The Endless Diarrhea and Bowel Issues.......

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Comments

  • Andreakh
    Andreakh Member Posts: 2
    Bowel other issues

    Hello everyone,  I have been reading this board for many years, was diagnosed with anal cancer Jan. 2009. I had chemo and radiation, no surgery. They called it moderately differentiated squamous cell carcinoma. What made me join only now is that I see several people on this board with similar problems. I had diarrhea for a long time, started drinking kefir, which is fermented milk, and this really seemed to help. Also I was diagnosed with necrotizing  fasciitis last year when doctors put me on a lot of different antibiotics. I spent a long time in hospital and rehab. During that time I developed c. diff which is caused by too many antibiotics and they gave me probiotics. Did anyone with bowel problems try probiotics? Sorry for the long post, Andrea 

     

     

  • Bellen
    Bellen Member Posts: 281 Member
    Do probiotics help with stomach issues?

    I wonder if probiotics would be helpful or recommended for stomach and bowel issues from chemo - or if it is okay to take while on chemo.  I know my dietician mentioned he would look into it too - okayed yogurt, but wasn't sure about kefir or probiotic supplements. Will ask my Oncologist.

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    Probiotics

    I tried probiotics and didn't really see much difference. I took a fancy one that was expensive that I read about in a study on pelvic radiation and diarrhea prevention- study showed it helped but honestly I personally didn't see much of any difference. That said I still think it's worth a try since everyone is different. Better check with oncologist though since they might not want you on them if your white counts are really low.

  • LindaBaehr
    LindaBaehr Member Posts: 47
    edited September 2017 #45
    Probiotics

    My GI Doc put me on them too, but I haven't seen any improvements either.  I keep trying, though.  

    I've crapped myself during the night twice in the last week or so.  I'm getting so tired of this.  

  • Fengshoe
    Fengshoe Member Posts: 23 Member
    Diarrhea control

    Hello everyone! I'm a newbie here.  However, I completed treatment in January, 2017 for stage 3b anal cancer.  Although, I expected to be completely healed and back to normal (whatever that is), I'm still not quite there.  Things are good for me, but I've been very proactive about treatment for side effects from the chemo and radiation.  I can't stress enough to take yoga classes and do stretching exercises for the pelvic damage to your muscles, tendons and ligaments.  I can tell a big difference from when I first started in April.  I think that exercise has also helped to keep fatigue at bay.

    I do have bowel issues like all of you.  I eat lots of salads, fresh fruits, Greek yogurt, and grilled meats, and but I take lots of fiber supplements and probiotics.  I find that if I avoid caffeinated teas (black, green, etc.), processed foods, chocolate, sweets and fried foods, I can keep from getting diarrhea (coffee is no problem, thank goodness).  Also, the stools stay firmer and maybe only one movement a day with more fiber and probiotics.  The bigger the meal, the sooner I have to visit the ladies room. Just in case, I wear a pad or pantyliner every day, but I hope that those will be a thing of the past eventually.

    I think the process of recovery is all about finding out what will work for you.  Keep moving and smiling!  There's a reason each and every one of you is still here!  Your journey isn't finished.....

  • dharma19
    dharma19 Member Posts: 16
    edited September 2017 #47
    mp327 said:

    LindaBaehr

    Welcome to this site.  I'm glad your last scan and biopsy showed that you are NED.  It is quite concerning that you are having such severe stomach pains and diarrhea at over a year out of treatment.  Radiation to the intestinal tract can cause lots of damage and perhaps your doctors are correct.  I have had bouts of abdominal pain many times.  However, mine have been due to intestinal blockages, one landing me in the hospital a few years ago, about 4 1/2 years after my treatment.  Have you asked your doctors about possible blockage causing your pain?  When I had a blockage, the pain was off the charts.  If not a blockage, it's also possible that you have adhesions from the radiation that are on the outside of your intestines, which can cause squeezing of the passage.  Another possibility is twisting of the intestines.  Keep asking questions of your doctors.

    If you are eating a lot of raw fruits and vegetables, you might try cooking everything first.  I microwave apple and peach slices and eat only the occasional salad.  Everything else is cooked.  I think radiated intestines have a hard time with raw foods for some people who have undergone this treatment.  It would be worth a try.  Also, if you're not on a probiotic, that would be good to try.

    I wish you all the best as you seek answers to these issues.  Hang in there because sometimes time is the best healer!

    Martha

    Same here

    Pain, told it may be permanent, diarrhea, now incontinent. 

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    Linda

    Sorry about the crapping yourself. I have had some close calls at night but luckily wake up in time. However I've crapped myself twice in public and had to drive home 30-45 minutes each time, I will spare the rest of the gory details. Except for the part I kinda have to laugh at- I was so frazzled by the time I got home from one of the incidents that I left the car running in the driveway until it ran out of gas! Laugh or cry I guess it is what it is.

  • LindaBaehr
    LindaBaehr Member Posts: 47

    Linda

    Sorry about the crapping yourself. I have had some close calls at night but luckily wake up in time. However I've crapped myself twice in public and had to drive home 30-45 minutes each time, I will spare the rest of the gory details. Except for the part I kinda have to laugh at- I was so frazzled by the time I got home from one of the incidents that I left the car running in the driveway until it ran out of gas! Laugh or cry I guess it is what it is.

    Oh no!

    Ran out of gas!  Laughing

  • LindaBaehr
    LindaBaehr Member Posts: 47
    Something new....

    So I have something new happening now.  

    I try to minimize the use of Immodium, because for me it either does not work well most of the time, or it gives me stomach cramps.  Sunday I was having horrible diarrhea and I really needed to leave the house and do some shopping.  So, I took two Immodium.  That was on Sunday at about noon.  It is now Wednesday, a bit after 9AM, and I have yet to poop since Sunday.  WTF?  I might have to go home and do some shots of Miralax.  How ironic to have daily diarrhea for a year and a half, and now having to do laxatives again.  *sigh*

     

  • Mollymaude
    Mollymaude Member Posts: 431 Member
    edited December 2017 #51
    Linda

    My mom had IBS with a lot of diarrhea but she would get constipated if she took Immodium - so with that being in my family history I'm pretty careful when using Immodium. I only take 1/2 to one a day if I've had several episodes of diarrhea. It does help with diarrhea but it can mess up my poop schedule  some. Ideally I get up, drink my coffee and go at home so maybe I don't have to spend time at work on the toilet. If I take Immodium all bets are off about when the next bowel movement will hit. 

  • LindaBaehr
    LindaBaehr Member Posts: 47
    edited December 2017 #52

    Linda

    My mom had IBS with a lot of diarrhea but she would get constipated if she took Immodium - so with that being in my family history I'm pretty careful when using Immodium. I only take 1/2 to one a day if I've had several episodes of diarrhea. It does help with diarrhea but it can mess up my poop schedule  some. Ideally I get up, drink my coffee and go at home so maybe I don't have to spend time at work on the toilet. If I take Immodium all bets are off about when the next bowel movement will hit. 

    Ugh...........

    Yeah.  I'm done with Immodium unless it is an emergency.  Still nothing as of this morning.  Luckily my work is closing tomorrow for the holidays.  I'm going to come home tonight and pull out the big guns- magnesium citrate.  Before the cancer I was probably the most regular person on the planet.  If I ate three times a day, I pooped three times a day.  I was probably constipated less than a handful of times in my life.  This is ridiculous.  

  • 0626june
    0626june Member Posts: 73
    by far the most difficult side effect

    I'm 3 1/2 years post-treatment and still never know when I'm going to have to go with no warning.  I wear sanitary pads now every day and night. What that does is allows me to get a little further from the bathroom.  After reading this, I'm going to try pro-biotics.  Mine is not so much diarrhea as leaking of poo that comes out whenever it wants to. 

  • Paris75
    Paris75 Member Posts: 6
    stiffness and loose bowels helped by pelvic floor therapy

    Hello everyone,

    I had a stage 3A anal cancer, treatment ended 21 months ago. I can eat mainly only low residue foods and I must be very careful. I take a one-third dose of Miralax and two teaspoons of Metamucil every day. One thing that has helped my A LOT with the stiffness and surprise poops has been physical therapy for the pelvic floor. I had little hope of progress going into the physical therapy, but within a week or so I had a lot of progress. It is quite demanding, lots of exercises to do at home, but it has proven well worth it.

    I must say I still yearn for the day when I can eat beans, cauliflower, hot sauce and drink coffee, but I realize it may never happen. Alas! At least I'm old, have had many years of eating lots of good stuff.