you so much for your message!! I was trying to navigate and wasn't finding people. This is a Godsend! We live in South Florida so I'm thinking the resources must be vast--but we don't know anyone who has had anything like this (so no one so far knows what to tell us). And you are right--we are dealing with a gynecologic oncologist and she is completing her last round of (6) chemo today. And she's doing both taxol and carboplatin together. Her CA-125 is also in the negatives too so things are actually good right now. But we have one doc acting (not actually telling) us that he thinks she has seen the last of this cancer but then we have the other extreme where the surgeon says she has a 50/50 chance of it coming back and he acts (again--ACTS) all grim reaper. Both docs have not offered a stage but said "probably about" either a II or a III. I see now though there is more to that than just a II or III--which is frustrating they aren't telling us (like what I'm seeing all over this forum board). 

We seem to have docs who have been good about dealing with her physically but their communication skills are horrible. They do a lot of "hinting" and only give us information if we know the right questions to ask--which is frustrating since we don't! 

So poor mom is finally feeling great again and started doing the dreaded Googling. And I'm sure everyone knows where that takes you. She is now feeling hopeless, so I'm here to fight for her. I did tell her about this forum and how there were plenty of women who are doing well years later, which I think lifted her spirits! I just want to kick it into high gear and find an actual partner who has communication skills (and doesn't get annoyed when we ask questions too--that's another one with one of the docs). No time for that nonsense!! 

Your message really helped@Notimeforcancer! Pour on any advice/guidance!! I'm here to absorb! 

cmb's picture
cmb
Posts: 396
Joined: Jan 2018

The pathology report from the hysterectomy will tell you the stage of the cancer. If your mother hasn't gotten a copy of this report, make sure she does. I also suggest asking for copies of the bloodwork that was done while your mother was receiving treatment. I did not try to collect every one of these reports since my blood levels were measured weekly, but I did get copies of the ones that were done before I had the chemo infusions. Your mother is entitled to her medical records and this information will help if she decides to seek out another doctor or further treatment like radiation.

Because MMMT is a rare cancer, doctors may legitimately have different opinions about the long-term prognosis. But survival statistics from the past may not be as applicable to newer patients since treatment methods have changed over time. There are some longer-term survivors on this site, as well as the Yahoo group dedicated to MMMT cancer.

Marjorieann
Posts: 1
Joined: Jul 2018

Hello from Ireland.

In 2010 I was diagnosed with MMMT GRADE 3 STAGE 1 

Im still here!!!    do I hold a record?

regards Marje

cmb's picture
cmb
Posts: 396
Joined: Jan 2018

Marje,

There are a couple of long-term survivors of MMMT that I know still post. Others may have survived their battle with this disease, but have stopped posting here as their cancer experience recedes into the past. And unfortunately some of the women on this thread have passed on.

So I'm not sure you're our longest MMMT survivor here, but you're certainly in select company.

We're always happy to welcome another long-term survivor of this aggressive disease to the board. Thanks for letting those like me with this same type of cancer know that there is hope for a long-lasting remission.

sapna16p
Posts: 3
Joined: Aug 2019

hi ... Can you give me some more details of your treatment that you undertook. my mother is diagnosed with MMMT grade 1B but it has now metasised to intestines and thus advanced. Your story is really encouraging 

 

Regards

sapna  

Soup52's picture
Soup52
Posts: 902
Joined: Jan 2016

Fantastic Margorie!

Jina2010
Posts: 8
Joined: Jul 2018

Hello there.  My mother was diagnosed with Stage 1 MMMT tumor grade 3 in February of this year.  Went through chemo; now going through radiation.  Has anyone had any luck with immunotherapy?  We want to be optimistic but are terrified by the stories of recurrance.  Thank you so much~

cmb's picture
cmb
Posts: 396
Joined: Jan 2018

Immunotherapy can be effective for some patients, but it usually depends upon whether the patient has a particular gene mutation. For example, Keytruda (pembrolizumab) and Opdivo may be used for patients that have been identified as having a biomarker referred to as microsatellite instability-high (MSI-H) or mismatch repair deficient (dMMR). But patients with these markers are a pretty small percentage of the total number of cancer patients.

I happen to be one of people with this genetic mutation, although my front-line treatment has kept my MMMT cancer at bay for the moment. So I don't have personal experience with immunotherapy.

If your mother hasn't been tested yet for these types of mutations, you may want to explore this further. But hopefully the chemo and radiation will do the trick for her since her cancer was caught early,

mlshep
Posts: 6
Joined: Mar 2019

I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the end. A CT scan has shown no evidence of disease.

i would like to ask if any of your doctors have suggested genomic testing through Foundation One, and if so, what are your thoughts?

It is so interesting to read others paths with this disease and to see that there are those who are still doing well.

 

Forgot to say I was diagnosed at 63.

Lynn

Forherself's picture
Forherself
Posts: 240
Joined: Jan 2019

Are you new to the board?  It is a wonderful place to learn about other women's experience with this disease.  You have posted at the bottom of an old post, which makes it hard to find.  You could make a comment all youur own.  There are lots of women who hae had gehomic testing and would be happy to discuss it.  It would be easier to find in a new thread.

mlshep
Posts: 6
Joined: Mar 2019

Thanks, I will try a new post, this board is confusing to me.

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